November 11, 2021
November 12, 2021
Thursday, November 11, 7 PM
Speaker: We will not have a speaker in order to allow each of us to speak and listen to each other.
This will be a hybrid meeting. Attend in-person at Albany Med or attend by Zoom.
TO ATTEND IN-PERSON
Location: Huyck Auditorium at Albany Medical Center. Masks must be worn inside AMC.
Directions:
Park at the Physician's Pavilion lot on the west side of the hospital.
Enter the building at the revolving door entrance to the "A" building.
Follow the main corridor about halfway and turn left at the ceiling sign pointing to the Huyck Auditorium.
Albany Med building map
TO ATTEND BY ZOOM MEETING
After registering, you will receive a confirmation email containing information about joining the meeting.
Part I
For 15 minutes, you will be paired with another individual or couple. Zoomers will be put in a randomly assigned break-out room, two screens (2-4 people) per room.
Please use the time for each of you to share:
1. A brief description of your PD journey, and a bit about yourself.
2. One PD related issue you are struggling with right now,
3. One PD related issue you have dealt with successfully in the past.
PART II
For the next 15 minutes, repeat new groupings, same questions as Part I. Zoomers will be put in a different randomly assigned break-out room, two screens per room.
Common Parkinson’s Misconceptions
https://parkinsonfoundation.org/blog/common-parkinsons-misconceptions
Part III
Share with the whole group items that were helpful for you.
15 mins of feedback to the whole group.
===== Chat and notes from meeting
From Leah and Kevin Purcell to Everyone:
I think we all know how attitude can affect symptoms. Alfred shared a breathing technique to help with restless leg in the night.
--- Jud --- I will try to follow up with Alfred to see how he does it.
From Ian Wing to Everyone:
Thanks Leah Many of us have restless legs so would be good to share
From Ian Wing to Everyone:
Hope to see everyone at the holiday party - good food and lots of fun. The venue is large and so we will be able to socially distance as you prefer. Please RSVP as soon as possible so we can plan as accurately as possible
From Bill Wiles
ok, we'll check the website to see the rest of the 7 misconceptions. Thank you, Jud.
-- Jud -- We talked about 2 or three of these Common Parkinson’s Misconceptions
https://parkinsonfoundation.org/blog/common-parkinsons-misconceptions
From Ben & Sharon Wiles to Everyone:
yes, we got the link to the community resources from you today in an email. It looks very comprehensive!
-- Jud --- This searchable listing put together by Alzheimer’s Association and AARP, will help you get easy access to resources, community programs and services.
Start your search here https://www.communityresourcefinder.org/
From Ben & Sharon Wiles to Everyone:
I'm curious. How many people are live and in person tonight (not zooming)?
-- Jud --- 27 screenns (some with two peoplw watching) registered to attend by zoom. I think most actually attended, although some had technical difficulties.
I didn't actually count, but I am guessing aboout 25 in attendance at AMC