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April 19, 2017: Community Dance PD Program

A Free Movement Class
for persons with Parkinson’s
and their families, friends and care partners

Wednesday, April 19 1:00 to 2:30 pm
The Rudy A. Ciccotti Family Recreation Center at The Crossings in Colonie
30 Aviation Road Albany, NY 12205

Class is offered free of charge and is led by founding teacher John Heginbotham and teaching artists from Dance Heginbotham.

For more information and to RSVP for the class, contact the UAAlbany {erforming Arts Center at (518) 442-3995 or PAC@albany.edu

About Dance for PD® – The award-winning Dance for PD® program, celebrating its 15th anniversary, invites people with Parkinson’s and their families in more than 120 communities and 16 countries to experience the joys and benefits of dance while creatively addressing symptom-specific concerns related to balance, cognition, motor skill, depression and physical confidence. This popular class, originally developed by the Mark Morris Dance Group, is appropriate for anyone with PD, no matter how advanced. No dance experience is required. In chairs, at a barre or moving across the floor, you will explore various styles of movement in a safe, non-pressured, social environment in which live music energizes, enriches and empowers. Please visit www.danceforpd.org for more information.

“The music and movement started, I was filled with great joy. I was able to take the whole class and walked out feeling accomplished. I saw the endless possibilities for those with Parkinson’s and for myself.”—Dance for PD® student

This workshop is offered in conjunction to Dance Heginbotham’s residency at the UAlbany Performing Arts Center from April 17-20, 2017. The company will culminate the residency with a performance on Thursday, April 20 at 7:30pm. For performance info & tickets, contact the UAlbany Performing Art Center’s box office at (518) 442-3997.

Get printable flyer here


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See videos of Parkinson’s dance classes

Video of classes conducted at Canada National Ballet School


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Parkinson’s Patients Could Dance Their Way to Better Health

A recent article in the Harvard Gazette suggests dance as a potential treatment for neurodegenerative disorders such as Parkinson’s disease (PD).

Imaging studies have identified several brain regions involved in the complex, rhythmical, and coordinated movements that constitute dance. The motor cortex is — as with other kinds of voluntary movement — involved in planning, controlling, and executing dance moves.

Read more


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Making exercise fun through drumming

For senior citizens, a good way to get some exercise is through group fitness classe






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Goodbye Pakinsons Hello Life – video

Category : Videos

1 1/2 HR interview with the authors of Goodbye Pakinsons Hello Life


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Hope Soars Walk and Run Sunday, April 23

Category : Community Calendar , Events


 

Online registration is available at www.hopesoars.org OR you may submit the registration form (below) and check payable to Hope Soars.

Mail form(s) and payment to us at 1410 Maple Hill Road, Castleton, NY 12033. More information at www.hope soars.org or call 518.428.0056

2017 Walker Donor Form

registration 2017 5K Form


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Online video gallery

Category : Health and Wellness

Partners in Parkinson’s has opened a video gallery online to help educate people about the disease and to support services to Parkinson’s patients worldwide. The group is also planning to host information events in two U.S. cities this year.

The gallery’s aim is to bring essential information to patients that can help improve their care at every stage of Parkinson’s. The events carry a more personal touch.

“I feel more comfortable . . . more knowledgeable, more connected and more hopeful,” said a  participant at a New York event in 2016. “Thank you for a powerful day.”

This year, the live events that bring information, educational tools and resources to patients will be in Grand Rapids, Michigan, and Orlando, Florida, according to a press release.

Online video gallery

The online gallery at the Partners in Parkinson’s website can be accessed at any time.

Its videos include stories by Parkinson’s patients and caregivers, and talks with healthcare professionals and researchers working on the disease.

 


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Art Therapy and Parkinson’s Disease

Find Pleasure: Art making should be enjoyable. There is no such thing as a “wrong” mark. Every expression is valid.

Experience Control: Art making is an activity in which the artist can experience choice (through color, medium, line, etc.) and control over one’s environment.

Value Individuality: Free creation can encourage spontaneity which can, in turn, improve confidence.

Express Oneself: An experience of slowed speech or flat affect can limit one’s ability to communicate. Art is another language for communication which can be done at the artist’s own pace.

Relax: Art making has been proven to lower blood pressure, reduce perseverative thoughts, and lift depression. 

Improve Flow in Mind/Body Connection: In a relaxed state when focus is on the artistic expression rather than on the physical movement itself, motion can become more fluid. 

Promote Concentration, Memory, Executive Functions, Improve Hand-eye Coordination: Art making increases bilateral activity in the brain. When drawing, one uses both the right and left hemispheres of the brain. This is a wonderful way to take greater advantage of mental resources.

Read more


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Hope Soars Run for Parkinson’s – April 23, 2017 @ 9:00 am

Category : Events

Hope Soars Run for Parkinson’s

 April 23, 2017 @ 9:00 am

WHERE:
Corning Preserve, Waterfront, Albany
If you are registering on line, you will be asked to sign a waiver form the day of the race when you pick up your t-shirt. Be sure to register before April 9, 2017 to guarantee your T-shirt!!!

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On-line webinar – Transforming Aging Summit – March 7-9, 2017

The Transforming Aging Summit, featuring leaders whose wisdom and work support an empowering vision for aging in today’s world.

This powerful 3-day event is taking place March 7-9 – online and on the phone.

Discover a new multidimensional view of aging — one of vast potential, infused with vitality, passion and purpose, as well as continual growth and service to the world.

“In some cultures, elders are honored as sages whose counsel is sought for their wide and wise vision of the world. Unfortunately, this model is not so common.”  Shift Network

And you’ll be in good hands with host Ron Pevny, MA, founder and director of the Center for Conscious Eldering, organizer of the Conscious Aging Alliance, and author of Conscious Living, Conscious Aging. He’s also a Certified Sage-ing Leader with Sage-ing® International and is active in the Life Planning Network.

During this life-changing event, you’ll also have the opportunity to connect with a global community, providing you with extra support on your path to living a more meaningful, joyful and purpose-filled life as you age consciously.

To join via Webcast: Visit The Transforming Aging Program Page to access the program sessions live and for 48 hours following their broadcast.
The Transforming Aging sessions are free for 48 hours following their broadcast.

Summit Sessions

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March 9, 2017 Beverwyck meeting agenda

Category : Past Meetings

Our next meeting is Thursday March 9, 2017

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

Directions to our meeting


Speaker

Dr. Vishad Sukul will present on DBS and his frameless approach.

Dr. Sukul has joined the Department of Neurosurgery at Albany Medical Center, and has been appointed assistant professor of neurosurgery at Albany Medical College. Dr. Sukul is fellowship trained in functional neurosurgery for the treatment of complex neurological conditions such as chronic pain and movement disorders. He has an interest in deep brain stimulation for the treatment of essential tremor, dystonia, and Parkinson’s disease, and performs spinal cord stimulation and other neuromodulation techniques for chronic pain.

Read more about Dr. Sukul


Notes and future events

Support Group Officer changes:

Bruce Plotsky/Barbara Traynor/Tom Stephany are stepping back from their roles of Co-President and Vice President.

Jud Eson and Ian Wing have volunteered to fill these positions. It is with great gratitude from the outgoing officers towards Jud and Ian for taking on this responsibility.

– Hope Soars walk/run April 23 9:00 AM at the Corning Preserve

http://www.hopesoars.org/2017-5k.html

– We have a website http://www.cdparkinsons.org

– Speaker for next month (April 13, 2017) –

Lynda Shrager – safely access and navigate homes – age in place – adaptive equipment.

Lynda is an expert OT and can talk about helpful equipment, home safety, home modifications and more.

Read more about Lynda Shrager

Take the survey – what topics are of interest to you.

 

 

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

 


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Exercise Classes

Exercise Classes

P4P-Pedaling for Parkinson’s –Saratoga YMCA no charge – Monday & Friday – phone (518) 583-9622

P4P-Duanesburg/Delanson YMCA – Monday’s and Thursday’s (518) 895-9500 member’s free, non-members $6.00.

P4P-Southern Saratoga (Clifton Park YMCA) – Monday, Wednesday, Friday- members free, non-members $5.00 – phone (518) 371-2139

P4P-Glenville YMCA –  Monday, Tuesday, Thursday– Members free, non-members $5.00—phone (518) 399-8118

P4P-Troy YMCA – Monday, Wednesday, Friday – Members free, non-members $5.00– (518) 272-5900

P4P-Guilderland YMCA – Monday, Wednesday, Friday – Member’s Free, non-members $5.00-Contact Chris Wilson – (518) 456-3634 ext 1140 for more information

P4P- Bethlehem YMCA – Monday, Wednesday, Friday, Parkinson’s Wellness Class Thursdays 12 N -1:45 Cost $45 for 7 weeks –– Phone (518) 439-4394 Contact the Y for more information

** PWR – Parkinson’s Wellness Recovery Class Thursdays 10:30 – 11:45 Cost $45 for 7 weeks – Clifton Park YMCA – 1 Wall Street, Clifton Park, NY 12065 – Phone (518) 371-2139 Contact the Y for more information

***Schott’s Boxing, 21 Vatrano Road, Albany, NY 12205 (518) 641-9064- Friday’s 10:00 AM –The cost is $10.00 for the initial visit which covers the cost of the hand wraps. Hope Soars is partnering with Schott’s and will pay most of the membership fee which will be determined based on class size. If you have any questions, please contact Mark Burek (518) 428-0056.

 

Rock Steady Boxing CNY, 209 Oswego Street #12, Liverpool, NY. Classes are Tuesday, Thursday and Saturday.   Contact Jeannette Riley (315) 622-2332 for assessment appointment and more information. Check Website CNY.rsbaffiliate.com for class information.

 

Rock Steady Boxing (RSB) at the Centers at St. Camilus, 813 Fay Road, Syracuse, NY 13219, Classes are Tuesdays and Thursdays from 11:45 – 1:15. Call for information, (315) 488-2112

 

Thursdays Dance Class– Dance Theater of Syracuse, 117 Harvard Place, Syracuse, NY (504) 570-0752 1:45 – 3:00 PM

Tuesday Yoga Class- Heartspace Yoga and Healing Arts, 747 Madison Avenue, Albany, 12208, Donation is requested. Class is for Parkinson’s Patients and their family/caregivers, for information call Instructor Tamara Cookingham (518) 495-3239 tamaracookingham@gmail.com

Thursday Yoga Class- Honest Weight Coop, 100 Watervliet Avenue, Albany, NY, Free for Parkinson’s Patients and their family/caregivers, for information call Instructor Tamara Cookingham (518) 495-3239  tamaracookingham@gmail.com   

Dance for PD from home – http://capture.nbs-enb.ca/27/page/Home.aspx  

Yoga classes online every Wednesday live or view archived. http://nwpf.yourbrandlive.com/yoga   

 

FOUNDATIONS

Parkinson’s Wellness Fund – http://parkinsonswellnessfund.org/families/general/application/

 

U-Tube Instruction Video’s

LSVT Big – https://youtu.be/fpTqcWs2NUY


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Demonstration Parkinson’s dance class coming to Albany

Stay tuned for date, time and location.

Read more


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Saratoga County meeting on Monday, March 20th, 2017

Category : Events

SARATOGA PARKINSON’S SUPPORT GROUP

Date: Monday, March 20th, 2017

Time: 2:00 PM

Location: Woodlawn Commons Building,
Saratoga Room 2nd Floor
At Wesley Health Care Center
156 Lawrence Street
Saratoga Springs, NY 12866

This month our Speaker will be Steve Hovey from the Davis Phinney Foundation. Steve was diagnosed with Parkinson’s in 2007 at the age of 50. At the time of diagnosis, Steve did not know anyone with Parkinson’s, so he and his wife Nancy took it upon themselves to learn as much as they could about Parkinson’s symptoms and treatment. Their search soon led them to the Davis Phinney Foundation, where they learned about the importance of exercise and a healthy lifestyle, something Steve credits as significantly impacting the quality of life he continues to enjoy.

Now semi-retired, Steve continues to work part-time as a business consultant and is looking forward to sharing the message that “there are things we can do to manage our disease” as an ambassador for the Davis Phinney Foundation. “When I was diagnosed, the focus of the treatment was on medicine. The doctors never mentioned the benefits of dealing with the disease on a more holistic level – exercise, good nutrition and a healthy lifestyle,” Steve says. “Though [things are] getting better, there are still too many people who need to hear this message.”

.

All persons with Parkinson’s, their families, friends and caregivers are welcome to attend.  

The meeting is held at Wesley Woodlawn Commons, 156 Lawrence Street, Saratoga, NY 12866.

 

Saratoga support group information


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Prepare for Your Hospital Stay Worksheet

Prepare for Your Hospital Stay Worksheet — Information regarding medications, symptoms and advanced directives in preparation for your hospital stay. Also included is a list of what to inform, ask and know during your hospitalization.

View/Download the worksheet here

 


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The Ashkenazi Jewish Genetic Connection To Parkinson’s Disease

By The Michael J. Fox Foundation for Parkinson’s ResearchDo you know anyone who has Parkinson’s disease (PD)? It’s likely – the neurodegenerative disease affects one in 100 people over the age of 60, and more than 5 million people worldwide. Today, medicines exist to alleviate motor symptoms of the disease, but currently there are no treatments that can slow or stop its progression.

Researchers believe Parkinson’s results from a combination of both genetic and environmental factors, and, in recent years, scientists have discovered a number of genetic mutations associated with Parkinson’s. In about one percent of PD cases, the disease can be linked to a mutation in a gene called LRRK2.

While that may sound like a small number, the percentage is much higher in certain populations. In the Ashkenazi Jewish population, the mutation is responsible for 15 to 20 percent of PD cases. It is important to note that not everyone with a LRRK2 mutation will go on to develop Parkinson’s. But researchers believe that learning more about the genetics of Parkinson’s by studying those with and without the disease can help drive progress toward new treatments for everyone with PD.

A global study called the Parkinson’s Progression Markers Initiative (PPMI) launched efforts earlier this year to learn more about the genetics of PD. Families that carry a LRRK2 mutation have a vital role to play in this study, and there’s an easy way to be involved. The study is seeking volunteers to complete a brief survey to determine if they may be eligible to receive genetic counseling and testing of the LRRK2 gene at no cost. 

Take the survey to see if you qualify 

https://www.michaeljfox.org/page.html?ppmi-genetics


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Mary Piel occupational therapist LSVT BIG

Category : Speaker Leads

Hi,
My name is Mary Piel. I am an occupational therapist at Sunnyview Rehabilitation Hospital. I am certified in LSVT BIG which is a nationally recognized treatment for patient’s with Parkinson’s. We have several therapist at Sunnyview that are certified in LSVT BIG and we have also begun a Wellness Program for patient’s with Parkinsons. I would love to come to your support group to let you know what we offer. .


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Gene mutation and Parkinson’s

By and large, Parkinson’s has not been considered to be a genetic disease. The majority of cases are called idiopathic, which simply means that we don’t know what caused the disease. In fact, only about 10 percent of PD cases have been linked to a genetic cause. Mutations in the LRRK2 gene are the most common cause of PD in this relatively small group, representing one to two percent of total Parkinson’s cases.

However, for people of certain ethnic backgrounds — Ashkenazi Jewish, North African Arab Berbers and Basque — mutations in LRRK2 account for a much greater number of PD cases than in the general population. While estimates vary, it is believed that changes in LRRK2 (predominantly the mutation scientists know as G2019S) account for 15 to 20 percent of cases in Ashkenazi Jews and about 40 percent of cases in North African Arab Berbers. Other genetic changes in LRRK2 that increase the risk of Parkinson’s disease have been found in additional populations, such as in Asians of Chinese descent. It remains an active area of research to find all the genetic changes in LRRK2 that may lead to Parkinson’s disease.

https://www.michaeljfox.org/mobile/topic.php?lrrk2

 

do you want to participate in a sty study?

click here https://www.michaeljfox.org/page.html?ppmi-genetics


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Generic Azilect available 

I just had my azilect prescription refilled. 

I was able to get the get the  generic (rasagiline mesylate) for the first time. Co-pay of $10 instead of $40. 
(


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Is It Parkinson’s Disease? Blood Test Might Tell

Measuring a particular blood protein might help doctors easily distinguish Parkinson’s disease from some similar disorders, a new study suggests.
The potential blood test is “not ready for prime time,” Parkinson’s disease experts said. But, it marks progress in the quest for an objective way to diagnose Parkinson’s and similar conditions known as atypical parkinsonian disorders, they noted.
Read more


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Long-term outlook

Life expectancy for people with Parkinson’s who receive proper treatment is often about the same as for the general population. Early detection is the key to reducing complications that can shorten your life. If you suspect that you or a loved one may have Parkinson’s disease, see your doctor right away.


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7 Ways to Move More During the Day with Parkinson’s Disease

Category : Exercise

According to a new study from The University of Michigan, increasing everyday physical activity, or puttering, may be enough to help improve Parkinson’s motor symptoms. Puttering may even make a bigger impact than vigorous exercise.

Read more


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YOPD 2017 meeting dates

YOUNG ONSET PARKINSON’S DISEASE
(YOPD) SUPPORT GROUP
MEETING INFORMATION

➢ The YOPD will be meeting every January through April on the third Saturday of the month.
Time: 2:00 PM
Location: Good Shepherd Lutheran Church, 510 Albany Shaker Road, Loudonville 12205

For 2017 the meeting dates are:

• Saturday, January 21
• Saturday, February 18
• Saturday, March 18
• Saturday, April 15

➢ Starting in May and every other month meetings will be the fourth Monday.
Time: 7:00 PM
Location: Route 7 Diner, 1090 Troy Schenectady Road (across from Keeler Motors), Latham

Diner dates are:

• Monday, May 22
• Monday, July 24
• Monday, September 25
• Monday, November 27

➢ Meetings for June, August, October, and December will be the third Saturday of the month.
Time: 2:00 PM
Location: Good Shepherd Lutheran Church

Dates are:

• Saturday, June 17
• Saturday, August 19
• Saturday, October 21
• Saturday, December 16

(1/17)


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YOPD February 18, 2017 speaker

YOUNG ONSET PARKINSON’S DISEASE (YOPD)

SUPPORT GROUP

DATE:​​SATURDAY, FEBRUARY 18, 2017
​​2:00 PM – 4:00 PM
LOCATION:​GOOD SHEPHERD LUTHERAN CHURCH, 510 ALBANY-SHAKER ROAD,
LOUDONVILLE, NEW YORK

​Join the YOPD Support Group Saturday, February 18, 2017, for the monthly meeting.

Program: Mary Piel, Occupational Therapist, is the guest speaker.
​​​
There is networking and no admission charge. Patients and caregivers are welcome to attend to learn more about Parkinson’s disease.

For further information regarding the YOPD, contact:

518-371-0448, after 3:00 p.m.
​​
Next Meeting: March 18, 2017, Good Shepherd Lutheran Church


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March 29 2017: Deep Brain Stimulation Lunch and Learn – Tango Workshop

Please call 518-262-0739 to reserve your spot!

BASIC TANGO WORKSHOP

And you’re invited March 29th at 12 Noon!

Presented by: Kevin Magee Albany Tango Society and Meghan Wilock PA

Where: The Desmond, 660 Albany Shaker Rd Albany, NY 12211

When: 3/29/17 at 12PM-2:00PM

Kevin Magee is the organizer and founder of the Albany Tango Society, presenting tango events in Albany since 2007. Through Albany Tango Society Kevin teaches four levels of tango instruction, beginners to advanced, and presents free weekly classes to the community. As an organizer and presenter, Kevin has hosted over four hundred guest artist visits to the Capital Region, drawing from the top echelon of tango dancers world-wide. Kevin is an instructor at Emma Willard School (Troy, NY) teaching ballet, modern dance and jazz dance. He also teaches tango through the Student Union at Rensselaer Polytechnic Institute (Troy, NY) and at SUNY, Albany.

We welcome all to the support group, those with DBS (Deep Brain Stimulation), considering DBS, Parkinson’s disease, Dystonia, or Essential Tremor. We also encourage family and friends to join as well.

See you there


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Exercise Can Be a Boon to People With Parkinson’s Disease – NY Times

“The earlier people begin exercising after a Parkinson’s diagnosis, and the higher the intensity of exercise they achieve, the better they are,” Marilyn Moffat, a physical therapist on the faculty of New York University, said. “Many different activities have been shown to be beneficial, including cycling, boxing, dancing and walking forward and backward on a treadmill. If someone doesn’t like one activity, there are others that can have equally good results.”

Read more


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Parkinson’s patients could be cured of tremors using new ultrasound machine

Parkinson’s patients and others suffering debilitating tremors could be cured of their shaking using a new ultrasound machine which targets their brain cellsDoctors at Imperial College Healthcare NHS Trust have treated the first patients using the new technique which avoids the need for invasive brain surgery.
Read more 


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Rock Steady boxing in central NY

Category : Events , Exercise

ROCK STEADY BOXING CNY
A fitness program for persons with Parkinson’s Disease.

FIGHTING BACK AGAINST PARKINSON’S DISEASE

OPEN HOUSE

Saturday January 28th

10 am-1 pm

209 Oswego St #12

(Ponderosa Plaza)

Liverpool

(315) 622-2332


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The benefits of controlled breathing 

Category : Health and Wellness

Take a deep breath, expanding your belly. Pause. Exhale slowly to the count of five. Repeat four times.

Congratulations. You’ve just calmed your nervous system.

Controlled breathing, like what you just practiced, has been shown to reduce stress, increase alertness and boost your immune system.

From The New York Times read more


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Parkinson’s could be treated with shark compound?

Squalamine, a chemical compound found in dogfish sharks, has the potential to reduce the formation of toxic proteins related to the development of Parkinson’s disease, new research suggests

Published in the Proceedings of the National Academy of Sciences, the study reveals that squalamine halted the buildup and toxicity of the protein alpha-synuclein (α-synuclein) in roundworm models of Parkinson’s disease and human neuronal cells.

Read more http://www.telegraph.co.uk/science/2017/01/16/dogfish-shark-extract-could-help-treat-parkinsons-disease-scientists/


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More about us

Category : Uncategorized

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

Subscribe to our email list to receive reminders and announcements

Serving the people with Parkinson’s, their families and caregivers in Albany, NY and throughout New York’s Capital Region.

Our mission is:

  • To provide moral support and fellowship to people with Parkinson’s Disease, their families and caregivers.
  • To raise awareness and disseminate information regarding Parkinson’s Disease
  • To act as a resource center for members and others who would like to know more about Parkinson’s.

We welcome new members – Please join us

“Read More”

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Podcast: Gut Bacteria and Parkinson’s Connection

Listen here https://www.michaeljfox.org/mobile/news-detail.php?podcast-gut-bacteria-and-parkinson-connection

The 100 trillion or so bacteria in our guts are important players in our normal biological processes and in protection against disease. Researchers have begun exploring possible imbalances in some bacteria levels in people with Parkinson’s and how those differences may lead to disease onset or progression. While this area of investigation is still fairly new, the field has some promising leads.


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Early-onset Parkinson’s Patients May Benefit from More Niacin in Diet

Vitamin B3 (niacin) was found to boost levels of a compound called NAD that generates energy and repairs DNA, according to new research that suggests boosting Vitamin B3 could keep Parkinson’s disease (PD) at bay.

read more


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Your symptoms are getting worse over a short time?

Parkinson’s declines slowly, and not over hours, days or weeks. If PD symptoms worsen precipitously over a short period of time, then it is critical to search for secondary causes for these worsening symptoms. Potential causes for worsening Parkinson’s symptoms may include medication changes (which may be intentional changes or due to medication error), infections (such as a urinary tract infection, cold or flu), other medical problems (e.g., dehydration, problems with the heart, lungs, kidneys, liver, etc.), and/or stress, sleep deprivation, etc. read more http://www.pdf.org/en/parkinson_briefing_secrets_myths_question_answer


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April 13, 2017 Speaker – safely access and navigate homes – age in place

Category : Future Meetings

 April 13, 2017 Monthly Meeting

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information

Lynda Shrager

Lynda Shrager began navigating through the mystifying maze that is our national health care system on the day, more than 19 years ago, when she and her daughter were simultaneously diagnosed with life-threatening medical conditions. After successfully negotiating the crisis and not losing her sanity along the way, she realized it was her organizing skills that were instrumental in getting her through it all. By the time her mother had been diagnosed with a very aggressive cancer, Lynda had become the expert in organizing the tasks that needed to be tackled to manage a serious illness while simultaneously keeping up with all the other aspects of everyday life. The Organized Caregiver was born.

Lynda Shrager, OTR, MSW, is a breast cancer survivor and the author of Otherwise Healthy® – A Planner to Focus Your Thoughts on Organizing Life after Being Diagnosed with Breast Cancer. Her newspaper column Mom’s Rx, now in its eighth year, is published in the Hearst daily Albany Times Union and has appeared in countless newspapers across the country. For over thirty-three years Lynda has practiced in the medical field of geriatric rehabilitation, focusing on all aspects of senior health and wellness.

Lynda combines her expertise as an occupational therapist, master’s level social worker, professional organizer and aging in place specialist to pursue her passion of providing therapeutic care in the patient’s home environment and in educating their caregivers. To that end she is eagerly launching a new initiative called “At Home for Life” to facilitate a senior’s desire to remain in their own home as they face the crossroads of diminished physical and cognitive abilities. Lynda will provide residential assessments and make recommendations to enable people to safely access and navigate their own homes, thereby allowing them to age in place.

Lynda’s engaging, humorous, and motivational presentation style creates a relaxed and comfortable environment that facilitates the educational process. Lynda shares stories and insight from both a personal and professional perspective to inspire her audience.


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Fatigue and Parkinson’s 

In this video from the Davis Phinney Foundation, Dr. Andrew Duker discusses some of the reasons why Parkinson’s disease patients get so fatigued and what can be done 

Read more


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August 10, 2017 – meeting agenda

Category : Future Meetings

August 10, 2017  Monthly Meeting

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information

August 10, 2017 

life stories – ask a few individuals in advance to give a short life story
OR

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October 12, 2017 – Meeting agenda

Category : Future Meetings

October 12, 2017

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Dr. Mulho

Tom will ask him if he will come

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September 14 – meeting agenda

Category : Future Meetings

September 14, 2017

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.


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May 11, 2017 Meeting Agenda

Category : Future Meetings

May 11, 2017 Meeting

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Duopa

Heintje A. Calara MA, RN
Duopa Nurse
Northeast Region

More TBA


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December 14, 2017 – meeting agenda

Category : Future Meetings

December 14, 2017 (date TBD)
Holiday party
January, February no meetings

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.


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November 9, 2017 – Meeting agenda

Category : Future Meetings

November 9, 2017

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.


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July 13, 2017 (date tbd) – meeting agenda

Category : Future Meetings

July 13, 2017 (date tbd) Meeting

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Picnic
Bruce’s place was nice. Ask Bruce again? Look into Bethlehem or Colonie Town Park?
Colonie charges $50 – $100 for pavilion
Bethlehem – can be reserved by town resident – Permits for all users will be issued on a first-come, first-paid basis.  Small small pavilion $85

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June 8, 2017 Meeting agenda

Category : Future Meetings

June 8, 2017 Meeting

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

June 8, 2017

On-line resources?
Art therapy?
Group discussion, PWP and caregivers
http://www.cdparkinsons.org/lsvt-big-and-hypnotherapy-provider/

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About Vishad Sukul, M.D.

Category : Past Meetings

Dr. Sukul is fellowship trained in functional neurosurgery for the treatment of complex neurological conditions such as chronic pain and movement disorders. He has a particular interest in deep brain stimulation for the treatment of essential tremor, dystonia, and Parkinson’s disease, and also performs spinal cord stimulation and other neuromodulation techniques for chronic pain. Additionally, he practices general cranial and spine neurosurgery.

Dr. Sukul completed his fellowship training in stereotactic, functional and epilepsy neurosurgery at Vanderbilt University Medical Center in Nashville, TN, and his neurosurgery residency training at Temple University Hospital in Philadelphia, PA. He received his medical degree from Rutgers New Jersey Medical School. t Albany Medical College.

Dr. Sukul is fellowship trained in functional neurosurgery for the treatment of complex neurological conditions such as chronic pain and movement disorders. He has a particular interest in deep brain stimulation for the treatment of essential tremor, dystonia, and Parkinson’s disease, and also performs spinal cord stimulation and other neuromodulation techniques for chronic pain. Additionally, he practices general cranial and spine neurosurgery.

Dr. Sukul completed his fellowship training in stereotactic, functional and epilepsy neurosurgery at Vanderbilt University Medical Center in Nashville, TN, and his neurosurgery residency training at Temple University Hospital in Philadelphia, PA. He received his medical degree from Rutgers New Jersey Medical School. He is active in clinical research.


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Saratoga Support Group – January 16 , 2017 speaker

Category : Community Calendar , Events

Saratoga Support Group

Date: Monday, January 16 , 2017

Time: 2:00 PM

Location: Woodlawn Commons Bldg, Saratoga Room 2nd Floor At Wesley Health Care Center 156 Lawrence Street Saratoga Springs, NY 12866

All persons with Parkinson’s, their families, friends and caregivers are welcome to attend. For additional info, please call Bruce McClellan at 331-9611.

Speaker: Mark Tolstrup

Mark Tolstrup is a dedicated practitioner of the internal martial arts with over 25 years of teaching experence. Mr Tolstrup is a fourth degree black belt in Kempo Karate, has studied Tai Chi, meditation, Qi Gong and Chinese internal martial arts with many masters including T. K. Shih, William C.C. Chen, Jou Tsung Hwa, Mantak Chia, B. P. Chan, B. K. Frantzis, Frank Allen and many others. In addition to other Tai Chi forms, Mr. Tolstrup has studied Yang Style Tai Chi with Grandmaster William C.C. Chen and is a certified as an instructor by the William CC.Chen School of Tai Chi Chuan since 1993. Mr. Tolstrup was awarded the highest level diploma from the William C C Chen School of Tai Chi Chuan in 2005 Mr Tolstrup is also a certified instructor of Master Mantak Chia’s International Healing Tao Foundation. Mr. Tolstrup is one of only three instructors that have been certified to teach Hsing-I by the Wu Tang Physical Culture Association of New York City. All classes are taught in a relaxed open environment. Great attention is paid to detail and to each individual students progress. With over 25 years of teaching experience Mr Tolstrup has developed the ability to clearly present the principles as well as details of Tai Chi and Qi gong.


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Classes in JEOPARDY of being CANCELED without more participation

Category : Community Calendar

Classes in JEOPARDY of being CANCELED without more participation:
 
P4P Duanesburg/Delanson YMCA – there is only one person in the class – it will cancel as of 1/31/2017without more participation!
P4P Saratoga YMCA – There are only 2 people on Thursday’s and 3 on Friday’s. 2-3 more are needed to keep the classes going!
We are fortunate of having these classes. Let’s get moving and keep these classes going. Sign-up today!!!
 

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Mark your calendar

Category : Events

Hope Soars says…

Mark your calendar for our Annual Walk for Parkinson’s at historic Washington Park in Albany on Sunday, April 23.

We have recently teamed up with the Tri-City ValleyCats for our first Hope Soars day at the park on Sunday, June 25th. These and more events will be posted on our website


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National Parkinson Foundation toll-free Helpline

The National Parkinson Foundation (NPF) runs a toll-free Helpline, 1-800-4PD-INFO, (473-4636) The lifesaving NPF Helpline, launched in 2010, is staffed by a team of patient-focused nurses, social workers and therapists who answer calls about Parkinson’s disease (PD) in English and in Spanish Monday through Friday from 9 a.m. to 5 p.m. EST.

“NPF’s Helpline links our groundbreaking research to improve the lives of people with Parkinson’s today directly with the community we serve,” I know this first hand because the Helpline has made a difference in the life of my mother, who is living with Parkinson’s.” –John Kozyak, NPF’s Chairman of the Board. ”

“We’re more than just an information line. We truly care about the people we serve and that’s the key to our success, Whether you have yet to receive a diagnosis, are recently diagnosed with Parkinson’s, or caring for a family member with the disease, we are here to help you understand your condition, your care, and the latest research on how patients can live their best lives with Parkinson’s. We spend as much as 45 minutes on calls with those who have been recently diagnosed – more than three times the average – because we can really make a difference.” –  Adolfo Diaz, NPF’s Director of Patient Services who manages the Helpline.”

NPF’s Helpline Specialists help callers locate resources in their area, as well as send a customized informational packet after the call. The NPF packets arm people with Parkinson’s and their families with helpful information on preparing for an appointment with their general practitioner or movement disorder specialist. People with Parkinson’s disease, their care partners and families are invited to call to receive emotional support and referrals to health professionals and community resources. A wide variety of helpful NPF publications and the Aware in Care kit are also available for order through the Helpline.

NPF also has an online video series called, “Ask the Helpline,” where our PD Specialists answer the most frequently asked questions including: why exercise is important, what role a movement disorder specialist plays and how the role of caregiver changes over time.

People with questions about PD may also e-mail the NPF Helpline at helpline@parkinson.org.

 


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Diabetes drug slows experimental Parkinson’s disease progression, human trials to begin next year

A new investigational drug originally developed for type 2 diabetes is being readied for human clinical trials in search of the world’s first treatment to impede the progression of Parkinson’s disease, following publication of research findings today in the journal Science Translational Medicine. More

A drug initially designed to treat diabetes may be a breakthrough treatment for Parkinson’s disease. After decades of disappointment, could MSDC-0160 be the drug researchers have been searching for? More


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Financial help from Parkinson’s Wellness Fund

Category : Health and Wellness

If you have Parkinson’s or are a caregiver for a PWP and can’t afford services or products related to your wellbeing, the Parkinson’s Wellness Fund may be able to help with a grant

http://parkinsonswellnessfund.org/families/general/how-it-works

 


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Common Natural Sweetener May Treat Parkinson’s Disease

This post is about experimental drugs and treatments, Under absolutely no circumstances should anyone reading this consider it medical advice.  These are novel results that need to be replicated and verified before being considered gospel.  Before considering or attempting any change in your treatment regime, please consult with your doctor or neurologist. 

The natural sweetener mannitol, a common component of sugar-free gums and candies, may hold potential for Parkinson’s disease (PD) according to a study, funded in part by the Parkinson’s Disease Foundation, in the June 14, 2013  issue of The Journal of Biological Chemistry. In this initial study, the compound not only improved PD-like symptoms in fruit flies, but also reduced harmful levels of alpha-synuclein (the hallmark of PD) in the brains of fruit flies and mice.

Read more at http://www.pdf.org/en/science_news/release/pr_1373476667


The Israeli scientists were interested in the ability of Mannitol to inhibit the formation of alpha synuclein aggregates (clumps of the protein that is associated with Parkinson’s disease). Chemicals similar to Mannitol have exhibited protein destabilizing properties, so it was an interesting idea to test.

The researchers used different concentrations of mannitol and added it to a solution of alpha-synuclein. They left this concoction shaking for 6 days (at 37°C) and then assessed the levels of aggregation. Curiously the low levels of Mannitol had the strongest inhibitory effect, while the higher concentrations had no effect. The researchers repeated the experiments and found similar results.

Given this success, they turned their attention to an animal model of alpha synuclein: a genetically engineered fly that produces a lot of alpha synuclein. They found that Mannitol treated flies had significantly less alpha synuclein aggregation in their brain than untreated flies. This study was then repeated in genetically engineered mice (that produce too much alpha synuclein) and guess what? They found the same results.

These results led the scientists to suggest that “mannitol administration in combination with other drugs could be a promising new approach for treating PD and other brain-related diseases such as Alzheimer disease”.

A warning regarding Mannitol

Before you rush out and start loading up on Mannitol there are a few things you should know about it.

It is used medically, usually to treat increased pressure within the skull.

It should not be abused, however, as it can have an osmotic effect (in particular, attracting water from the intestinal wall). Consumed in excess, it will cause diarrhea, abdominal pain, and excessive gas.

In addition to intestinal problems, Mannitol has also been associated with worsening heart failure, electrolyte abnormalities, or low blood volume. We also do not know what effect it may have on absorption of L-dopa and other Parkinson’s disease medications.

Read more at https://scienceofparkinsons.com/2016/05/10/manna-from-heaven-mannitol-and-parkinsons-disease/


Tel Aviv University researchers say artificial sweetener could prevent aggregation of toxic proteins in the brain.
http://mfa.gov.il/MFA/InnovativeIsrael/ScienceTech/Pages/Sweet-news-for-Parkinson’s-disease-4-May-2014.aspx


Another Possible Benefit of Taking Mannitol for Parkinson’s

An added benefit, it has the effect of stimulating a daily bowel movement. If someone is looking for assistance with constipation mannitol can serve double duty!!


Listen to the radio show interview with Don Don McCammon which I have embedded in this post below.

http://www.medscape.com/viewarticle/806873

Mannitol would be an attractive treatment option because it’s already approved for various medical uses by the FDA, as a diuretic and as a rinsing agent during certain surgical procedures.


Testimonials

 


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Blocking brain enzyme corrects motor symptoms in mice

New drug research shows promising results in mice bred to develop the motor symptoms of Parkinson’s disease. A team in Finland finds that blocking an enzyme called prolyl oligopeptidase clears the mice’s brains of an accumulated protein that is a hallmark of Parkinson’s disease, halts further brain damage, and corrects movement impairment.

Read more


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Timing may be key to understanding cognitive problems in Parkinson’s disease

Brain stimulation replaces missing brain wave and improves cognitive process in mice that lack dopamine

“Read More”

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Microsoft researcher creates wearable which smooths handwriting in Parkinson’s Disease

Haiyan Zhang, Innovation Director at Microsoft Research Cambridge, has taken part in the BBC’s The Big Life Fix challenge which asks young technologists to use their skills to help others.
Her task was to find a way to help 29-year-old Emma Lawton, who is a graphics designer, to improve her writing and drawing skills after this was negatively impacted by her Parkinson’s Disease diagnosed three years ago.

Read more at BBC.com

Read more at steemit.com

(Video) Emotional moment young woman with Parkinson’s Disease writes again thanks to gadget read more at mirror.co.uk


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ELISPOON – the bowl of the spoon remains horizontal and keeps the food in place.

Whatever movement of the wrist is performed, the bowl of the spoon remains horizontal and keeps the food in place.

The material used is lightweight and strong.  A key characteristic is the spoon’s affordability.

There are no electrical components or batteries, making it carry anywhere and to clean.

ELISPOON is a product designed and built to ease the life of the users and their love.

Two graduates from Israel’s Technion developed a spoon that their child with motor co-ordination problems could use without spilling its contents.   Now anyone can buy it. Useful also for the elderly or anyone suffering from tremor


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New Website section for Books

Category : Books


A new section of the website is being developed.  The Book section will list books that people have found helpful.  You can see the books so far here or by clicking the “Books” post category on the right.

 

 


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Parkinson’s and the Microbiome

New research suggests that this brain disorder may actually begin in your gut. Here’s what you need to know.

“Read More”

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Use the website forum to ask a question or start a discussion

An Internet forum is a discussion area on a website. Website members can post discussions and read and respond to posts by other forum members. A forum can be focused on nearly any subject and a sense of an online community, or virtual community, tends to develop among forum members. A forum usually allows all members to make posts and start new topics.

 

Start a discussion or ask a question by starting here.

 


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World Parkinson’s Congress

The World Parkinson’s Congress is held every three years. The last one was in 2016 in Portland Oregon The next one in Japan.

The website for 2016 has lots of useful information

Wpc2016.org


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YOPD Holiday Party

                                                                   MEETING      
YOUNG ONSET PARKINSON’S DISEASE (YOPD) SUPPORT GROUP
DATE:                    Saturday, December 17, 2016
TIME:                    2:00 PM
LOCATION:         Good Shepherd Lutheran Church, 510 Albany-Shaker Rd, Loudonville, NY 12211
 
                        Join the YOPD Support Group December 17, 2016 for the monthly meeting.
THIS MEETING WILL BE A HOLIDAY POT LUCK AND  OPEN DISCUSSION. BRING A DISH TO SHARE!!!
 
Mary Piel, OT, from Sunnyview Rehabilitation Hospital, will be speaking about LSVT Big and Wellness program specialist.
 
            Patients, spouses, siblings, medical professionals/students, and caregivers are welcome to attend.  The meeting provides an opportunity to learn more about Parkinson’s disease and share information in an informal setting.  Attendees are encouraged to bring questions.  Dinner is ordered off the menu (individual bills).    
 
For further information regarding the YOPD, contact:  518- 783-3492 or
518-371-0448, after 3:00 p.m.

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YOPD posting notice for December

Holiday Greetings – Attached is the posting notice for December.  Please post on a public bulletin board at a bank, library, restaurant, etc.  Appreciate your efforts in getting the word out.

Note:  Speaker suggestions are welcome.  Please submit the speaker’s name, specialty or type of business, phone number and/or email to ralphie@nycap.rr.com.  Suggestions will be forwarded to individuals who are scheduling program speakers.

Linda L. Rolfe
459-9052

Posting Notice


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Chair Yoga at St. Sophia’s Tuesday

Category : Exercise

For seniors with mobility issues, there is a “Chair Yoga” class sponsored by NNORC which meets on Tuesday at 11 a.m. The instructors for all three classes are trained and dedicated professionals.

 

Monday morning Tai Chi class sponsored by Albany Senior Services which meets at 9:30 a.m.

At St. Sophia Greek Orthodox Church 440 Whitehall Road Albany, New York 12208
Tel: (518) 489-4442

(Note: There are no membership fees for this group.)

For health and fitness, there are programs that are free. A Monday morning Tai Chi class sponsored by Albany Senior Services which meets at 9:30 a.m.

 

http://stsophia.net/events/participate/


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Tai Chi class at St. Sophia’s Monday

Category : Exercise

Monday morning Tai Chi class sponsored by Albany Senior Services which meets at 9:30 a.m.

At St. Sophia Greek Orthodox Church 440 Whitehall Road Albany, New York 12208
Tel: (518) 489-4442

(Note: There are no membership fees for this group.)

For health and fitness, there are programs that are free. A Monday morning Tai Chi class sponsored by Albany Senior Services which meets at 9:30 a.m.

And for seniors with mobility issues, there is a “Chair Yoga” class sponsored by NNORC which meets on Tuesday at 11 a.m. The instructors for all three classes are trained and dedicated professionals.

http://stsophia.net/events/participate/


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2016 Parkinson’s holiday gift guide

The holiday season has arrived and although it’s an exciting time, it can be a bit stressful to find that perfect gift for your favorite Parkie.

“Read More”

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Exercise and Community Events

Category : Events , Exercise , Pedaling

Weekly: Friday 10:00 AM: Schott’s Boxing  –  21 Vatrano Rd, Albany, NY 12205  (518) 641-9064. This boxing PD activity is in presented in partnership with Hope Soars/Mark Burek (518) 428-0056.
Weekly: P4PPedaling for Parkinson’s M/W/F @ Bethlehem Y, Delaware Ave. 12 Noon.
Call your local YMCA’s for dates & time (perhaps cost) in your area.
PWR PD Wellness Recovery – 6 wk classes run independently by local YMCA’s. Bethlehem Y: call (518) 439-4394 for dates/times/cost $$
P4P-Pedaling for Parkinson’s – Saratoga YMCA no charge—Thursday & Friday—phone (518) 583-9622
P4P-Southern Saratoga (Clifton Park YMCA) – Monday, Wednesday, Friday- members free, non-members $5.00 – phone (518) 371-2139
P4P-Glenville YMCA –  Monday, Tuesday, Thursday– Members free, non-members $5.00—phone (518) 399-8118
P4P-Troy YMCA – Monday, Wednesday, Friday – Members free, non-members $5.00– (518) 272-5900
P4P – Wednesday, Friday, Parkinson’s Wellness Class Thursdays 12 N -1:45 Cost $45 for 7 weeks – Bethlehem YMCA – 900 Delaware Avenue, Delmar, NY 12054 – Phone (518) 439-4394 Contact the Y for more information
** PWR – Parkinson’s Wellness Recovery Class Thursdays 10:30 – 11:45 Cost $45 for 7 weeks – Clifton Park YMCA – 1 Wall Street, Clifton Park, NY 12065 – Phone (518) 371-2139 Contact the Y for more information
***Schott’s Boxing, 21 Vatrano Road, Albany, NY 12205 (518) 641-9064– Friday’s 10:00 AM The cost is $10.00 for the initial visit which covers the cost of the hand wraps. Hope Soars is partnering with Schott’s and will pay most of the membership fee which will be determined based on class size. If you have any question’s please contact Mark Burek (518) 428-0056.
Thursdays Dance Class– Dance Theater of Syracuse, 117 Harvard Place, Syracuse, NY (504) 570-0752 1:45 – 3:00 PM
Tuesday Yoga Class- Heartspace Yoga and Healing Arts, 747 Madison Avenue, Albany, 12208, Donation is requested. Class is for Parkinson’s Patients and their family/caregivers, for information call Instructor Tamara Cookingham (518) 495-3239 tamaracookingham@gmail.com
 
Thursday Yoga Class- Honest Weight Coop, 100 Watervliet Avenue, Albany, NY, Free for Parkinson’s Patients and their family/caregivers, for information call Instructor Tamara Cookingham (518) 495-3239  tamaracookingham@gmail.com  
Dance for PD from home – http://capture.nbs-enb.ca/27/page/Home.aspx 
Yoga classes online every Wednesday live or view archived. http://nwpf.yourbrandlive.com/yoga  
 

FOUNDATIONS

 

Speaker’s/Activities December Meetings

Saratoga County Meeting: Mary Piel, OT, 
 
YOPD -Albany County 2 PM: Dec’s meeting speaker Mary Piel, OT, see flyer below, and  will be a pot luck holiday party on Sat, 12/17 at Good Shepherd Lutheran Church, 510 Albany-Shaker Rd, Loudonville, NY 12211 
 
The Schenectady Co. Group will be meeting on the 2nd Wednesday, December 14 at 11:30 a.m. at the Glenville Queen Diner on Route 50 in Glenville for our annual luncheon.

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December 2016 Parkinson’s Calendar

Category : Events

Happy Holiday’s and New Year’s Everyone,

It has been quite a year! I can’t believe how fast it went by.
I did my first triathlon last May and can’t wait to do it again in 2017. I did the 7 mile bike ride in 29 minutes, the 2 mile kayak (I came in 18th out of 70) and the 5k I was the last one! BUT I FINISHED!!
Please remember to keep moving! It really helps.
If you have any questions, feel free to contact me.
I wish everyone a wonderful New Year! My motto is: You don’t know what tomorrow will bring, so have a great day today! There are some tough days, but we have to keep on going. With the support of each of us, we can do it.
Have a wonderful day!
Marie
An interactive version of this calendar can be found at http://www.cdparkinsons.org/calendar-2/
Please note: Bethlehem YMCA Pedaling for Parkinson’s (P4P) class meets Wednesday and Friday at 12:00. There is no Bethlehem YMCA Pedaling for Parkinson’s (P4P) class Monday
 

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What Does the Election Mean for the Parkinson’s Community?

As a new president takes office next year, the political environment in Washington, DC, will change.

“Read More”

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December 2016 Newsletter

Category : Events

CAPITAL DISTRICT PARKINSON’S SUPPORT GROUP (CDPSG)
BEVERWYCK NEWSLETTER

 

Saturday December 10, 2016 🎄🎤🍾 🎉
1:00-4:00 p.m. @ Beverwyck

Program: Holiday Party

Dues of $15 (per couple/individual) are due.

Dollars go to programs/picnics/parties/ and literature. You may also
be a walk-in on the 10th, cost $30 couple/$20 single. Please pay Sylvia Morton, our Treasurer.

Directions to 41 Beverwyck Ln, Slingerlands.
Short Business meeting presentation at 2:00:

  • Discussion of 2017 elections.
  • Presentation by the Wings, comments about attending the PD Conference in Portland, OR.
  • Also, please sign-up for refreshments for March-November, 2017.

Personal note from out-going President: I would like to thank all members for their attendance and dedication to the Beverwyck support group during 2016. In the coming year please continue with your suggestions and participation so that CDPSG may grow even larger. Awareness is the key to beating Parkinson’s and exercise is the key to keeping yourself healthy. Have a wonderful holiday season and a healthy 2017.

— Barbara


MARK YOUR CALENDARS for Dates/Refreshments/Program:

SAVE THE DATE 2017: Thursday March 9th First meeting of 2017. Newsletter and presentations forthcoming.


EXERCISE & COMMUNITY EVENTS: ❄️ ☃️ ❄️
1X Monthly – YOPD – Young Onset PD Support Group Mtgs held @ Good Shepherd Lutheran Church, 510 Albany-Shaker Rd, Loudonville, NY, or at Latham Diner, Colonie. For additional details check the Community Calendar or email: susanbrant48@gmail.com or – call 518-783-3492 or 518-371-0448 after 4 pm. Patients, spouses, siblings, medical professionals – all are welcome to come and learn about PD.

Weekly: Friday AM: Schott’s Boxing – $20 for initial visit (cost determined by class size) 21 Vatrano Rd, Albany, NY 12205 (518) 641-9064. This boxing PD activity is in presented in partnership with Hope Soars/Mark Burek (518) 428-0056.

Weekly: P4P – Pedaling for Parkinson’s M/W/F @ Bethlehem Y, Delaware Ave. 12 Noon.
Call your local YMCA’s for dates & time (perhaps cost) in your area.

PWR – PD Wellness Recovery – 6 wk classes run independently by local YMCA’s. Bethlehem Y: call (518) 439-4394 for dates/times/cost $$


If your name/email is not on the listing for the monthly COMMUNITY Parkinson’s CALENDAR for all events in the Albany area, email Patty Allen, traileka@aol.com or Marie Thorne, softballmom300@yahoo.com

You can view the calendar here

❄️ ⛷ ❄️

Contact Officers by viewing our contact page.  Leave a message in the CONTACT menu tab with your full name, address and phone. Someone will get back to you as soon as possible. Officers: Co-Presidents Bruce Plotsky/Thom Stephany; Rec Secy, Shannon Gorman; Correspond Secy, Patty Allen: Treasurer, Sylvia Morton

Questions/comments: www.cdparkinsons.org ☺️


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Medical marijuana and Parkinson’s

Researchers issue caution for people with PD who use cannabis because of its effect on thinking.

“Read More”

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Support your favorite charity with Amazon Smile

AmazonSmile is a simple and fun automatic way for you to support your favorite charitable organization every time you shop,

“Read More”

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Parkinson’s News Today – social clips

See short, informative clips from Parkinson’s News Today

These and more…

Parkinson’s Quote: Look Beyond Imperfections

When you have Parkinson’s disease sometimes you feel imperfect.

Maya Angelou once said, “Being happy doesn’t mean that everything is perfect. It means that you’ve decided to look beyond the imperfections.


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The benefits of Tai Chi

It isn’t every day that an effective new treatment for some Parkinson’s disease symptoms comes along. Especially one that is safe, causes no adverse side effects, and may also benefit the rest of the body and the mind. That’s why I read with excitement and interest a report in the New England Journal of Medicine showing that tai chi may improve balance and prevent falls among people with Parkinson’s disease. Tai chi improves balance and motor control in Parkinson’s disease

“Read More”

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Dance for PD survey

Category : Exercise , Speaker Leads

What is Dance for PD?

Download a flyer and Watch a segment about a class in Buffalo

Read about the class from a participant’s view


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Oregon Research Institute Tai Chi Program helps Parkinson’s Disease Patients

Category : Health and Wellness

An Oregon Research Institute (ORI) exercise study conducted in four Oregon cities has shown significant benefits for patients with mild-to-moderate Parkinson’s disease. In an original article published in the February 9, 2012 issue of the New England Journal of Medicine(NEJM), ORI scientist Fuzhong Li, Ph.D. and colleagues report that a tailored program of twice-weekly Tai Chi training resulted in improved postural stability and walking ability, and reduced falls in the participants.

Read more 


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December 10, 2016 – Meeting agenda and minutes

Category : Past Meetings

December 10 – SATURDAY @ 1-4 PM – Holiday Party

“Read More”

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November 10, 2016 – Meeting agenda and minutes

Category : Past Meetings

November 10, 2016 7:00-900 p.m.

Program: Tips from Physical and Occupational Therapists provided by Noto Physical Therapy. Refreshments: Susan Thomas.

Agenda for Business meeting at 8:00:

Discussion of December  elections, current email addresses, Holiday Party. Dues of $15 (per couple/individual) are due. The dollars go to programs / picnics / parties / and literature. Please pay to Sylvia, our Treasurer, at the November meeting.

Notes and minutes from the meeting 


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LSVT Loud and LSVT Big – voice and movement treatments

Recent advances in neuroscience have suggested that exercise-based behavioral treatments may improve function and possibly slow progression of motor symptoms in individuals with Parkinson disease (PD). The LSVT (Lee Silverman Voice Treatment) Programs for individuals with PD have been developed and researched over the past 20 years beginning with a focus on the speech motor system (LSVT LOUD) and more recently have been extended to address limb motor systems (LSVT BIG).

“Read More”

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Janet Reno

Not even Parkinson’s disease has slowed the former Attorney General’s life on the move

“Read More”

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Breaking News: New Dyskinesia Drug Submitted to FDA

A new drug for levodopa-induced dyskinesia — involuntary, uncontrolled movements that can develop with long-term use of levodopa combined with a prolonged course of Parkinson’s disease (PD) — is one step closer to potentially reaching market.

Read more


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Stem Cell Transplants 

The first transplantation of stem cells in patients with Parkinson’s disease is almost within reach.  

Read more


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Parkinson’s Disease and Diet

Category : Health and Wellness

Overview

No one specific diet is recommended for everyone with Parkinson’s disease (PD). Still, what you eat may impact how well your medication works and can help some of the non-motor symptoms that are associated with PD. For general health and well-being, doctors encourage people with Parkinson’s to follow a balanced diet, which includes whole grains, healthy fats (in foods like nuts, avocado and olive oil) and antioxidants.

Get the Parkinson’s and Diet printable booklet from the MJ Fox foundation.


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Constipation

Category : Health and Wellness

Difficulty swallowing, feelings of nausea or bloating, constipation, and difficulty eliminating are all common symptoms of PD.

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Do you make art? Crafts?

Category : Health and Wellness

Add your comments or pictures about your art. 

Here is some of mine. 


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Juggling – the ultimate exercise?

Category : Health and Wellness

Here are just a few of the reasons that juggling is the ultimate exercise! Click here to learn more.

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Upcoming Events

Mar
23
Thu
10:00 am P4P Saratoga YMCA @ Saratoga YMCA
P4P Saratoga YMCA @ Saratoga YMCA
Mar 23 @ 10:00 am – 11:00 am
http://cdymca.org/programs/chronic-diseases/pedaling-for-parkinsons/  
10:30 am Honest Weight Yoga @ Honest Weight Food Coop
Honest Weight Yoga @ Honest Weight Food Coop
Mar 23 @ 10:30 am – 11:00 am
 
10:30 am Parkinson’s Wellness Recovery Class @ Clifton Park YMCA
Parkinson’s Wellness Recovery Class @ Clifton Park YMCA
Mar 23 @ 10:30 am – 11:30 am
PWR – Parkinson’s Wellness Recovery Class Thursdays 10:30 – 11:45 Cost $45 for 7 weeks – Clifton Park YMCA – 1 Wall Street, Clifton Park, NY 12065 – Phone (518) 371-2139 Contact the Y for
11:00 am P4P-Duanesburg/Delanson YMCA @ DuanesburgvYMCA
P4P-Duanesburg/Delanson YMCA @ DuanesburgvYMCA
Mar 23 @ 11:00 am – 12:00 pm
P4P-Duanesburg/Delanson YMCA – Monday’s at 12 noon and Thursday’s at 11 am (518) 895-9500 members free non-members $6.00.
11:45 am P4P Glenville YMCA @ Glenville YMCA
P4P Glenville YMCA @ Glenville YMCA
Mar 23 @ 11:45 am – 12:45 pm
P4P-Glenville YMCA – Monday, Tuesday, Thursday– Members free, non-members $5.00—phone (518) 399-8118
1:45 pm Parkinson’s Dance Syracuse @ Dance Theater of Syracuse
Parkinson’s Dance Syracuse @ Dance Theater of Syracuse
Mar 23 @ 1:45 pm – 3:00 pm
Parkinson’s Dance (re-defining PD) Thursdays 1:30-2:45 pm Weekly Drop-ins welcome No charge Lead teacher: Tumay Tunur Dance styles/techniques/content covered in class: Ballet, Tap, Contemporary, Latin, Improvisation Dance Theater of Syracuse 117 Harvard Place Syracuse, NY
Mar
24
Fri
9:30 am P4P Guilderland YMCA @ Guilderland YMCA
P4P Guilderland YMCA @ Guilderland YMCA
Mar 24 @ 9:30 am – 10:30 am
http://cdymca.org/programs/chronic-diseases/pedaling-for-parkinsons/  
10:00 am Schott’s Boxing @ Schott's Boxing
Schott’s Boxing @ Schott's Boxing
Mar 24 @ 10:00 am – 11:00 am
Every Friday at 10 This program was started in 2016 by Hope Soars and Schott’s Boxing and Fitness to enhance the quality of life of the Parkinson’s patient. There is a direct correlation between the
10:30 am P4P Troy YMCA @ Troy YMCA
P4P Troy YMCA @ Troy YMCA
Mar 24 @ 10:30 am – 11:30 am
PEDALING FOR PARKINSON’S Pedaling a bicycle may change the life  of someone with Parkinson’s disease. Research conducted at the Cleveland Clinic showed a 35% reduction in symptoms by the simple act of pedaling a bicycle
12:00 pm P4P Bethlehem YMCA @ BethlehemYMCA
P4P Bethlehem YMCA @ BethlehemYMCA
Mar 24 @ 12:00 pm – 1:00 pm
read more from the YMCA
4:30 pm P4P Saratoga YMCA @ Saratoga YMCA
P4P Saratoga YMCA @ Saratoga YMCA
Mar 24 @ 4:30 pm – 5:30 pm
 
5:00 pm P4P Clifton Park YMCA @ Clifton Park YMCA
P4P Clifton Park YMCA @ Clifton Park YMCA
Mar 24 @ 5:00 pm – 6:00 pm
The mission of Pedaling for Parkinson’s is: To improve the quality of life of Parkinson’s disease patients and their caregivers. To educate patients, caregivers, and the general public about the benefits of maintaining an active