Past Events


April 21, 2018 – YOPD meeting

YOUNG ONSET PARKINSON’S DISEASE (YOPD) SUPPORT GROUP

DATE: SATURDAY, APRIL 21, 2018

TIME:   2:00 PM – 4:00 PM

LOCATION: GOOD SHEPHERD LUTHERAN CHURCH, 510 ALBANY-SHAKER ROAD,

                          LOUDONVILLE, NEW YORK

Join the YOPD Support Group Saturday, April 21, 2018, for the monthly meeting.

Program:   Donna Stressel, Program Director, of the Driver Rehabilitation Program, Sunnyview Hospital and Rehabilitation, will give a presentation on the program offered at Sunnyview.  There is networking and no admission charge.   Patients (any age) and caregivers are welcome to attend to learn more about Parkinson’s disease.

For further information regarding the YOPD, contact:  518-541-2021, after

3:00 p.m.

Next Meeting:  Monday, May 28, 2018, Route 7 Diner, 1090 Troy-Schenectady Road, Latham

Mission:  The YOPD support group shall welcome everyone with Parkinson’s disease including their care network.  YOPD will support, share, and encourage PD persons to enjoy quality of life and ensure they are not alone in their journey.  Information/issues obtained by YOPD from attendees will be treated confidentially and privacy respected.    


April 18, 2018 – Guided hike at Peebles Island State Park

Hike Peebles Island State Park

Please join us for a 2 to 3 mile guided hike of Peebles Island State Park in Cohoes at 9 AM on April 18, 2018. We will meet at the Peebles Island parking lot. There may be a fee to park.
The terrain in mildly hilly, with great views of the Cohoes Falls and I have heard there is a nesting pair of eagles that should be visible from the trail. Friends and family are welcome.

Please contact Jim Slavin at jaslavin1@gmail.com to sign up.

Website: https://parks.ny.gov/parks/111/details.aspx for directions and trail map.

Thanks, Jim Slavin

March 22, 2018 – Community Caregivers hosts open house

Thursday, March 8, 2018 – 15:46

GUILDERLAND — Community Caregivers announces its first Spring Open House, “Meet Community Caregivers,” on Thursday, March 22, from 4 to 6 p.m.

The open house will take place at the Community Caregivers’ office at 2021 Western Ave, Suite 104, in Guilderland.

A not-for-profit organization, the Community Caregivers harnesses the expertise and energy of volunteers to  provide non-medical services, including transportation and caregiver support, at no charge to residents of Guilderland, Bethlehem, Altamont, New Scotland, Berne, Knox and the city of Albany.

“We welcome those interested in learning about our ‘neighbor helping neighbor’ services for themselves or a loved one,” said Acting Director Larry Miller in a release from the Caregivers. “We have resources and volunteer services to support family caregivers.

“We also welcome prospective volunteers to stop in to pick up volunteer information and sign up for a springtime orientation. And, we invite community members who are thinking about what it takes to live at home as they grow older.”

The open house will offer information about local efforts for “aging in place” and the nationwide and fast-growing Village Movement.

Light refreshments will be served and helpful and information about local resources will be distributed. Experienced staff members will be on hand to answer questions.

Call 518-456-2898 for more information or for directions to the open house.


March 19, 2018 – Saratoga Support Group meeting

SARATOGA PARKINSON’S SUPPORT GROUP

 

Date: Monday, March 19th, 2018

Time: 2:00 PM

 

Location: Woodlawn Commons Bldg,

Saratoga Room 2nd Floor

At Wesley Health Care Center

156 Lawrence Street

Saratoga Springs, NY 12866

 

This month our Speaker will be Lisa W. Camp Wellness Director at Family YMCA of Glens Falls Area. Lisa will conduct a chair YOGA class and speak to the benefits for all of us of this type exercise.

All persons with Parkinson’s, their families, friends and caregivers are welcome to attend.

For additional info, please call Bruce McClellan at 331-9611 or Kevin McCullough 518-222-4247.


March 17, 2018 – YOPD 2:00-4:00 p.m. at the Good Shepherd Lutheran Church

The monthly meeting of the YOPD Support Group is scheduled for Saturday, March 17, 2018,
2:00-4:00 p.m. at the Good Shepherd Lutheran Church, 510 Albany-Shaker Road,
Loudonville, New York.
Program: Stephanie Hutchins, Certified Personal Trainer, PTA, “Keep Moving With Stephanie,” will do a
presentation on Exercise and Parkinson’s disease. Ms. Hutchins has worked with Parkinson’s disease clients
and providing exercise programs based on individual needs. She will have equipment on hand that will
demonstrate various types of exercises. There is networking and no admission charge. Patients and
caregivers are welcome to attend to learn more about Parkinson’s disease.

www.keepmovingwithstephanie.com
For further information regarding the YOPD, contact:

518-371- 0448, after 3:00 p.m.

Submitted By: Linda L. Rolfe Date: February 26, 2018
Telephone: 518-459- 9052
E-Mail: ralphie@nycap.rr.com


March 17, 2018 – Mid-Hudson/Albany Parkinson’s Symposium

Mid-Hudson/Albany Parkinson’s Symposium

March 17 ,2018
10:00am-2:00pm

Kaatsbaan International Dance Center
120 Broadway Tivoli, NY 12583
www.kaatsbaan.com

10:00 – 10:15 Registration, Welcome

10:15 – 11:00 “Everything You Need to Know about PD Meds”
Fabio Danisi, MD * Neurologist, Movement Disorder Specialist, Mid Hudson Regional Hospital

  • Standard treatments, timing, dosage
  • Drug-induced hallucinations etc.
  • New medications (Nuplazid, etc.)
  • Drug interactions with over the counter preparations
  • Holistic ltems
  • PDF Materials -Medication log

11:00- 11:15 – Break

11:15 -12:00 – Non-Drug PD Treatments”
Vishad Sukul, MD – Neurosurgeon
Albany Medical Group

  • Surgical Parkinson’s Options
  • Deep Brian Stimulation -Multiple options
  • Focused Ultrasound
  • Future of Parkinson Surgery
  • Duopa

2:00 – 2:45 – Light Lunch

2:45 – 1:15 – “Move lt or Lose lt!”
Anne Olin; Board Certified Dance/Movement therapist,
NYS Creative Arts Therapist

1:15 – 2:00 – Panel Discussion – Open Forum
Fabio Danisi, MD – MidHudson Regional Hospital
Vishul Dukul, MD -Albany Medical Center
Jennifer Durphy, MD – Albany Medical Center
Julie Pilitsis, MD, PhD- Surgeon, Albany Medical Group

Please RSVP to Michael Hahn
mhahn@sjm.com


Directions

From the New York State Thruway, Kingston and Points West

From N.Y.S. Thruway (Interstate 87) take Exit 19 (Kingston). Take Route 209 north over Kingston Rhinecliff Bridge. Route 209 ends at the center of the bridge and becomes Route 199. Continue over the bridge to the second traffic light which is junction with Route 9G. Turn left (North) on Route 9G/Route 199 towards Hudson / Germantown and continue North on Route 9G for 6 miles to County Route 78. Turn left (West) on County Route 78/Broadway. Continue on Broadway passing through the Village of Tivoli. Kaatsbaan Road is one mile from the intersection of Route 9G & 78. Kaatsbaan’s entrance is on the left after St. Sylvia’s Catholic Church, diagonally across from Woods Road.

From the Taconic State Parkway

Exit Taconic State Parkway at Route 199 Pine Plains/Red Hook. Turn West toward Red Hook on Route 199. Continue on Route 199 through the village of Red Hook to the junction with Route 9G. Turn right (North) on Route 9G, continue 4 miles to County Route 78. Turn left (West) on County Route 78/Broadway. Continue on Broadway passing through the Village of Tivoli. Kaatsbaan Road is one mile from the intersection of Route 9G & 78. Kaatsbaan’s entrance is on the left after St. Sylvia’s Catholic Church, diagonally across from Woods Road.

From Rhinebeck and Points South

Take Route 9 North to Route 9G. Turn left (Northwest) on Route 9G. Continue for 7.4 miles to County Route 78 Turn left (West) on County Route 78/Broadway. Continue on Broadway passing through the Village of Tivoli. Kaatsbaan Road is one mile from the intersection of Route 9G & 78. Kaatsbaan’s entrance is on the left after St. Sylvia’s Catholic Church, diagonally across from Woods Road.

From Hudson and Points North

Take Route 9G South to County Route 78. Turn right (West) on County Route 78/Broadway. Continue on Broadway passing through the Village of Tivoli. Kaatsbaan Road is one mile from the intersection of Route 9G & 78. Kaatsbaan’s entrance is on the left after St. Sylvia’s Catholic Church, diagonally across from Woods Road.

Arriving at Kaatsbaan

Studio Theatre Building: Turn left onto Kaatsbaan Road (120 Broadway). Follow into the property and turn right after the first barn. Take the next right into the parking lot. Walk left past the arena (metal roof) and right around the “Music Barn”. The Studio Theatre building will be directly front.

Dancer’s Inn: Take the entrance road into the property and go past the first barn (right side of road). Continue straight ahead at the fork down to the Dancers Inn, located on the left just before the road loops back to the right. Turn left into the entrance and parking area.


April 14, 2018 – Parkinson’s Awareness Day – Manchester, VT

Parkinson’s Awareness Day 2018
Directions to Taconic Hotel

Date Saturday, April 14, 2018

Time 9:00am to 4:00pm

Location

Taconic Hotel
3835 Main Street
Manchester Village VT 05254

Living with Parkinson’s: Faith in the Future

Click here for the full brochure and program

Cost

$20 per person and/or donation to the Chapter; includes breakfast and lunch.

If this cost presents a hardship for you, scholarships are available. Please call 802-847-3366 to register.

Hotel Rooms

Group rates are available at the following hotels. Please contact the hotels directly to make reservations, and mention the appropriate booking code or that you are attending Parkinson’s Awareness Day.

Kimpton Taconic Hotel, $129 per night, 844-861-5510, reservation code BPD – Must book by March 24

Hampton Inn & Suites Manchester, $129 per night, 802-362-4000, reservation code PVT – Must book by March 13

The Aspen at Manchester, $90-125 per night, 802-362-2450, 10% discount on a 2-night stay

For a complete list of lodging options in the Manchester area, click here.

Talent Display

Do you have a craft, skill or artistic talent that helps enrich your life? You are invited to share it with your peers at Awareness Day.

Bring your paintings, drawings, cards, knitting, quilting, woodwork, music, photography, or collections, and we will provide a place for you to exhibit your talent!

Space is limited, so please fill in the appropriate information below if you plan to participate or call 802-847-3366.

Registration ends on April 01, 2018

February 27, 2018 – 1 to 2 PM on-line seminar – Parkinson’s Disease Psychosis: Hallucinations, Delusions and Paranoia 

Join our upcoming seminars live or view recordings on our website afterwards to learn the many ways to live well with Parkinson’s disease (PD) from experts.

Parkinson’s Disease Psychosis: Hallucinations, Delusions and Paranoia 
Tuesday, Feb. 27, 2018, 1 to 2 p.m. ET
Christopher G. Goetz, M.D., Professor of Neurological Sciences, Professor of Pharmacology at Rush University Medical Center a Parkinson’s Foundation Center of Excellence

As part of chronic Parkinson’s disease and its treatment, psychotic behaviors occur in over 50% of patients.  These problems include illusions (perceptual errors), hallucinations (false perceptions), delusional thinking and even suspiciousness and paranoid behaviors.  In most instances, hallucinations are visual, but they can involve the auditory, tactile, olfactory, and gustatory (taste) systems as well.  Because such experiences tend to be repetitive (the same little black dog runs across the room), the patient often has insight and recognizes the hallucination as a false perception.  However, the situation can become more problematic with rigid insistence that the images are real and even threatening.  Psychotic behaviors are a high risk for nursing home placement, because families find them difficult to manage, especially if agitation and paranoid accusations are lodged against the caregiver.  Even though hallucinations usually start out as minimal intrusions, the spectrum of psychotic behaviors is progressive, and early recognition by patient, family and physician allows for detection and treatment interventions.  Life style changes, medication adjustments, and new specifically anti-psychotic treatments are available.

At the end of this presentation, participants will:

  • Understand the types of problems experienced by patients who develop the syndrome of Parkinson’s Disease Psychosis
  • Recognize the burdens and impact on quality of life to both patients and caregivers when Parkinson’s Disease Psychosis develops
  • List current treatments and strategies for mitigating and eliminating Parkinson’s Disease Psychosis.

April 28, 2018 – Parkinson’s Unity Walk

Chris Savastio is soliciting funding for the upcoming Parkinson’s Unity Walk in New York City’s Central Park. The walk will be held on Saturday, April 28. All funds received go directly to Parkinson’s Disease research.

To donate, go online to the official web site for the Parkinson’s Unity Walk. The team name this year is schott’sboxingalbany. Either one of those 2 options will do OR

write a check to Parkinson’s Unity Walk and write in either my name or the team name(Schott’s Boxing Albany) on the memo line of the check. Then mail it to;

Parkinson’s Unity Walk

PO Box 275

Kingston, NJ 08528

Also, there is an open invitation to all members of both support groups to either join us on the walk or become part of the fund raising team or both. Thank you!!

Think Spring,

Chris


April 14, 2018 – Tools for caregivers conference

The Capital Region Caregiver Coalition is proud to announce the 11th annual

“Tools for Caregivers”

~ Resources You Can Use When a Senior Relies on You ~

Workshops, Continental Breakfast, Caregiver Healing Touch and Vendor Resource Fair

DATE: April 14, 2018

Time: 8am – 12 noon

LOCATION: Beltrone Living Center (directions)

6 Winners Circle, Albany NY 12205

REGISTRATION OPENS MARCH 1st!

To register, contact crccreg@gmail.com, (518) 248-3807


March 18, 2018 – Abstract Acrylic Pour Fundraiser

March 18, 2018 2 – 5PM

Adrienne’s ARTistic Experience will be hosting a fundraiser at the Trinity Presbyterian Church (185 Swaggertown Rd, Scotia, NY )

Cost per person is $40 and all proceeds will go to the Hope Soars Foundation to support Parkinson’s Disease research and programs for patients.  I am looking for 35 aspiring painters!

Participants will create a series of three 10″ square canvases, using an acrylic pour technique.  no experience necessary.  Instructions will be provided to create this fund and abstract wall hanging! Just come with a color pallet in mind!

To reserve you spot and for any questions please email Adrienne at artmom2@live.com


February 19th, 2018 – Saratoga Parkinson’s Support Group

SARATOGA PARKINSON’S SUPPORT GROUP
Date: Monday, February 19th, 2018
Time: 2:00 PM
Location: Woodlawn Commons Bldg,
Saratoga Room 2 nd Floor
At Wesley Health Care Center
156 Lawrence Street
Saratoga Springs, NY 12866

This month our Speaker will be Kathy Johnson, Brain Training.
***See below for additional information***
All persons with Parkinson’s, their families, friends and
caregivers are welcome to attend. For additional info, please
call Bruce McClellan at 518-331- 9611.

Welcome to Brain Training
With Kathy Johnson

Monday through Friday
3:45 – 4:45; please come a little early
PNECC Nolan House (the older structure); buzz to get inside
24 Circular street, Saratoga Springs
Kathy: pyramidofpotential56@gmail.com; 518-885- 2007
Open to all! All ages, created to improve memory and attention
Guidelines:
1. Come as often as you can; you cannot change the brain by only working on
it once in a while; practice at home in between sessions
2. Easy activities do not change the brain; neither do activities that are
frustrating. We work at a challenging level. Remember, hard is good!
3. The most important part of brain training is the two physical exercises,
Starfish and Slow Angels. Read more about them on the next page
4. Bring a water bottle daily to training. When you yawn or start to do worse,
drink
5. When you find an activity that is especially challenging, cross walk – march
while touching opposite hand to opposite knee
6. Other things that improve memory and attention:
a. Aerobic exercise like walking and running
b. Social activities
c. Reducing and eliminating sugar – it inflames the brain
d. Stress reducing activities like yoga, meditation, walking in nature, etc.
e. Do these daily
7. Have Fun!! The brain finds engaging activities much more motivating than
those that are boring or too difficult. Feel free to ask Kathy how to modify
any activity to work for YOU

Starfish Exercise to integrate the Moro Reflex
May help with:
Visual problems, Light or auditory hypersensitivity, Anxiety, mood swings,
Difficulty accepting criticism, Dislike of change, Emotionally sensitive

1. Lie back on a chair, bean bag or sofa with pillow under back
2. Tilt head back, arms up and out, legs out wide
3. While breathing out, to the count of 5:
a. Bring arms in and crossed, right over left
b. Bring legs in at the same time, right over left
4. While breathing in, to the count of 5, bring arms and legs back out
5. While breathing out, to the count of five
a. Bring arms in and crossed, LEFT over Right
b. Bring legs in at the same time, LEFT over Right
6. Repeat step #4
7. Repeat entire cycle, steps 3 – 6, 2 more times

Slow Angels to integrate the Spinal Galant Reflex

May help with:
Bladder control, Poor concentration, Poor short term memory, Auditory
processing difficulties, Near focusing problems

1. Lie on back with legs closed and hands at the side.
2. Very slowly do the movements of a snow angel, by bringing the arms up
and opening the legs as wide as possible. Arms stay on the floor as much
as possible.
3. Now, for 30 seconds, close the legs and bring the arms to the starting
position.
4. Every 15 seconds, take a second to readjust the arms and legs. This is a
difficult exercise because the arms move over twice as fast as the legs.
5. Repeat 2 more times.


February 2018 meeting presentation

Steve Hovey gave an informative and inspiring presentation at our February meeting.  He was not able to project his presentation at the meeting.  Here it is for your reference.

Presentation

 


May 10, 2018 CDPSG meeting

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Refreshments: Linda V., Heather and Art
topic – Laughter is the best medicine. Michael Burns will lead us in improve comedy.

Michael Burns

Michael Burns is the Co-Director and founder of The Mop & Bucket Company .

Before settling in the area, Michael studied theatre at SUNY Purchase, and then improv with David Shepherd in New York, where he directed for the American Modern Dance Theatre and the American Folk Theatre.  He was a member of The Big Apple Experience, a short-lived but cleverly named improv troupe. He has since worked for several upstate theaters including Home Made Theater, The Theatre Barn and Steamer 10 Theatre.

Michael developed (with David Shepherd) the Compass Institution, an improv troupe touring senior centers and hospitals. He directed inmate-written plays for Very Special Arts at Greene Correctional facility, and has created youth theater troupes for several human services agencies. He is the author of First You Sit on the Floor: A Guide to Developing a Youth Theatre Troupe.

 

So Funny, It Doesn’t Hurt

Can improv be a form of therapy? Some psychologists think so.

https://www.theatlantic.com/health/archive/2015/09/comedy-improv-anxiety/403933/

 


April 12, 2018 – CDPSG Suport Group Meeting Notice

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Refreshments: Sandy F. and JoAnn K

Topic :
Caregivers will be given time to share questions and experience separate from people with Parkinson’s. People with Parkinson’s will learn about creativity and Parkinson’s and have the opportunity to create a work of art with provided materials.

WE WILL MEET IN A DIFFERENT BUILDING AND ROOM THIS MONTH
in order to accommodate a split group
Our meeting room will be the Van Cortland room at Beverwyk. 40 Autumn Drive, Slingelands
From the Krumkill Road entrance to Beverwyck Lane. Follow Beverwyck Lane past our usual meeting location. Take a left on Autumn Drive and follow signs to “Main Entrance.”
Find parking. Enter the lobby through the main entrance and find the Van Cortland Room to the left
If the Main Entrance parking lot is full, there is more parking, and a back entrance to the building, in the “North Parking Lot”.  From the Main Entrance, turn right on Autumn Drive. Take the first right to the North Parking Lot, enter the building from the North Entrance, find the Van Cortland Room near the front of the building.

For those not familiar with our usual room, find complete directions here

December 9, 2017 Holiday Get Together

RSVP deadline – Friday December 1st

Please join the Capital District Parkinson’s Support Group for our
Annual  Holiday Get Together
When: Saturday December 9, 2017 1 – 4 PM
Where:  Beverwyck Senior Center (directions)

We will have holiday appetizers and desserts as well as fun activities, gift exchange and music.

Cost: $15 single and $25 for a couple.
If you would like to take part in the gift exchange, please bring a gift valued around $10 or less.

We would prefer that payment be sent prior to the event but payment can also be accepted on the day. You must  advise Ian Wing of your intent to attend and the number attending either by e-mail : iwing5082@hotmail.com or phone 518 794 0237..

Please RSVP by Friday December 1 with check payable to “CD Parkinson’s Support Group”

Mail your check to
Ian Wing
PO Box 360
East Chatham, NY  12060

Membership dues of $15 per family per year will also be collected at the party for those that wish to become official members. Membership is voluntary and is not required to attend this event or other meetings


November 27, 2017 – From Surviving to Thriving: Transforming Your Caregiving Journey – seminar

Plan to attend this free special event for Caregivers

“From Surviving to Thriving: Transforming Your Caregiving Journey”

Is caring for a loved one with Alzheimer’s disease or other dementia taking a toll on your well-being? Learn practical strategies for making your caregiving journey easier and for taking better care of yourself along the way. It really is possible to thrive as a caregiver!

Monday, November 27

6:30 – 8:30 pm

Hearst Media Center

645 Albany-Shaker Road, Albany, Featuring: Amy S. D’Aprix, MSW, PhD, CPCADr.

Amy D’Aprix is a gerontological social worker who is an internationally renowned expert on lifestyle issues relating to caregiving, retirement, aging, and family dynamics. “Dr. Amy”, as she is affectionately known, uses her years of professional experience in working with and on behalf of older adults and their families to give down-to-earth, practical, and professional informed guidance and advice. In addition to her professional and academic experience, Dr. Amy spent a decade caring for her own parents. She has authored the book “From Surviving to Thriving: Transforming Your Caregiving Journey”, and co-recorded a CD with an accompanying workbook: “Building the Bonds of Friendship in Midlife and Beyond”. Reception and light refreshments immediately following the presentation.

This program is free, however, space is limited. Please reserve your seat by Friday, November 17, by calling (518) 238-4164.This program is sponsored by the Alzheimer’s Caregiver Support initiative which is supported by a grant from the New York State Department of Health. www.SPHP.com/ALZCARE


March 8, 2018 – CDPSG Suport Group Meeting Notice

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  In January and February we meet in the afternoon of the second Saturday at 1:30.

When are our meetings?

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

 Topic :
Dr Jennifer Durphy will speak on anxiety and depression in PD

Dr. Jennifer Durphy joined the Movement Disorders Division at Albany  Medical Center in 2012. She completed her neurology residency training at Georgetown University in Washington, DC and went on to complete her fellowship training at Albany Medical Center under the guidance of Dr. Eric Molho. Her fellowship involved an in depth training in the diagnosis and management of the full range of common and rare movement disorders.

She brought this experience and her passion for patient care to the movement disorders clinic where she is accepting new patients with Parkinson’s disease, Hungtington’s disease, tremor, dystonia, restless legs syndrome and tics. She also sees patients one day per week at the Albany Medical Center multispecialty clinic in Malta.

Dr. Durphy’s special interests include the neurosurgical treatment of movement disorders, as well as botulinum toxin injections for dystonia. She explains:

 “The diseases treated in a movement disorders clinic are complex and chronic conditions. It is important to me to take the time to get to know each patient individually and to understand how their condition impacts their life. I use this information to guide me in coming up with the best possible treatment plan for each patient.” 


February 10, 2018 – CDPSG Meeting Notice

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  In January and February we meet in the afternoon of the second Saturday at 1:30.

When are our meetings?

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

 Topic : Steve Hovey – Davis Phinney Foundation Ambassador, will speak about :
A wellness approach to dealing with Parkinson’s – exercise, diet, sleep, mindfulness.
Attitude – staying positive

Steve was diagnosed with Parkinson’s in 2007 at the age of 50. At the time of diagnosis, Steve did not know anyone with Parkinson’s, so he and his wife Nancy took it upon themselves to learn as much as they could about Parkinson’s symptoms and treatment. Their search soon led them to the Davis Phinney Foundation, where they learned about the importance of exercise and a healthy lifestyle, something Steve credits as significantly impacting the quality of life he continues to enjoy.

Now semi-retired, Steve continues to work part-time as a business consultant and is looking forward to sharing the message that “there are things we can do to manage our disease” as an ambassador for the Davis Phinney Foundation. “When I was diagnosed, the focus of the treatment was on medicine. The doctors never mentioned the benefits of dealing with the disease on a more holistic level – exercise, good nutrition and a healthy lifestyle,” Steve says. “Though [things are] getting better, there are still too many people who need to hear this message.”

(more…)


January 13, 2018 – Meeting notice

January 13, 2018

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  In January and February we meet in the afternoon of the second Saturday at 1:30.

When are our meetings?

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

 Topic : Rachelle Smith-Stallman, Dance Through Parkinson’s instructor will talk about (and maybe do some of) our dance class

October 21, 2017 – Hope Soars Gala


Please join us on

Saturday, October 21, 2017 from 6 – 11 for the Hope Soars Gala

at the Franklin Terrace Ballroom

126 Campbell Ave, Troy, NY 12180

The gala will benefit the Christine DiNapoli Parkinson’s Research Fund at Albany Medical Center.

Our fifth annual gala will feature Trishna Begam from News10 ABC as our Master of Ceremonies, a fabulous menu, a silent auction and live entertainment by TS Ensemble. ​​

We look forward to seeing you at the Gala


Register and pay online at the http://www.hopesoars.org/ Hope Soars site

TO PAY BY CHECK,  click  here, print the form and mail to

HOPE SOARS
1410 Maple Hill Road,
Castleton NY 12033.

Make checks payable to Hope Soars

 

 


October 21, 2017 – YOPD Support Group meeting

DATE: MONDAY, October 21, 2017
TIME: 2:00 PM
LOCATION: Good Shepherd Lutheran Church, 510 Albany Shaker Road, Loudonville

Join the YOPD Support Group  for the monthly meeting.

Patients (any age) and caregivers are welcome to attend to learn more about Parkinson’s
disease.

For further information regarding the YOPD, contact:
518-783- 3492 OR 518-371- 0448, after 3:00 p.m.

Mission: The YOPD support group shall welcome everyone with Parkinson’s disease including their care network. YOPD will support, share, and encourage PD persons to enjoy quality of life and ensure they are not alone in their journey. Information/issues obtained by YOPD from attendees will be treated confidentially and privacy respected.


September 25, 2017 – YOPD Support Group meeting at Route 7 Diner

DATE: MONDAY, SEPTEMBER 25, 2017
TIME: 7:00 PM
LOCATION: ROUTE SEVEN DINER, 1090 TROY SCHENECTADY ROAD
LATHAM, NEW YORK (Handicapped Accessible; Ample Parking)

Join the YOPD Support Group September 25, 2017 for the monthly meeting.
Dinner is ordered off the menu (individual bills). Reservations are not required.
Patients (any age) and caregivers are welcome to attend to learn more about Parkinson’s
disease in an informal setting.

For further information regarding the YOPD, contact:
518-783- 3492 OR 518-371- 0448, after 3:00 p.m.
Next Meeting: October 21, 2017

Good Shepherd Lutheran Church, 510 Albany Shaker Road, Loudonville
Mission: The YOPD support group shall welcome everyone with Parkinson’s disease including their care
network. YOPD will support, share, and encourage PD persons to enjoy quality of life and ensure they are not
alone in their journey. Information/issues obtained by YOPD from attendees will be treated confidentially and
privacy respected.


August 10, 2017 – meeting agenda

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  In January and February we meet in the afternoon of the second Saturday at 1:30.

When are our meetings?

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Our topic will be Using Technology to Help Manage Parkinson’s
Presented by Jud Eson


Support Hope Soars – riding from Buffalo to Albany

Donate to Hope Soars using PayPal

Jud Eson is riding his bicycle 391 miles from Buffalo to Albany starting in Buffalo Sunday July 9 and arriving in Albany Sunday July 16.

He takes  a boxing class for people with Parkinson’s disease every Friday at Schotts Boxing.  The class keeps his mind and body in shape and he believes it is partly responsible for delaying the progression of his disease.

That class is sponsored by Hope Soars.  It funds Parkinson’s  awareness, education and research.

Hope Soars does so much for the Albany Parkinson’s community, Jud is dedicating his ride to that organization.

Will you donate 5 cents a mile? 10 cents? More?

Donations can be mailed to
HOPE SOARS 1410 MAPLE HILL ROAD, CASTLETON NY 12033

or you can
Donate to Hope Soars using PayPal

You can follow a running commentary of the ride through pictures and text on the ride site

https://judsbikelog.wordpress.com/


June 23, 2017 – Boxing class

A non-contact boxing fitness class designed for people with Parkinson’s and their caregivers.

The class is taught on Fridays at 10.

Read more here


May 11, 2017 Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Our speaker:
Heintje Calara MA, RN –   Has 25 years of nursing experience. He earned his nursing masters degrees from New York University. Heintje  is currently a candidate of doctoral degree in nursing practice with research project in the nursing care of Parkinson’s disease.
His work has been presented at the 2016 World Parkinson’s Congress (WPC) in Portland, OR, and also at the 2017 American Association of Neuroscience Nurses (AANN) in Boston, MA.
He served as the Parkinson’s disease nurse specialist at the NYU Langone Medical Center movement disorders center for many years and is now the nurse educator for the intestinal levodopa treatment for the northeast region of the US.
At our meeting,
Heintje will speak briefly about the treatment then a patient volunteer partner, who is currently on the intestinal levodopa treatment for Parkinson’s disease, will be sharing his/her own unique account on being on this treatment, what helped him/her decide, barriers overcome, questions asked, and how he/she is living with this treatment. There will be time for questions and answers.
We also will have group planning, refreshments, networking and social time.

March 9, 2017 Beverwyck meeting agenda

Our next meeting is Thursday March 9, 2017

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

Directions to our meeting


Speaker

Dr. Vishad Sukul will present on DBS and his frameless approach.

Dr. Sukul has joined the Department of Neurosurgery at Albany Medical Center, and has been appointed assistant professor of neurosurgery at Albany Medical College. Dr. Sukul is fellowship trained in functional neurosurgery for the treatment of complex neurological conditions such as chronic pain and movement disorders. He has an interest in deep brain stimulation for the treatment of essential tremor, dystonia, and Parkinson’s disease, and performs spinal cord stimulation and other neuromodulation techniques for chronic pain.

Read more about Dr. Sukul


Notes and future events

Support Group Officer changes:

Bruce Plotsky/Barbara Traynor/Tom Stephany are stepping back from their roles of Co-President and Vice President.

Jud Eson and Ian Wing have volunteered to fill these positions. It is with great gratitude from the outgoing officers towards Jud and Ian for taking on this responsibility.

– Hope Soars walk/run April 23 9:00 AM at the Corning Preserve

http://www.hopesoars.org/2017-5k.html

– We have a website http://www.cdparkinsons.org

– Speaker for next month (April 13, 2017) –

Lynda Shrager – safely access and navigate homes – age in place – adaptive equipment.

Lynda is an expert OT and can talk about helpful equipment, home safety, home modifications and more.

Read more about Lynda Shrager

Take the survey – what topics are of interest to you.

 

 

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

 


April 13, 2017 Speaker – safely access and navigate homes – age in place

 April 13, 2017 Monthly Meeting

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

When are our meetings?

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information

Lynda Shrager

Lynda Shrager began navigating through the mystifying maze that is our national health care system on the day, more than 19 years ago, when she and her daughter were simultaneously diagnosed with life-threatening medical conditions. After successfully negotiating the crisis and not losing her sanity along the way, she realized it was her organizing skills that were instrumental in getting her through it all. By the time her mother had been diagnosed with a very aggressive cancer, Lynda had become the expert in organizing the tasks that needed to be tackled to manage a serious illness while simultaneously keeping up with all the other aspects of everyday life. The Organized Caregiver was born.

Lynda Shrager, OTR, MSW, is a breast cancer survivor and the author of Otherwise Healthy® – A Planner to Focus Your Thoughts on Organizing Life after Being Diagnosed with Breast Cancer. Her newspaper column Mom’s Rx, now in its eighth year, is published in the Hearst daily Albany Times Union and has appeared in countless newspapers across the country. For over thirty-three years Lynda has practiced in the medical field of geriatric rehabilitation, focusing on all aspects of senior health and wellness.

Lynda combines her expertise as an occupational therapist, master’s level social worker, professional organizer and aging in place specialist to pursue her passion of providing therapeutic care in the patient’s home environment and in educating their caregivers. To that end she is eagerly launching a new initiative called “At Home for Life” to facilitate a senior’s desire to remain in their own home as they face the crossroads of diminished physical and cognitive abilities. Lynda will provide residential assessments and make recommendations to enable people to safely access and navigate their own homes, thereby allowing them to age in place.

Lynda’s engaging, humorous, and motivational presentation style creates a relaxed and comfortable environment that facilitates the educational process. Lynda shares stories and insight from both a personal and professional perspective to inspire her audience.


October 12, 2017 – Capital District Meeting Notice- speaker will be Dr. Eric Molho

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

When are our meetings?

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Our speaker will be Dr. Eric Molho

Dr. Eric Molho is Director of one of the only comprehensive Movement Disorders and Parkinson’s Disease Centers in New York State. His practice is almost exclusively devoted to treating Parkinson’s disease, tremor, and dystonia, as well as other movement disorders. Dr. Molho has served as the principal investigator on numerous clinical trials for Parkinson’s disease, enabling him to offer the most advanced treatments and knowledge to his patients. He is also uniquely skilled and experienced in botulinium injections for dystonia, providing patients with optimum results. Patients value his comprehensive and compassionate approach: “The best that I can offer is my time and expertise,” explains Dr. Molho. “These are complex cases and I feel it’s important to take the time to distinguish each individual patient’s needs, tolerance for medication and lifestyle in order to ensure the best treatment outcomes.”
Dr. Molho is a graduate of Albany Medical College where he currently serves as a professor of neurology and the Riley Family Chair in Parkinson’s Disease. At Albany Medical Center, he completed his residency in neurology and a fellowship in movement disorders with Dr. Stewart Factor. He has served as the co-director of the Tardive Dyskinesia Clinic and Huntington’s Disease Comprehensive Care Center, as well as the course director of the 2nd year clinical neurosciences course at Albany Medical College. As an active member of the American Academy of Neurology and Movement Disorders Society, Parkinson Study Group, Huntington Study Group and Dystonia Study Group, Dr. Molho is undoubtedly a leader in his field uncovering medical breakthroughs and providing exceptional patient care.


September 14,2017 – meeting notice- Mary Piel will talk about (and do some of) LSVT BIG

September 14, 2017

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

When are our meetings?

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Topic

Mary Piel  will talk about (and do some of) LSVT BIG

She is an occupational therapist at Sunnyview Rehabilitation Hospital. She is certified in LSVT BIG which is a nationally recognized treatment for patient’s with Parkinson’s. Sunnyview has several therapist that are certified in LSVT BIG and they have also begun a Wellness Program for patient’s with Parkinson’s.

Notes


November 9, 2017 – Meeting Notice

Join the Capital District Parkinson’s Support Group for the monthly meeting. on Thursday November 9, 2017 at 7 PM at the Beverwyck Senior Center located at 40 Autumn Dr, Slingerlands, NY 12159

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months. See www.cdparkinsons.org for directions and more information.

Patients, spouses, family members, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

 Topic : Open discussion about living with PD.
We will separate into two groups with people with Parkinson in one group and caregivers in another. Facilitators will lead the discussions.  We will talk about positive ways to address the every day challenges of life with the disorder.

July 13, 2017 – meeting Cancelled

July 13, 2017  Meeting Cancelled

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Picnic

June 8, 2017 Beverwyck Meeting agenda


Join the CDPSG Support Group for our monthly meeting.

Karen Wood from PharmaCannis will speak about

Medical marijuana

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Read about medical marijuana here

About Vishad Sukul, M.D.

Dr. Sukul is fellowship trained in functional neurosurgery for the treatment of complex neurological conditions such as chronic pain and movement disorders. He has a particular interest in deep brain stimulation for the treatment of essential tremor, dystonia, and Parkinson’s disease, and also performs spinal cord stimulation and other neuromodulation techniques for chronic pain. Additionally, he practices general cranial and spine neurosurgery.

Dr. Sukul completed his fellowship training in stereotactic, functional and epilepsy neurosurgery at Vanderbilt University Medical Center in Nashville, TN, and his neurosurgery residency training at Temple University Hospital in Philadelphia, PA. He received his medical degree from Rutgers New Jersey Medical School. t Albany Medical College.

Dr. Sukul is fellowship trained in functional neurosurgery for the treatment of complex neurological conditions such as chronic pain and movement disorders. He has a particular interest in deep brain stimulation for the treatment of essential tremor, dystonia, and Parkinson’s disease, and also performs spinal cord stimulation and other neuromodulation techniques for chronic pain. Additionally, he practices general cranial and spine neurosurgery.

Dr. Sukul completed his fellowship training in stereotactic, functional and epilepsy neurosurgery at Vanderbilt University Medical Center in Nashville, TN, and his neurosurgery residency training at Temple University Hospital in Philadelphia, PA. He received his medical degree from Rutgers New Jersey Medical School. He is active in clinical research.


November 10, 2016 – Meeting agenda and minutes

November 10, 2016 7:00-900 p.m.

Program: Tips from Physical and Occupational Therapists provided by Noto Physical Therapy. Refreshments: Susan Thomas.

Agenda for Business meeting at 8:00:

Discussion of December  elections, current email addresses, Holiday Party. Dues of $15 (per couple/individual) are due. The dollars go to programs / picnics / parties / and literature. Please pay to Sylvia, our Treasurer, at the November meeting.

Notes and minutes from the meeting 


September 8, 2016 – Meeting agenda and minutes

September 8, 2016

Program: Dr Molho will be speaking at 7:30 on Diet & Parkinson’s + Q&A.
Refreshments: Helen Harris
Agenda for Business meeting at 7:00: Discussion of: Fall programs, up-coming December elections, current email addresses, Holiday Party, to stipend or not to stipend, + Q&A.