Past Events


December 9, 2017 Holiday Get Together

RSVP deadline – Friday December 1st

Please join the Capital District Parkinson’s Support Group for our
Annual  Holiday Get Together
When: Saturday December 9, 2017 1 – 4 PM
Where:  Beverwyck Senior Center (directions)

We will have holiday appetizers and desserts as well as fun activities, gift exchange and music.

Cost: $15 single and $25 for a couple.
If you would like to take part in the gift exchange, please bring a gift valued around $10 or less.

We would prefer that payment be sent prior to the event but payment can also be accepted on the day. You must  advise Ian Wing of your intent to attend and the number attending either by e-mail : iwing5082@hotmail.com or phone 518 794 0237..

Please RSVP by Friday December 1 with check payable to “CD Parkinson’s Support Group”

Mail your check to
Ian Wing
PO Box 360
East Chatham, NY  12060

Membership dues of $15 per family per year will also be collected at the party for those that wish to become official members. Membership is voluntary and is not required to attend this event or other meetings


November 27, 2017 – From Surviving to Thriving: Transforming Your Caregiving Journey – seminar

Plan to attend this free special event for Caregivers

“From Surviving to Thriving: Transforming Your Caregiving Journey”

Is caring for a loved one with Alzheimer’s disease or other dementia taking a toll on your well-being? Learn practical strategies for making your caregiving journey easier and for taking better care of yourself along the way. It really is possible to thrive as a caregiver!

Monday, November 27

6:30 – 8:30 pm

Hearst Media Center

645 Albany-Shaker Road, Albany, Featuring: Amy S. D’Aprix, MSW, PhD, CPCADr.

Amy D’Aprix is a gerontological social worker who is an internationally renowned expert on lifestyle issues relating to caregiving, retirement, aging, and family dynamics. “Dr. Amy”, as she is affectionately known, uses her years of professional experience in working with and on behalf of older adults and their families to give down-to-earth, practical, and professional informed guidance and advice. In addition to her professional and academic experience, Dr. Amy spent a decade caring for her own parents. She has authored the book “From Surviving to Thriving: Transforming Your Caregiving Journey”, and co-recorded a CD with an accompanying workbook: “Building the Bonds of Friendship in Midlife and Beyond”. Reception and light refreshments immediately following the presentation.

This program is free, however, space is limited. Please reserve your seat by Friday, November 17, by calling (518) 238-4164.This program is sponsored by the Alzheimer’s Caregiver Support initiative which is supported by a grant from the New York State Department of Health. www.SPHP.com/ALZCARE


October 21, 2017 – Hope Soars Gala


Please join us on

Saturday, October 21, 2017 from 6 – 11 for the Hope Soars Gala

at the Franklin Terrace Ballroom

126 Campbell Ave, Troy, NY 12180

The gala will benefit the Christine DiNapoli Parkinson’s Research Fund at Albany Medical Center.

Our fifth annual gala will feature Trishna Begam from News10 ABC as our Master of Ceremonies, a fabulous menu, a silent auction and live entertainment by TS Ensemble. ​​

We look forward to seeing you at the Gala


Register and pay online at the http://www.hopesoars.org/ Hope Soars site

TO PAY BY CHECK,  click  here, print the form and mail to

HOPE SOARS
1410 Maple Hill Road,
Castleton NY 12033.

Make checks payable to Hope Soars

 

 


October 21, 2017 – YOPD Support Group meeting

DATE: MONDAY, October 21, 2017
TIME: 2:00 PM
LOCATION: Good Shepherd Lutheran Church, 510 Albany Shaker Road, Loudonville

Join the YOPD Support Group  for the monthly meeting.

Patients (any age) and caregivers are welcome to attend to learn more about Parkinson’s
disease.

For further information regarding the YOPD, contact:
518-783- 3492 OR 518-371- 0448, after 3:00 p.m.

Mission: The YOPD support group shall welcome everyone with Parkinson’s disease including their care network. YOPD will support, share, and encourage PD persons to enjoy quality of life and ensure they are not alone in their journey. Information/issues obtained by YOPD from attendees will be treated confidentially and privacy respected.


September 25, 2017 – YOPD Support Group meeting at Route 7 Diner

DATE: MONDAY, SEPTEMBER 25, 2017
TIME: 7:00 PM
LOCATION: ROUTE SEVEN DINER, 1090 TROY SCHENECTADY ROAD
LATHAM, NEW YORK (Handicapped Accessible; Ample Parking)

Join the YOPD Support Group September 25, 2017 for the monthly meeting.
Dinner is ordered off the menu (individual bills). Reservations are not required.
Patients (any age) and caregivers are welcome to attend to learn more about Parkinson’s
disease in an informal setting.

For further information regarding the YOPD, contact:
518-783- 3492 OR 518-371- 0448, after 3:00 p.m.
Next Meeting: October 21, 2017

Good Shepherd Lutheran Church, 510 Albany Shaker Road, Loudonville
Mission: The YOPD support group shall welcome everyone with Parkinson’s disease including their care
network. YOPD will support, share, and encourage PD persons to enjoy quality of life and ensure they are not
alone in their journey. Information/issues obtained by YOPD from attendees will be treated confidentially and
privacy respected.


August 10, 2017 – meeting agenda

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  In January and February we meet in the afternoon of the second Saturday at 1:30.

When are our meetings?

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Our topic will be Using Technology to Help Manage Parkinson’s
Presented by Jud Eson


Support Hope Soars – riding from Buffalo to Albany

Donate to Hope Soars using PayPal

Jud Eson is riding his bicycle 391 miles from Buffalo to Albany starting in Buffalo Sunday July 9 and arriving in Albany Sunday July 16.

He takes  a boxing class for people with Parkinson’s disease every Friday at Schotts Boxing.  The class keeps his mind and body in shape and he believes it is partly responsible for delaying the progression of his disease.

That class is sponsored by Hope Soars.  It funds Parkinson’s  awareness, education and research.

Hope Soars does so much for the Albany Parkinson’s community, Jud is dedicating his ride to that organization.

Will you donate 5 cents a mile? 10 cents? More?

Donations can be mailed to
HOPE SOARS 1410 MAPLE HILL ROAD, CASTLETON NY 12033

or you can
Donate to Hope Soars using PayPal

You can follow a running commentary of the ride through pictures and text on the ride site

https://judsbikelog.wordpress.com/


June 23, 2017 – Boxing class

A non-contact boxing fitness class designed for people with Parkinson’s and their caregivers.

The class is taught on Fridays at 10.

Read more here


May 11, 2017 Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Our speaker:
Heintje Calara MA, RN –   Has 25 years of nursing experience. He earned his nursing masters degrees from New York University. Heintje  is currently a candidate of doctoral degree in nursing practice with research project in the nursing care of Parkinson’s disease.
His work has been presented at the 2016 World Parkinson’s Congress (WPC) in Portland, OR, and also at the 2017 American Association of Neuroscience Nurses (AANN) in Boston, MA.
He served as the Parkinson’s disease nurse specialist at the NYU Langone Medical Center movement disorders center for many years and is now the nurse educator for the intestinal levodopa treatment for the northeast region of the US.
At our meeting,
Heintje will speak briefly about the treatment then a patient volunteer partner, who is currently on the intestinal levodopa treatment for Parkinson’s disease, will be sharing his/her own unique account on being on this treatment, what helped him/her decide, barriers overcome, questions asked, and how he/she is living with this treatment. There will be time for questions and answers.
We also will have group planning, refreshments, networking and social time.

March 9, 2017 Beverwyck meeting agenda

Our next meeting is Thursday March 9, 2017

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

Directions to our meeting


Speaker

Dr. Vishad Sukul will present on DBS and his frameless approach.

Dr. Sukul has joined the Department of Neurosurgery at Albany Medical Center, and has been appointed assistant professor of neurosurgery at Albany Medical College. Dr. Sukul is fellowship trained in functional neurosurgery for the treatment of complex neurological conditions such as chronic pain and movement disorders. He has an interest in deep brain stimulation for the treatment of essential tremor, dystonia, and Parkinson’s disease, and performs spinal cord stimulation and other neuromodulation techniques for chronic pain.

Read more about Dr. Sukul


Notes and future events

Support Group Officer changes:

Bruce Plotsky/Barbara Traynor/Tom Stephany are stepping back from their roles of Co-President and Vice President.

Jud Eson and Ian Wing have volunteered to fill these positions. It is with great gratitude from the outgoing officers towards Jud and Ian for taking on this responsibility.

– Hope Soars walk/run April 23 9:00 AM at the Corning Preserve

http://www.hopesoars.org/2017-5k.html

– We have a website http://www.cdparkinsons.org

– Speaker for next month (April 13, 2017) –

Lynda Shrager – safely access and navigate homes – age in place – adaptive equipment.

Lynda is an expert OT and can talk about helpful equipment, home safety, home modifications and more.

Read more about Lynda Shrager

Take the survey – what topics are of interest to you.

 

 

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

 


April 13, 2017 Speaker – safely access and navigate homes – age in place

 April 13, 2017 Monthly Meeting

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

When are our meetings?

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information

Lynda Shrager

Lynda Shrager began navigating through the mystifying maze that is our national health care system on the day, more than 19 years ago, when she and her daughter were simultaneously diagnosed with life-threatening medical conditions. After successfully negotiating the crisis and not losing her sanity along the way, she realized it was her organizing skills that were instrumental in getting her through it all. By the time her mother had been diagnosed with a very aggressive cancer, Lynda had become the expert in organizing the tasks that needed to be tackled to manage a serious illness while simultaneously keeping up with all the other aspects of everyday life. The Organized Caregiver was born.

Lynda Shrager, OTR, MSW, is a breast cancer survivor and the author of Otherwise Healthy® – A Planner to Focus Your Thoughts on Organizing Life after Being Diagnosed with Breast Cancer. Her newspaper column Mom’s Rx, now in its eighth year, is published in the Hearst daily Albany Times Union and has appeared in countless newspapers across the country. For over thirty-three years Lynda has practiced in the medical field of geriatric rehabilitation, focusing on all aspects of senior health and wellness.

Lynda combines her expertise as an occupational therapist, master’s level social worker, professional organizer and aging in place specialist to pursue her passion of providing therapeutic care in the patient’s home environment and in educating their caregivers. To that end she is eagerly launching a new initiative called “At Home for Life” to facilitate a senior’s desire to remain in their own home as they face the crossroads of diminished physical and cognitive abilities. Lynda will provide residential assessments and make recommendations to enable people to safely access and navigate their own homes, thereby allowing them to age in place.

Lynda’s engaging, humorous, and motivational presentation style creates a relaxed and comfortable environment that facilitates the educational process. Lynda shares stories and insight from both a personal and professional perspective to inspire her audience.


October 12, 2017 – Capital District Meeting Notice- speaker will be Dr. Eric Molho

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

When are our meetings?

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Our speaker will be Dr. Eric Molho

Dr. Eric Molho is Director of one of the only comprehensive Movement Disorders and Parkinson’s Disease Centers in New York State. His practice is almost exclusively devoted to treating Parkinson’s disease, tremor, and dystonia, as well as other movement disorders. Dr. Molho has served as the principal investigator on numerous clinical trials for Parkinson’s disease, enabling him to offer the most advanced treatments and knowledge to his patients. He is also uniquely skilled and experienced in botulinium injections for dystonia, providing patients with optimum results. Patients value his comprehensive and compassionate approach: “The best that I can offer is my time and expertise,” explains Dr. Molho. “These are complex cases and I feel it’s important to take the time to distinguish each individual patient’s needs, tolerance for medication and lifestyle in order to ensure the best treatment outcomes.”
Dr. Molho is a graduate of Albany Medical College where he currently serves as a professor of neurology and the Riley Family Chair in Parkinson’s Disease. At Albany Medical Center, he completed his residency in neurology and a fellowship in movement disorders with Dr. Stewart Factor. He has served as the co-director of the Tardive Dyskinesia Clinic and Huntington’s Disease Comprehensive Care Center, as well as the course director of the 2nd year clinical neurosciences course at Albany Medical College. As an active member of the American Academy of Neurology and Movement Disorders Society, Parkinson Study Group, Huntington Study Group and Dystonia Study Group, Dr. Molho is undoubtedly a leader in his field uncovering medical breakthroughs and providing exceptional patient care.


September 14,2017 – meeting notice- Mary Piel will talk about (and do some of) LSVT BIG

September 14, 2017

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

When are our meetings?

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Topic

Mary Piel  will talk about (and do some of) LSVT BIG

She is an occupational therapist at Sunnyview Rehabilitation Hospital. She is certified in LSVT BIG which is a nationally recognized treatment for patient’s with Parkinson’s. Sunnyview has several therapist that are certified in LSVT BIG and they have also begun a Wellness Program for patient’s with Parkinson’s.

Notes


November 9, 2017 – Meeting Notice

Join the Capital District Parkinson’s Support Group for the monthly meeting. on Thursday November 9, 2017 at 7 PM at the Beverwyck Senior Center located at 40 Autumn Dr, Slingerlands, NY 12159

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months. See www.cdparkinsons.org for directions and more information.

Patients, spouses, family members, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

 Topic : Open discussion about living with PD.
We will separate into two groups with people with Parkinson in one group and caregivers in another. Facilitators will lead the discussions.  We will talk about positive ways to address the every day challenges of life with the disorder.

July 13, 2017 – meeting Cancelled

July 13, 2017  Meeting Cancelled

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Picnic

June 8, 2017 Beverwyck Meeting agenda


Join the CDPSG Support Group for our monthly meeting.

Karen Wood from PharmaCannis will speak about

Medical marijuana

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Read about medical marijuana here

About Vishad Sukul, M.D.

Dr. Sukul is fellowship trained in functional neurosurgery for the treatment of complex neurological conditions such as chronic pain and movement disorders. He has a particular interest in deep brain stimulation for the treatment of essential tremor, dystonia, and Parkinson’s disease, and also performs spinal cord stimulation and other neuromodulation techniques for chronic pain. Additionally, he practices general cranial and spine neurosurgery.

Dr. Sukul completed his fellowship training in stereotactic, functional and epilepsy neurosurgery at Vanderbilt University Medical Center in Nashville, TN, and his neurosurgery residency training at Temple University Hospital in Philadelphia, PA. He received his medical degree from Rutgers New Jersey Medical School. t Albany Medical College.

Dr. Sukul is fellowship trained in functional neurosurgery for the treatment of complex neurological conditions such as chronic pain and movement disorders. He has a particular interest in deep brain stimulation for the treatment of essential tremor, dystonia, and Parkinson’s disease, and also performs spinal cord stimulation and other neuromodulation techniques for chronic pain. Additionally, he practices general cranial and spine neurosurgery.

Dr. Sukul completed his fellowship training in stereotactic, functional and epilepsy neurosurgery at Vanderbilt University Medical Center in Nashville, TN, and his neurosurgery residency training at Temple University Hospital in Philadelphia, PA. He received his medical degree from Rutgers New Jersey Medical School. He is active in clinical research.


November 10, 2016 – Meeting agenda and minutes

November 10, 2016 7:00-900 p.m.

Program: Tips from Physical and Occupational Therapists provided by Noto Physical Therapy. Refreshments: Susan Thomas.

Agenda for Business meeting at 8:00:

Discussion of December  elections, current email addresses, Holiday Party. Dues of $15 (per couple/individual) are due. The dollars go to programs / picnics / parties / and literature. Please pay to Sylvia, our Treasurer, at the November meeting.

Notes and minutes from the meeting 


September 8, 2016 – Meeting agenda and minutes

September 8, 2016

Program: Dr Molho will be speaking at 7:30 on Diet & Parkinson’s + Q&A.
Refreshments: Helen Harris
Agenda for Business meeting at 7:00: Discussion of: Fall programs, up-coming December elections, current email addresses, Holiday Party, to stipend or not to stipend, + Q&A.