Next Meetings

We are once again having IN PERSON MEETINGS!!

Saturday, Aug 21, 2021

Saturday, Aug 21, 2021

Capital District Parkinson's Support Group

SUMMER PICNIC 

Saturday, August 21, 2021 at 12 PM

South Pavilion, “The Crossings” Park, Colonie


Come join us for an afternoon of good food, friendship and fun. It has been a long two years and we have a lot of catching up to do.


There is no charge and CDPSG will provide hamburgers, kosher hot dogs and vegetarian skewers. We will also provide soda and bottled water.


In 2019, members were generous and there was some food left over - please err on the side of lower amounts of food and keep track of your dish in order that you can take any leftovers home.


Please use this form to confirm your attendance before August 16.


Please send email to Ian Wing at iwing5033@gmail.com  with regrets or questions.


Volunteers


We will need 2 or 3 people to volunteer to cook and 3 or 4 others to assist with set up, take down and clean up.  Please let Ian Wing know if you are willing to assist. Email is above.


As in 2019 we are asking that each person/family unit/ group of friends bring appetizers, salads and desserts sufficient for your group and  1 or 2 others. These will be shared by all.  Please keep track of your dish so that you can take any left overs home.


If your last name begins with:

A - C    Please bring chips and dip

D - F     Please bring “non chip” appetizer e.g. veg tray, hummus

G - J     Please bring a starch salad - e.g. potato, pasta or rice

K - N     Please bring a green salad

O - R     Please bring coleslaw

S  - V     Please bring pie or cookies

W - Z     Please bring a dessert appropriate for a warm summers day e.g. fruit salad


We’re looking forward to a fun day.  


Directions:

Enter the park from the main entrance on Albany Shaker Road

(GPS 580 Albany Shaker Rd, Loudonville, NY 12211)

Follow the park road 6/10 mile to the end. 

You will see the pavilion from there.


Please use this form to confirm your attendance before August 16.

 

September 9, 2021 - Duopa

September 9, 2021 - Duopa

from https://www.michaeljfox.org/news/duopa-levodopacarbidopa


Duopa was approved in 2015 by the U.S. Food and Drug Administration (FDA) for Parkinson's motor symptoms (tremor, slowness, stiffness). A gel of levodopa and carbidopa, it is infused through a surgically implanted tube into the small intestine, where levodopa is absorbed. (Levodopa is converted in the brain to dopamine, the chemical that goes missing in Parkinson's; carbidopa helps levodopa get into the brain and decreases side effects.)

A portable pump, which can be worn during regular daily activities, infuses Duopa for 16 hours each day. Duopa is most often used in people who experience significant "off" time (when medication is not working optimally and symptoms return) and/or dyskinesia (involuntary, uncontrolled movement).


Pros

  • Duopa bypasses the stomach which, in Parkinson's, can empty slowly and irregularly. This can lead to poor absorption and unpredictable relief with drugs taken by mouth. The continuous infusion aims to keep a steady and consistent level of levodopa in the blood (and therefore in the brain) to lessen "off" time and dyskinesia.

  • For people who experience significant "off" time and dyskinesia and who do not want to or cannot undergo deep brain stimulation because of cognitive problems or other conditions, Duopa may be an alternative.


Cons and Complications

  • Potential side effects related to levodopa include nausea, low blood pressure (which can lead to dizziness and lightheadedness) and hallucinations.

  • The surgically implanted tube brings additional risks, including infection, bleeding, and tube clogging or dislodging. Family members or care partners also may have to help keep the tube clean and administer the medication.

October 14, 2021 Dr. Eric Molho

October 14, 2021 Dr. Eric Molho

Dr. Eric Molho is Director of one of the only comprehensive Movement Disorders and Parkinson’s Disease Centers in New York State. His practice is almost exclusively devoted to treating Parkinson’s disease, tremor, and dystonia, as well as other movement disorders. Dr. Molho has served as the principal investigator on numerous clinical trials for Parkinson’s disease, enabling him to offer the most advanced treatments and knowledge to his patients. He is also uniquely skilled and experienced in botulinium injections for dystonia, providing patients with optimum results. Patients value his comprehensive and compassionate approach:  “The best that I can offer is my time and expertise,” explains Dr. Molho. “These are complex cases and I feel it’s important to take the time to distinguish each individual patient’s needs, tolerance for medication and lifestyle in order to ensure the best treatment outcomes." 


November 12, 2021

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