There is a rich selection of books offering diverse perspectives on Parkinson’s Disease, ranging from personal memoirs and poetry by people living with PD to practical guides for patients, caregivers, and healthcare professionals. These books provide education, inspiration, coping strategies, and raise awareness about the condition. Notable works include memoirs by Michael J. Fox and Alberto J. Espay, poetry collections, and guides addressing both the emotional and physical aspects of living with PD

kinson’s. It wasn’t easy but it was worth it.

“Parkinson’s is not our fault, it’s an unsolicited chal

A "Must Have" book  

https://davisphinneyfoundation.org/blog/davis-phinney-every-victory-counts/

• Information on the spectrum of Parkinson’s symptoms ranging from diagnosis through advanced stages

• Ways to manage your health and symptoms, including tips for exercise, diet and nutrition, emotional health, and other therapies

• Stories from over 50 Parkinson’s patients who share their personal insights and experiences

• Worksheets for tracking and managing your symptoms and disease progression

If I Can Climb Mt. Kilimanjaro, Why Can’t I Brush My Teeth? Courage, Tenacity and Love Meet Parkinson’s Disease’ by Nan Little

In this honest and emotional memoir, cycling enthusiast Nan Little shares how the sport helped her become physically and mentally stronger after her Parkinson’s diagnosis – in the hope that others will take inspiration from her experience.

“Having Parkinson’s is not easy,” says Nan. “We never know what the next day, or hour, might bring. My book shares my efforts to regain some control of my life through exercise. Even though my fingers couldn’t hold a toothbrush, at age 65 I climbed Mt. Kilimanjaro with a group of people with MS and Parkinson’s. It wasn’t easy but it was worth it.

“Parkinson’s is not our fault, it’s an unsolicited chal

My Degeneration: A Journey Through Parkinson’s’ by Peter Dunlap-Shohl

This humorous graphic novel by former US news cartoonist Peter Dunlap-Shohl guides readers through Peter’s experience of Parkinson’s – from his battle with depression to the impact of the condition on his relationships.

“I resisted the idea of writing a book about Parkinson’s for years,” says Peter. “As novel as the comic format might be in the area of Parkinson’s literature, I didn’t want to merely echo what was already out there in a different form. Then a friend said to me, ‘But you treat your Parkinson’s as an adventure.’ That unlocked the gate for me to write ‘My Degeneration’.

“I hope that readers find inspiration and credible hope in this story, as well as a guide to what their experience of Parkinson’s might look like.”

Shaky Hands – A Kid’s Guide to Parkinson’s Disease’ by Dr Soania Mathur

This book by Canadian writer Dr Soania Mathur is aimed at helping children better understand Parkinson’s – from explaining what it is to offering guidance on how they can help loved ones with the condition.

“The challenges of Parkinson’s extend beyond those diagnosed, to the whole family, including children,” says Soania. “This book is written with contributions from my three daughters, who were all born following my diagnosis of Parkinson’s at the age of 27. Since we fear what we don’t understand, my book serves to enlighten children about all aspects of Parkinson’s and empower them to make a difference.

“Talking about the condition, addressing their concerns and encouraging them to take action – be it going for a walk with their loved one or being patient if activities take longer than expected – can make diagnosis less scary for children.”