Thurs. January 14, 2021 ZOOM @7 Diet and nutrition.
Speaker: Fran Weiss - Dietition for Hannaford, Registered Dietitian, Fran will speak about nutrition in general, but focusing on older people and Parkinson's diet needs. Do you want to make healthy decisions about what you eat? Did you know that what you can eat can help keep your immune system strong? And also that nutrition can influence blood pressure management? Join Fran Weiss, MS, RDN, CDN from Hannaford as she discusses the impact of good eating on overall health.
Thurs. Nov, 12, 2020 ZOOM @7 - Speaker: Dr. Robert S. Fox, - Eye and vision issues in PD
Dr. Robert Fox has been in practice in the Capital Region Area since 1986. Dr. Fox has completed a residency in Rehabilitative Optometry and is a Fellow of the College of Optometrists in Vision Development (FCOVD). He is board certified in Vision Therapy and Vision Development. Dr. Fox is a charter member of the Neuro-Optometric Rehabiliation Association (NORA).
Your issues may be related to the aging of the eye, but there are several issues related to vision that are unique to people with Parkinson’s. So, if you go to your general ophthalmologist, but the problem isn’t solved with new (or first) lenses, ask for a referral to a neuro-ophthalmologist. Neuro-ophthalmologists are ophthalmologists or neurologists who have received specialized training so they can diagnose and treat vision issues that are the result of neurological diseases.
Vision issues a neuro-ophthalmologist can help you with:
Eye movement issues that impact reading, depth perception, ability to focus, etc.
External eye disease
Color vision deficits
General eye diseases such as cataracts, glaucoma, macular degeneration
Patients with Parkinson disease were found to be more likely to experience vision and eye issues, such as blurry vision, dry eyes, trouble with depth perception, and problems adjusting to rapid changes in light, compared with people without the disorder, according to study findings.
Visual disorders like double vision, dry eyes, and visual field deficits are common but frequently missed in Parkinson’s disease. Here, we aim to increase awareness for these visual disorders in Parkinson patients by discussing several common problems that can be easily diagnosed using comprehensive history taking and a basic neuro-ophthalmological examination. We offer practical guidance for the patient interview and physical exam that can facilitate a timelier recognition of visual disorders. Such recognition has immediate therapeutic relevance, because Parkinson patients are strongly dependent on an adequate vision, for example to optimally benefit from visual cueing strategies.
Among the most common visual and ocular symptoms associated with PD are dry eye and ocular surface irritation, a problem that may be prevalent in as many as 60% of patients.1 This is thought to not only be related to poor production and abnormal composition of tears, but also due to decreased blink rate with resultant subnormal tear distribution.2 Parkinson’s patients have also been reported to have problems with eye movements, especially convergence insufficiency.
Thurs, Oct 8, 2020 ZOOM @7 Speaker: Dr. Eric Molho
Speaker: Dr. Eric Molho
Dr. Eric Molho is Director of one of the only comprehensive Movement Disorders and Parkinson’s Disease Centers in New York State. His practice is almost exclusively devoted to treating Parkinson’s disease, tremor, and dystonia, as well as other movement disorders. Dr. Molho has served as the principal investigator on numerous clinical trials for Parkinson’s disease, enabling him to offer the most advanced treatments and knowledge to his patients.
Gratitude for our Doctors at the MD Center at AMCH and our PD community
Next meetings will be:
Last year 10 people from the Albany area PD community travelled to Tokyo to attend the 5th WPC. We bonded, learned and saw the sights.
Save the date
Will you join us at the 6th World Parkinson Congress to be held in Barcelona, Spain from June 7– 10, 2022. More than 3,000 people from 60+ countries are expected to attend the WPC 2022. Delegates will be those who are dedicated to understanding, researching, treating, and curing Parkinson’s disease (PD), including those who are living with it.
Nancy Eson: We would like to gage interest in a care partner support group. If you are interested in knowing more, joining or leading this type of group, contact us through the website https://www.cdparkinsons.org/
Dr. Molho will take questions through chat. You will be muted to avoid distractions.
Dr. Molho has graciously agreed to be speaker at our October meeting for at least the last five years (I don’t have records before that) and has been an excellent source of PD education for us.
Dr. Molho is the director of the Parkinson's Disease and Movement Disorders Center and currently serves as a professor of neurology and the Riley Family Chair in Parkinson’s Disease.
Dr. Molho (thank you William for the fantastic notes)
William’s notes on the Capital District Parkinson’s Disease Support Group meeting, Thursday, October 9, 2020:
Turnout: At one point we were at 45 Zoom screens, representing 60-70 people. I don’t know where we’d put everyone in a face-to-face meeting ;-)
WPC 2022: Dr. Molho promoted the next World Parkinson’s Congress, to be held in Barcelona June 7-10, 2022.
COVID-19 and PD: Dr. Molho’s office gets updates 2X a week on NYS and local Coronavirus and Covid-19 numbers. The state continues to report low rates of infection and hospital admissions, but Eric reminded people to stay vigilant and not get lax on prevention and protection measures. Some parts of the state are reporting new spikes and clusters. People with PD are reported to be at higher risk, but that is likely more due to age and other risk factors than due to PD by itself. People must assess their own level of comfort with risk, and use common sense when determining how physically intimate to get with grandchildren and other loved ones.
COVID-19 and ongoing PD treatment at Albany Medical Center: Ninety percent of consultations are currently in-person at the Mov’t Disorders Center. Of course, that number could change if the pandemic environment changes in the Fall and Winter. All safety and prevention protocols are being strictly observed. Nursing homes and hospitals have normalized their visiting policies, a loosening from the lockdown of the early months of the pandemic starting in March 2020.
Effects of pandemic on ongoing PD research & clinical trials at AMC: The initial lockdown bogged down such projects, as suddenly extra precautions and risk reduction had to be rushed into place for everyone. Things have started up again, however. For comprehensive list of clinical trials, see website https://clinicaltrials.gov/ referenced in the Chat below. Here is a summary of Dr. Molho’s discussion of the major studies going on at Albany Med:
— The KARMET Study (aka the "Poop Study") on constipation and PD, being conducted with the firm Enterin Inc., looking at early involvement of the enteric nervous system in PD. This is a novel therapy, involving a compound that interacts with alpha synuclein protein. For more information or if interested in participating, contact Dr. Molho’s office.
— Motor Fluctuations Study, looking at “On/Off” states and working on treatment to level out the fluctuations. Could involve a combination of long-acting Levodopa and short-acting Levodopa. This would be an improvement on the currently-prescribed drug Rytary. The monitoring of symptoms by participants in this study is demanding, Dr. Molho said.
— Trial of a completely new drug, Cerevel, specific to the D-1 receptors. This study is just getting off the ground
— Federally-funded study to develop automated way of looking at brain MRIs to try to more accurately distinguish PD from other neurodegenerative disorders like PSP and MSA.
— A Study to Evaluate the Efficacy of Prasinezumab (RO7046015/PRX002) in Participants With Early Parkinson's Disease (PASADENA)
**N.B.: You can get a sheet from the AMC Movement Disorders Center listing and describing all the clinical trials Albany Med is involved in for PD and other neurological disorders.**
Q&A with Dr. Molho: Exercise, exercise, exercise. “There is no proven way to slow the progression of PD other than exercise.” A mixture of aerobic and resistance training. Stationary bikes, yoga etc. etc. Importance of finding an exercise activity you enjoy — otherwise you won’t do it.
Stem cell treatments: Some exciting prospects but even more unknowns and unintended outcomes
Probiotics and probiotics for constipation: Can work for some people but not for others.
— 30 —
Annotated chat below:
18:56:55 From Carissa O'Rourke : I am doing LSVT but will be going out on maternity leave next week. There is a physical therapist at Albany memorial doing it. her name is Janet and we’ve been working together
19:10:49 From Manuel Cruz and Suzanne Roberson : Can Dr. Molho speak to the benefits of exercise?
19:11:12 From Thomas Estep to Nancy and Jud(Privately) : My name is Thomas Estep, I am a representative with Amneal Pharmaceuticals in Albany. I can have speakers present at other meetings. My email is Thomas.firstname.lastname@example.org. 518-506-8930.
19:30:06 From Kristi LaMonica : Are new clinical trials listed on the AMC movement disorders webpage?
Thurs. Sept 10, 2020 ZOOM @7 - Care Management: Strategies for Successful Aging
Care Management: Strategies for Successful Aging
Hear how working with an Aging Life Care Professional (ALCP) can offer you optimal success in identifying and planning for the many potential challenges of aging. A care manager can help ensure the quality of life you choose to create and minimize the need to face crises unprepared.
Multiple studies have shown that drivers over age 60 are generally some of the safest on the road. They are more likely to avoid unsafe behaviors such as speeding, driving under the influence of alcohol, talking on cell phones, and not wearing seat belts. That said, it is important for elderly drivers, and their loved ones, to make sure they are road-ready and driving as safely as possible.
Sunnyview Rehabilitation Hospital’s Driver Rehabilitation Program offers a comprehensive array of services for elderly drivers, adolescents with learning needs, and the disabled, including clinical assessment, on-the-road evaluation, driver rehabilitation and consultation/education about adaptive driving services. For more information on the program or CarFit programs in the area, call 518-386-3601.
BMB provides support services and educational resources to foster engaged coping methods such as introspection, communication, and self-care. Martel will speak about the founding, philosophy and services provided by the organization.
May 14, 2020 – 7 PM ZOOM meeting. Speaker: Lynda Shrager - Author, occupational therapist, social worker
ZOOM meeting. Speaker: Lynda Shrager - Author, occupational therapist, social worker and a Certified Aging in Place Specialist – Topic: Simple modifications that can help seniors make their homes safer and easier to navigate etc.. You must register to attend this meeting. Join our mailing list for meeting invitations.