Care Partners

You will find some local care partner support groups here [ https://www.cdparkinsons.org/nearby-groups ]

Parkinson’s disease (PD) is a chronic, progressive neurological condition that gradually impacts movement, cognition, and non-motor functions. Caregiving for someone with PD often starts gently—helping with tasks the person may have difficulty with early on—but as the disease advances, caregiving demands escalate. Caregiving encompasses:

• Physical assistance (help with mobility, daily activities, medication management)

• Emotional support (navigating fluctuating moods, depression, anxiety)

• Practical tasks (appointment scheduling, financial and legal planning)

Roles and Evolution of the Care Partner

The Parkinson’s Foundation outlines caregiving as extending beyond obvious physical tasks—often including emotional and spiritual care, advocacy, and coordination with healthcare teams. Early on, caregivers may not identify fully as “caregivers” because the person with PD can still function independently; however, this role becomes more defined as symptoms progress.

Caregiving often evolves through stages:

• Early stages: learning about PD, adapting to diagnosis, managing mild symptoms

• Middle stages: increasing assistance with mobility, communication, daily living tasks

• Advanced stages: tending to complex medical needs, possible decisions around residential or hospice care

Challenges and Burdens of Caregiving

Caregivers frequently encounter:

• Emotional stress and burnout: The ongoing demands can lead to fatigue, anxiety, and depression. Sometimes, caregivers experience “compassion fatigue,” a depletion of emotional resources due to constant empathy and caregiving demands.[2]

• Physical strain: Assisting with mobility and personal care can be taxing physically.

• Social isolation and lost opportunities: Caregivers may reduce social activities and feel isolated.

• Financial strain: Time off work, medical expenses, and other costs add burden.

Importance of Self-Care for Caregivers

Supporting the caregiver is as important as supporting the person with PD. Self-care practices might include:

• Accessing peer support groups and educational resources

• Taking breaks and respite care to prevent burnout

• Practicing stress reduction techniques

• Seeking counseling or mental health support as needed

Available Resources and Support

Organizations such as the Parkinson’s Foundation provide extensive resources for care partners, such as:

• Helplines and educational programs

• Local support groups and online communities

• Guides on how to prepare for medical appointments

• Tips for caregiving in different PD stages and practical safety measures

Health Disclaimer

Please remember that while caregiving guidance can help, every person’s Parkinson’s journey is unique. It is essential for care partners to work with healthcare providers for personalized advice. Also, caregivers facing significant stress or burnout should seek professional support.