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About PD 
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93

Records

Updated:

9/22/26, 11:58 PM

Oh Crap! It's Parkinson's: A Rebel's Guide to Taking Back Control of Your Life

by Sara Whittingham (Author), David Lock (Illustrator) Format: Hardcover

Link to book on sale on Amazon

https://www.amazon.com/dp/1970468009?lv=shuf&channelId=500&plpRedirect=mhFallback

This book offers a refreshingly honest and optimistic approach to living with this condition, written by someone who truly understands the journey. Dr. Whittingham shares inspiring stories of people doing remarkable things despite their diagnosis—running marathons, climbing mountains, and sailing across oceans—not to diminish your experience, but to expand your sense of what's possible.

Updated:

8/31/26, 2:00 PM

Living Well as a Care Partner

The first Tuesday of every month

12 pm Mountain Daylight Time

(11 am PDT, 1 pm CDT, 2 pm EDT)


If you could use some extra support as a care partner, please join us for our monthly Care Partner Meetup. During these one-hour sessions, Connie Carpenter Phinney and Davis Phinney Foundation Ambassadors and care partners Pat Donahoo and Gail Gitin discuss the concerns, challenges, and questions that many Parkinson’s care partners have today.


Connie has been a care partner to her husband and our founder Davis Phinney since his diagnosis 20 years ago. Pat is a care partner to his wife Cidney and Gail was a long-time care partner to her husband Gene before his passing. Together they have a wealth of knowledge and experience to share, but even more so, as fellow Parkinson’s care partners, they “get” you in a way very few people do.


So, come with your questions or come just to be in the presence of others who are traveling a similar path. If you need support and are eager to find additional ways to connect with others through meaningful conversations, you’re going to love this hour each month with Connie, Pat, and Gail.

Updated:

8/31/26, 1:43 PM

Care partner Resources

Davis Phinney Foundation

https://davisphinneyfoundation.org/resources/parkinsons-care-partner-resources/


The Parkinson’s Foundation Care Partner Program is designed with care partners in mind and is recommended for anyone caring for someone living with PD, including spouses, partners, children or friends. 

The Care Partner Program: Building a Care Partnership

This Series of Online Courses for Family Care Partners are: Completely Free and available for anyone with an internet connection

Self Paced – each can be completed in 1-2 hours in a single sitting or spread out over days, weeks or months

Designed by the Care Partner Program Committee, made up of current and former Parkinson’s Care Partners

Read more at https://www.parkinson.org/Summit


APDA REaources for care partners

https://www.apdaparkinson.org/resources-support/for-caregivers/

Updated:

8/28/26, 7:40 PM

*Albany County Department for Aging

Older residents who are home-bound and in need of day-to-day assistance, including home delivered meals, should contact Albany County- NY Connects at (518) 447-7177

Emma Teague, Commissioner

420 Washington Avenue, Albany, NY 12203

Phone: 518-447-7198.

Updated:

8/28/26, 7:33 PM

*Local Organizations and how they help People with Parkinson's

Parkinson’s Support Resources – Greater Capital Region


Medical Care & Research

Albany Medical Center – Parkinson’s Disease & Movement Disorders Center
albanymed.org/specialty/parkinsons-disease

Specialists in diagnosing and treating Parkinson’s disease and related disorders, including Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), and drug-induced parkinsonism.


Wellness & Community

Parkinson’s Center YMCA
98 Wolf Road, Colonie, NY

A dedicated wellness and education hub offering:

  • Exercise classes: yoga, boxing, Dance Beyond PD, and more

  • Educational events and support groups

  • Community-building for individuals with Parkinson’s and their care partners

 Support Groups

Capital District Parkinson’s Support Group (CDPSG)
cdparkinsons.org

Meets monthly at 7 PM on the second Thursday
Parkinson’s Center YMCA & via Zoom
Care partner meeting info available online
CDPSG is not a fundraising group, but donations help cover expenses and keep social events accessible.


Saratoga Parkinson’s Support Group
Saratoga Senior Center, 290 West Avenue, Saratoga Springs, NY
Contact:


Nonprofit Organizations

Help for PD
helpforpd.org
Provides tools, tips, and resources for daily living with Parkinson’s.
Promotes active community involvement and funds data-driven initiatives to improve access to quality-of-life programs.


Stand Up To Parkinson’s
standuptoparkinsons.org
A 501(c)(3) nonprofit committed to finding a cure and supporting local Parkinson’s patients. Since 2019, raised over $580,000 for:

  • Albany Medical Center research

  • Help for Parkinson’s programs

  • Parkinson’s Center YMCA

Updated:

7/28/26, 7:48 PM

Every Victory Counts manual by Davis Phinney Foundation

A "Must Have" book  

https://davisphinneyfoundation.org/blog/davis-phinney-every-victory-counts/

  • Information on the spectrum of Parkinson’s symptoms ranging from diagnosis through advanced stages

  • Ways to manage your health and symptoms, including tips for exercise, diet and nutrition, emotional health, and other therapies

  • Stories from over 50 Parkinson’s patients who share their personal insights and experiences

  • Worksheets for tracking and managing your symptoms and disease progression

Updated:

7/28/26, 7:48 PM

If I Can Climb Mt. Kilimanjaro, Why Can’t I Brush My Teeth? Courage, Tenacity and Love Meet Parkinson’s Disease’ by Nan Little

If I Can Climb Mt. Kilimanjaro, Why Can’t I Brush My Teeth? Courage, Tenacity and Love Meet Parkinson’s Disease’ by Nan Little

In this honest and emotional memoir, cycling enthusiast Nan Little shares how the sport helped her become physically and mentally stronger after her Parkinson’s diagnosis – in the hope that others will take inspiration from her experience.

“Having Parkinson’s is not easy,” says Nan. “We never know what the next day, or hour, might bring. My book shares my efforts to regain some control of my life through exercise. Even though my fingers couldn’t hold a toothbrush, at age 65 I climbed Mt. Kilimanjaro with a group of people with MS and Parkinson’s. It wasn’t easy but it was worth it.

“Parkinson’s is not our fault, it’s an unsolicited chal

Updated:

7/27/26, 5:52 PM

Expert Briefing: Mental Health and PD

Expert Briefing: Mental Health and PD

 [ watch the video ] 


Fact Sheets

Depression and PD: A Non-Drug Treatment Option

 Download [ fact sheet ] 


Podcast

Episode 84: Managing Anxiety with PD

[ Listen to Podcast ]


Call Parkinson's Foundation Helpline: 1-800-4PD-INFO (473-4636)


Dr. Gilbert Hosts: Treating the Mental Health Challenges of Parkinson’s Disease

https://www.apdaparkinson.org/videos/dr-gilbert-hosts-treating-the-mental-health-challenges-of-parkinsons-disease/

Updated:

7/10/26, 4:27 PM

Slides from meeting July 2026.

See Slides from Donna Stressel Tice OTR, CDI, CDRS • Sunnyview Rehabilitation Hospital






Updated:

7/10/26, 4:27 PM

Transportation Directory for older adults in Albany and surrounding counties -.Albany Guardian Society

The Albany Guardian Society (AGS), in partnership with the Capital Region Transportation Council, publishes the definitive Transportation Directory for older adults in Albany and surrounding counties. The directory details senior transit vans, medical transport, volunteer programs, and technology-based solutions like GoGoGrandparent.

Join the Capital District Parkinson's Support Group's mailing list

Contact Us

We are in Albany, NY

cdparkinsons@gmail.com

518-281-3466 - Jud

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