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Past Meetings

101

Records

Thursday, June 13, 2024 - Resources on our website and spotlight on some exercise leaders

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Thursday, June 13, 2024

Meeting: Thursday, June 13, 2024 -  7:00 - 8:30 p.m.

TOPIC: Resources on our website and spotlight on some exercise leaders

PRESENTERS: A panel of exercise leaders and website guide

WHERE:  Glen Eddy senior residence,

1 Glen Eddy Drive, Niskayuna NY 12309

Directions to Glen Eddy

Use the main entrance. Park in the upper lot along the stone wall. Meeting room is on the second floor. Elevator and stairs are off the  lobby to the left.

This meeting will be a hybrid meeting.


If you are able, please attend in person. Registration is not required.

OR to attend by Zoom:

Register in advance for this meeting by clicking []

After registering, you will receive a confirmation email containing information about joining the meeting.


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Meeting notes

Newly diagnosed?

The “where to start” section of this page

https://www.cdparkinsons.org/newly-diagnosed

  1. People don’t die from Parkinson’s. We live with it.

  2. Everyone’s PD is different.

  3. Exercise is important. You can find local exercise classes https://www.cdparkinsons.org/exercise

  4. PD is a slowly progressing disease.  If you have sudden changes to your health, check with your physician- it’s probably not from Parkinson’s.

Hike with Terry -  An easy one mile hike Equal Access Nature Trail. Albert Family Community Forest Hayes Rd. East Nassau, NY 12062

Monday June 24, 2024 at 10:30 AM

https://www.cdparkinsons.org/events-1-1/june-24%2C-2024---hike-at-the-albert-family-community-forest

DBS lunch and learn Albany Med event - June 26

https://www.cdparkinsons.org/events-1-1/jun-26%2C-2024---lunch-and-learn---deep-brain-stimulation-(dbs)

Summer CDPSG Picnic - July 20

https://www.cdparkinsons.org/events-1-1/capital-district-parkinson's-support-group---summer-picnic

=====================

What  is “Be in the local PD know with groups.io” at the bottom of the home page?

Subscribe to our local email based discussion group

Did you know -

There is an associated website for the archived mail

https://groups.io/g/cdpsg

Your email address is your password.

There is a user manual https://groups.io/helpcenter/membersmanual

You can get a daily digest instead of individual messages

https://groups.io/helpcenter/membersmanual/1/controlling-your-email-subscription-preferences/email-delivery

You can also

https://groups.io/helpcenter/membersmanual/1/controlling-the-volume-of-email-messages-you

You can use the website to see, and search through the message archive.

https://groups.io/g/cdpsg/messages

Thursday May 9, 2024

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Thursday, May 9, 2024

Meeting:Thursday, May 9, 2024 -  7:00 - 8:30 p.m.

PRESENTER: Drug Rep for Duopa

TOPIC: Duopa is a prescription drug that treats Parkinson's disease (PD) by delivering carbidopa and levodopa directly into the small intestine through a surgically implanted tube. This gel is intended to improve absorption and reduce "off" times, which are changes in movement abilities as the levodopa dose wanes. Duopa bypasses the stomach, which can empty slowly and irregularly in Parkinson's, leading to poor absorption and unpredictable relief with drugs taken by mouth. 


WHERE:  Glen Eddy senior residence,

1 Glen Eddy Drive, Niskayuna NY 12309

Directions 

Use main entrance. Park in upper lot along the stone  wall. Meeting room is on second floor. Elevator and stairs are off the  lobby to the left.

This meeting will be a hybrid meeting.

You are encouraged to attend in-person at Glen Eddy.

To attend in person, no registration required.

OR Attend by Zoom.

TO ATTEND BY ZOOM MEETING: [Register here].


Thursday, April 11, 2024 - YMCA Exercise for Parkinsons

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Thursday, April 11, 2024

Meeting:Thursday, Apr 11, 2024 -  7:00 - 8:30 p.m.


PRESENTER: Jill Cullen from the Guilderland YMCA


TOPIC: The importance of exerecise and information about the programs that the Capital  District YMCAs offer to people with movement disorders in particular. 

Did you know that you may be eligible for a free Silver Sneakers  membership to the Y? Check it out here.


WHERE:  Glen Eddy senior residence,

1 Glen Eddy Drive, Niskayuna NY 12309

Directions 

==========

Notes from our 4/11/2024 meeting

Newly diagnosed? Here are five things to do or know right now.

1. See a movement disorders specialist (Albany Med has a handful of them)

If you haven’t done so already, it’s important to see a movement disorders specialist, especially if you have nagging symptoms that remain untreated despite your current therapies.

2. Exercise

Exercise is an important part of healthy living for everyone. For people with Parkinson’s disease  exercise is more than healthy — it is a vital component to maintaining balance, mobility and activities of daily living. Exercise and physical activity can improve many PD symptoms and has been shown to delay the disease progression. These benefits are supported by research.


Find local, PD specific, exercise classes here:

https://www.cdparkinsons.org/exercise


3.  PD does not affect everyone the same way. The rate of progression and the particular symptoms differ among individuals.

4. Get the Davis Phinney Foundation “Every Victory Counts” book.

https://davisphinneyfoundation.org/every-victory-counts-manual/#evcorder

5. PD is a slowly progressive disease.
If you see health problems developing and changing quickly, see a doctor.

=========

Lifetime Achievement - Paul Tonko video 4 mins

https://youtu.be/duu_SduWjXk


Jill's slides


P4P Enrollment form

https://www.cdparkinsons.org/_files/ugd/304770_bea35098f411428c8cd4f43be733a7dc.pdf


NMW Enrollment form

https://www.cdparkinsons.org/_files/ugd/304770_c3e4521b0f3f4a41ad8a910309877f1e.pdf






Thursday March 14, 2024

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Thursday, March 14, 2024

John O'Leary website 

https://johnolearyinspires.com/


John's message to our group

https://youtu.be/UhgC0JZ6GgM?si=GrWj1t2hAY7U3viC




PRESENTER: John O'Leary - Once expected to die, John now teaches others how to live. Decades after the fire that almost took his life away, John now holds one of the greatest gifts of all: perspective. As an accomplished speaker, author and podcaster, John shares his perspective to awaken you to your life’s potential and energize you to live more thoughtfully, more boldly and more inspired.. John has pre-recorded a presentation for us. This meeting will be an opportunity for those in person and those online to discuss and respond to John's presentation in small groups.

TOPIC: In March 2016,  John O'Leary  published his first book, On Fire: The 7 Choices to Ignite a Radically Inspired Life, which became an instant #1 national bestseller. His second book, In Awe: Rediscover Your Childlike Wonder to Unleash Inspiration, Meaning and Joy, was also an instant #1 national bestseller when published in May 2020. His story has recently been turned into a full-length feature film scheduled for theatrical release in Fall 2024. Read more about John https://johnolearyinspires.com/

WHERE:  Glen Eddy senior residence,

1 Glen Eddy Drive, Niskayuna NY 12309

Directions 

Use main entrance. Park in upper lot along the stone wall. Meeting room is on second floor. Elevator and stairs are off the lobby to the left.

This meeting will be a hybrid meeting.

You are encouraged to attend in-person at Glen Eddy.

OR Attend by Zoom.

TO ATTEND BY ZOOM MEETING: [link removed]

Thursday Feb 8, 2024 - Falls Prevention and Parkinson's

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Thursday, February 8, 2024

Meeting: Thursday, February 8, 2024 -  7:00 - 8:30 p.m.


PRESENTER: Sarah Cohen, PT, DPT, Administrator, Center for Parkinson's Disease, Stony Brook Southampton Hospital


TOPIC: Falls Prevention and Parkinson's: What can you do to Stay Steady

People  living with Parkinson's disease are twice as likely as healthy older  adults to fall and demonstrate a nine-fold increase in recurrent falls.  Yet, falls are often preventable. Join us for this discussion on the why  we should care about falls, what are  the PD-specific falls risk factors, and most importantly, what you can  do to decrease your fall risk and stay steady!


WHERE:  Glen Eddy senior residence, 

1 Glen Eddy Drive, Niskayuna NY 12309

Directions 

Use main entrance. Park in upper lot along the stone wall. Meeting room is on second floor. Elevator and stairs are off the lobby to the left.


This meeting will be a hybrid meeting.

You are encouraged to attend in-person at Glen Eddy.

OR Attend by Zoom.



Thursday Jan 11, 2024 - Deep Brain Stimulation (DBS) Therapy

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Thursday, January 11, 2024

Meeting

SUBJ:  Dr. Kevin Mansfield, new neurosurgeon at Albany Medical Center, on deep brain stimulation for Parkinson’s treatment

(Regular monthly meeting of Capital District Parkinson’s Support Group)

WHEN:  Thursday, January 11, 2024, 7:00 - 8:30 p.m.

WHERE:  Glen Eddy senior residence, 1 Glen Eddy Drive, Niskayuna NY 12309

Kevin Mansfield, M.D. joined the Department of Neurosurgery at Albany Med in 2023. As a fellowship-trained functional neurosurgeon, Dr. Mansfield specializes in the surgical treatment of chronic conditions that affect a person’s functions and abilities, such as movement disorders. Dr. Mansfield will discuss deep brain stimulation (DBS), which involves placement of electrical devices that can directly change brain activity in a controlled manner. Questions and answers will be encouraged, and refreshments will be served.

Dr. Mansfield will be joined by Thomas Robb of Boston Scientific Corp., a leading DBS technology manufacturer.

Directions to Glen Eddy, 1 Glen Eddy Drive, Niskayuna:

Use main entrance. Park in upper lot along the stone wall. Meeting room is on second floor. Elevator and stairs are off the lobby to the left.


This meeting will be a hybrid meeting.

You are encouraged to attend in-person at Glen Eddy.

OR Attend by Zoom.

TO ATTEND BY ZOOM MEETING:

Saturday December 2, 2023 - Holiday Party

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Saturday, December 2, 2023

2023 Holiday Party Saturday, Dec. 2nd

at the Glen Eddy Senior Living Center

starting at noon and going through 3:00

Respond by Tuesday, November 21.

We have given the food order to the chef.

Registration is closed. 


CDPSG Monthly meeting - Thurs. Nov. 9, 7PM - Dr. Molho

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Thursday, November 9, 2023

What: Capital District Parkinson’s Support Group

When: Thursday, November 9, 2023 - 7:00 p.m.

Where

 (** NEW MEETING PLACE *** ) (Directions)

Glen Eddy Senior Living

1 Glen Eddy Drive, Niskayuna, NY 12309 


(Use main entrance. Park in upper lot along the stone wall. Meeting room is on second floor. Elevator and stairs are off the lobby to the left.)


Speaker: Dr. Eric Molho, Director of Albany Medical Center’s Movement Disorder Center

Program: What’s current, what’s hot in Parkinson’s research, treatment, technology, etc. Question-and-answer format. Light refreshments served

This meeting will be a hybrid meeting.


You are encouraged to attend in-person at Glen Eddy 

OR Attend by Zoom.


TO ATTEND BY ZOOM MEETING


Thursday October 12, 2023 - Medicare / Medicaid

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Thursday, October 12, 2023

Social Security and Medicare 101:

  • What is Social Security and who can participate?

  • What are my Medicare options?

  • How do Social Security and Medicare work together?

  • What do Medicare Parts A – D cover?

  • What should I consider in my decision about collecting Social Security early?

These questions, and more, will be covered in this presentation. Bring your questions with you!

 

Presented by:

  • Patricia Stanley, Senior Analyst Community relation specialist with Atena 

  • Sonde Wechgelaer, Licensed Sales Agent with OB 1 Insurance  agency.

Patricia is a lifelong resident of the greater Capital  Region.  She has  been in the Medicare Sales field for the last 15 years  with her most recent past position as a Health Care Advocate working in  all 3 major medical facilities in the Capital  Region.

Sonde is a lifelong resident of the greater Saratoga Springs region, where she raised her family.  She has been a  practicing RN for the last 25 years with an addition of Insurance Sales  for the past 5 years.



Here's the PDF of Medicare Booklet from the Social Secuirty Admnistration which was the basis of the slides presented. 


Thursday September 14, 2023 - Outdoor Activities for People with Parkinson's

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Thursday, September 14, 2023

Presented by Rosemary (Rose) Gallagher, PT, DPT, PhD
Associate Professor and Admissions Coordinator

Parkinson's Foundation Physical Therapy Faculty Scholar

New York Institute of Technology
Program in Physical Therapy


Rose has a passion for helping people with PD get out into  the wilderness. Whether you have done door activities in the past and have given them up, or you have found a way to stay connected with the wilderness, or you want to learn about the benifits of outdoor activities and how you can get started, this meeting is for you. 


This meeting will be a hybrid meeting.

You can Attend in-person at Albany Med OR Attend by Zoom.

Not sure which you will do? Register for both to keep your options open.


NOTE: change of presenters. The presentation on Deep Brain Stimulation will be January 11, 2024


TO ATTEND IN-PERSO/N AT ALBANY MED

Location: Huyck Auditorium at Albany Medical Center. (Directions)

TO ATTEND BY ZOOM MEETING

Register to attend online

Sunday, August 27th, 2023 - Annual Picnic

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Sunday, August 27, 2023

When: Sunday, August 27, noon to 3

Where: The Crossings Park, South Pavilion,

580 Albany Shaker Rd., Colonie, NY.

Our support group will provide assorted sandwiches, seltzer and water.

Please use the link below to sign up and to let us know what food you will bring.

We also need helpers - please sign up below if you can take on a task.

RSVP by August 21st. If you can't commit by the 21st, you are welcome to register later.

Directions:
Enter the park from Albany Shaker Rd. Follow the park road to it's end.


Tell us how many will attend


Sign up for the potluck

Thursday July 13, 7PM - Neurologic Music Therapy: Clinical Application of Music for Parkinson’s Disease

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Thursday, July 13, 2023

Presented by Kiera Druhan, MT-BC

Neurologic Music Therapist

MEDRhythms, Inc.


Neurologic Music Therapy (NMT)™ is the therapeutic application of music to cognitive, sensory, and motor dysfunctions due to neurologic disease of the human nervous system. NMT has developed standardized interventions and clinical techniques for the use of music to address non-musical goals such as mobility, speech, language, and areas of cognition. These techniques rely on the music perception and production for inducing neuroplastic changes in the brain. NMT has shown to be effective with a variety of populations including stroke, traumatic brain injury, Parkinson’s Disease, Multiple Sclerosis, and more.  This presentation will include a brief overview of the neuroscience of music as well as demonstrate several NMT treatment techniques and how you can incorporate them into everyday life.


This meeting will be a hybrid meeting.

You can

  • Attend in-person at Albany Med OR

  • Attend by Zoom.

Not sure which you will do? Register for both to keep your options open.

TO ATTEND IN-PERSON AT ALBANY MED

  • Location: Huyck Auditorium at Albany Medical Center.

  • Directions to Huyck Auditorium at AMC

Register for in-person attendance (We  will give this list of attendees to the AMC Security Desk, which will speed up your entry.)

TO ATTEND BY ZOOM MEETING

Register to attend online [link removed]


Handout shown at meeting ( one page PDF)

https://www.cdparkinsons.org/_files/ugd/304770_2a916eee509540bc991e815f6c878731.pdf


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