About Parkinson's Disease

Parkinson's disease is a progressive nervous system disorder that affects movement. Symptoms start gradually, sometimes starting with a barely noticeable tremor in just one hand. Tremors are common, but the disorder also commonly causes stiffness or slowing of movement. - Mayo Clinic

Local PD Exercise Classes
Boxing, Indoor biking, Yoga and more

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#Exercise

Albany County Department for Aging
Albany County Department for Aging (ACDFA) strives to maximize choice and self-direction for the people of Albany County as they age. ACDFA’s mission is to connect adults age 60+ and their families/caregivers with community resources that promote independence, self-direction, dignity and improved quality of life.

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#Local

Care Partner Resources from Davis Phinney Foundation
Articles, videos, and more to help support Care Partners

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#CarePartner, #About

Care partner Advice - Michael J. Fox Foundation
Being a care partner can sometimes be challenging, but having a care partner is essential to the well-being of every person with Parkinson’s.

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#CarePartner, #About

Davis Phinney "Every Victory Counts" book
People living with Parkinson’s, their care partners and families and friends of those living with Parkinson’s want reliable and practical information that inspires action to improve their quality of life today and every day. The Every Victory Counts® manual is the gold standard resource to help you live well with Parkinson’s and achieve your personal wellness goals. This comprehensive resource gives you the tools and the confidence to take control and start living well today. (5mb, 274 page printable PDF book)

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#About

Davis Phinney - HOW TO LIVE WELL WITH PARKINSON’S… EVEN WHEN YOU’RE LOCKED DOWN
The Parkinson’s community has shown up in a big way during this global health pandemic. From moving events online to offering virtual exercise classes and support group meetings, we’ve reached a point where it’s possible for you to keep up your regular live well routine all from the comfort of your own home. Even though connecting with people through hugs and handshakes and shared experiences is a key piece of living well, and we know you’re missing that in significant ways every day, we are grateful to those who are working to make this period as manageable as possible. If you’re looking for ways to exercise, connect, and play online, here are just a few of the options out there.

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#Exercise, #COVID

Depression and PD: A Non-Drug Treatment Option
Learn the skills that will empower you take control of your mood, worry less and find meaning in
daily life. These skills are modeled on a non-drug therapy called cognitive behavioral therapy, which
has been proven helpful for Parkinson’s-related depression.

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#MentalHeath

Disability Benefits
If you have been diagnosed with Parkinson’s disease, you may be concerned about continuing to work and make a living for yourself and your family. Because Parkinson’s is a progressive disease, you may find work more challenging as time goes on.

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#About, #Finance

Eye and vision issues
People with Parkinson’s disease (PD) may have a variety of complaints related to their vision such as trouble reading, double vision and dry eyes. While these issues don’t affect every person with PD, it is important to know what the different issues are and that there are a variety of ways to treat them

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First Call
Any or all of the following are good “first call” resources, or whom to call to find out whom to call for your particular needs.

The following sources are available to contact about up-to-date information about Parkinson's, referrals to healthcare professionals, emotional support, community resources and a wide variety of free publications.

Contacting any of these folks will allow you to speak directly to a person that has expertise to get you help for a variety of needs. A good “first call” for any non-emergency questions.

1. Parkinson'sFoundation Helpline: 1-800-4PD-INFO (473-4636).

2. Catholic Charities, Francine Meade, caregivers support, +1 (518) 372-5667.

3. Albany County Department for Aging, Matthew Hanrahan, 518 447-7198. He can direct you to other counties’ resources as well.

4. Alzheimer’s Association, caregiver and referral services, Shannon Lawler, (518) 867-4999 ext. 306. Serving needs of those dealing with Parkinson’s and other conditions, not restricted to Alzheimer’s.

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#Local, #CarePartner

Medical marijuana - ADPA statement
Guidance for the Parkinson’s community on medical marijuana treatments.
Parkinson’s disease (PD) can be very challenging to cope with, causing a mixture of motor and non-motor symptoms that affect nearly every aspect of daily living. Although the medications that doctors prescribe can be helpful, there remain gaps in what the medications can treat. Understandably, people with PD are eager to find alternative methods to help their symptoms, leading many of these patients to look into whether other therapies, such as medical marijuana, also known as medical cannabis, can be useful.

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#AlterativeTherapy

Medical marijuana - Parkinson.org statement
A consensus statement from the Parkinson’s Foundation declares there isn’t enough data yet to draw reliable conclusions about whether medical cannabis products might be beneficial in treating Parkinson’s disease, and calls for more research. For people with Parkinson’s who choose to use such products, the statement urges caution, stressing the importance of open communication with healthcare providers, starting at low doses, and vigilantly monitoring for possibly harmful side effects. (15 page PDF file)

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#AlterativeTherapy

Mental Health Resources
Addiction, suicide prevention, relaxation and more resources

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#MentalHeath

Movement disorder specialist neurologists at Albany Med
If you have PD or think you may have PD, it is best if you seek a Neurologist-Movement Disorder Specialist
Albany Medical Center Medical Professionals:
Octavian Adam, MD, Neurologist-MDS
Jennifer Durphy, MD, Neurologist-MDS
Era Hanspal, MD, Neurologist-MDS
Eric Molho, MD, Neurologist-MDS
47 New Scotland AVE
Albany, NY 12208
(518) 262-6611

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#Local

Newly Diagnosed?
Give yourself plenty of time to process

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#About

Prepare for a Telemedicine Appointment
Read more from Parkinson's Foundation

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#About, #Telemedicine

Search blog posts for #Exercise
There may be new stuff there

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#Exercise

Speach and swallowing
Speech and voice impairments are common among those living with Parkinson’s. As many as 90% of people with Parkinson’s experience difficulties such as “hypophonia” (soft speech) or a more monotone, raspy or breathy voice

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#About, #Speech

Sweating and skin problems and PD
Basic lifestyle recommendations to aid in the management of excessive sweating

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#Non-motor

Things to do while staying home
Home projects, exercise and calming

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#Mindfulness, #Exercise

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Contact Us

We are in Albany, NY

cdparkinsons@gmail.com

518-281-3466 - Jud

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