StoryCorps: Anissa Mitchell and Joan Lincoln discuss their personal experience as caregivers

Listen here https://archive.storycorps.org/interviews/anissa-mitchell-and-joan-lincoln


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SUBJECT LOG / TIME CODE

01:02

AM asks JL about how they first met. They met at a support group for people with Parkinson's in Florida. JL says that the support group gave them a chance to meet people with similar experiences.

02:35

JL shares that her husband was diagnosed in 1992 when he was with his previous wife. His wife died suddenly and JL helped him through the grief process as friends, but they eventually started a relationship and got married in 2004.

04:57

AM asks JL about her experience marrying her husband, Steve, when she knew he was diagnosed before their relationship.

06:58

AM asks about Steve's symptoms that range from motor skills to delusions. JL shares that he experienced both loss of motor skills and hallucinations. AM asks JL how she coped with her husband's symptoms. JL shares that it was difficult because they moved away from their initial support group.

16:22

JL shares advice for other spouses who will have to transition to the role of a caregiver. She shares small moments that help her through this transition. AM also discusses the emotional factor of being a caregiver to a loved one.

24:18

AM asks JL about protracted grief and how her experience being widowed twice. JL shares her grieving process and when she knew that she needed to seek additional help for Steve.

32:13

AM shares about her experience as a caregiver for her mother. She speaks about protracted grief and the difficulty of seeing her mother become helpless due to her Parkinson's symptoms.

34:20

AM and JL discuss navigating guilt as caregivers. They discuss finding outside care and visiting their loved ones.

40:44

AM shares the importance of compartmentalizing when it comes to being a caregiver. AM says that at the points her mother really needed her support, she did not want her daughter the social worker, she just wanted her daughter.

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