Past Events


July 26, 2017 -Online Lecture to Address Sexuality in People with Parkinson’s and Other Chronic Ills

Tuppy Owens, a sex therapist who works and advocates on behalf of the disabled, will hold an online lecture on July 26 focusing on sexuality in the context of chronic conditions, including Parkinson’s disease, and how patients and caregivers can best enjoy this aspect of their lives.

Read more

https://parkinsonsnewstoday.com/2017/07/18/online-lecture-to-address-sexuality-intimacy-in-parkinsons-patients/


August 10, 2017 – meeting agenda

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Our topic will be Using Technology to Help Manage Parkinson’s
Presented by Jud Eson


Support Hope Soars – riding from Buffalo to Albany

Donate to Hope Soars using PayPal

Jud Eson is riding his bicycle 391 miles from Buffalo to Albany starting in Buffalo Sunday July 9 and arriving in Albany Sunday July 16.

He takes  a boxing class for people with Parkinson’s disease every Friday at Schotts Boxing.  The class keeps his mind and body in shape and he believes it is partly responsible for delaying the progression of his disease.

That class is sponsored by Hope Soars.  It funds Parkinson’s  awareness, education and research.

Hope Soars does so much for the Albany Parkinson’s community, Jud is dedicating his ride to that organization.

Will you donate 5 cents a mile? 10 cents? More?

Donations can be mailed to
HOPE SOARS 1410 MAPLE HILL ROAD, CASTLETON NY 12033

or you can
Donate to Hope Soars using PayPal

You can follow a running commentary of the ride through pictures and text on the ride site

https://judsbikelog.wordpress.com/


August 19, 2017 – YOPD (Annual Picnic)

 

 

For further information regarding the YOPD, contact:

 

518-783-3492 OR 518-371-0448, after 3:00 p.m.

 

Meeting:  Saturday, August 19, 2017 (Annual Picnic)

Good Shepherd Lutheran Church, 510 Albany Shaker Road, Loudonville

More information to follow

Mission:  The YOPD support group shall welcome everyone with Parkinson’s disease including their care network.  YOPD will support, share, and encourage PD persons to enjoy quality of life and ensure they are not alone in their journey.  Information/issues obtained by YOPD from attendees will be treated confidentially and privacy respected.    

 

 

 


June 23, 2017 – Boxing class

A non-contact boxing fitness class designed for people with Parkinson’s and their caregivers.

The class is taught on Fridays at 10.

Read more here


June 28, 2017 – Schenectady County Support Group

Schenectady County:
Monthly, 4th Wednesday 2:00 – 4:00 PM, November and December 3rd Wednesday 2:00 – 4:00 PM
Congregation Agudat Achim, 2117 Union Street, Schenectady, NY 12309
Contact: Barby Harris (518) 346-5779 Home (518) 522-6245 Cell
barbyandstan2116@gmail.com

 

Schenectady County Meeting: June 28th at 2 PM. Kyle J. Guay, PharmD, Clinical Pharmacist, from Capital Care would appreciate having questions before the meeting so he can come with answers to our questions. Send them to Barbie at barbyandstan2116@gmail.com 

***Please note the meeting location has changed to Congregation Agudat Achim, 2117 Union Street, Schenectady, NY 12309


June 15, 2017 – Challenges and Treatment of Young-Onset Parkinson’s – on-line seminar 

Challenges and Treatment of Young-Onset Parkinson’s Disease

People diagnosed with Parkinson’s disease before age 50 (young-onset PD) face unique challenges around work and family and may take different approaches to treatment. Our patient and clinician panelists will discuss the experience of and care for YOPD.

Title: Challenges and Treatment of Young-Onset Parkinson’s Disease

Date: June 15, 2017

Time: 12:00 PM Eastern Time

Duration: 1 hour

Thursday, June 15, 12 to 1 p.m. ET

Register here


July 24, 2017 – YOPD Dinner

MEETING

YOUNG ONSET PARKINSON’S DISEASE (YOPD) SUPPORT GROUP

DATE: MONDAY, JULY 24, 2017

TIME:    7:00 PM

LOCATION: ROUTE SEVEN DINER, 1090 TROY SCHENECTADY ROAD   

                          LATHAM, NEW YORK (Handicapped Accessible; Ample Parking)

 

Join the YOPD Support Group July 24, 2017 for the monthly meeting.

 

Dinner is ordered off the menu (individual bills).  Reservations are not required.  Patients (any age) and caregivers are welcome to attend to learn more about Parkinson’s disease in an informal setting.   

 

For further information regarding the YOPD, contact:

 

518-783-3492 OR 518-371-0448, after 3:00 p.m.

 

Next Meeting:  Saturday, August 19, 2017 (Annual Picnic)

Good Shepherd Lutheran Church, 510 Albany Shaker Road, Loudonville

 

Mission:  The YOPD support group shall welcome everyone with Parkinson’s disease including their care network.  YOPD will support, share, and encourage PD persons to enjoy quality of life and ensure they are not alone in their journey.  Information/issues obtained by YOPD from attendees will be treated confidentially and privacy respected.    

 


August 4, 2017 – Hope Soars day at the races

Fri, August 4, 12pm – 6pm
Where

Saratoga Race Course, 267 Union Ave, Saratoga Springs, NY 12866

267 Union Ave, Saratoga Springs, NY 12866

https://goo.gl/maps/mKGi5qnw2kF2

Description

We will have a community event booth near the picnic area to raise awareness for Parkinson’s research and local Parkinson’s programs.


May 24, 2017 – Schenectady County Meeting

Schenectady County Meeting: May 24, 2017 at 2 PM.

Bernie Elwood from Spikes Trikes will bring a trike for anyone interested in trying to ride a trike. It is a great way to exercise outdoors.

***Please note the meeting location has changed to Congregation Agudat Achim, 2117 Union Street, Schenectady, NY 12309


May 11, 2017 Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Our speaker:
Heintje Calara MA, RN –   Has 25 years of nursing experience. He earned his nursing masters degrees from New York University. Heintje  is currently a candidate of doctoral degree in nursing practice with research project in the nursing care of Parkinson’s disease.
His work has been presented at the 2016 World Parkinson’s Congress (WPC) in Portland, OR, and also at the 2017 American Association of Neuroscience Nurses (AANN) in Boston, MA.
He served as the Parkinson’s disease nurse specialist at the NYU Langone Medical Center movement disorders center for many years and is now the nurse educator for the intestinal levodopa treatment for the northeast region of the US.
At our meeting,
Heintje will speak briefly about the treatment then a patient volunteer partner, who is currently on the intestinal levodopa treatment for Parkinson’s disease, will be sharing his/her own unique account on being on this treatment, what helped him/her decide, barriers overcome, questions asked, and how he/she is living with this treatment. There will be time for questions and answers.
We also will have group planning, refreshments, networking and social time.

May 18, 2017 – Sleeping Well with Parkinson’s – on line discussion

Hear expert discussion, and ask questions in MJ Fox Foundation Third Thursdays Webinar series.

Sleep disturbances are a common non-motor symptom of Parkinson’s disease that may cause difficulty falling or staying asleep. In this webinar, we’ll discuss sleep disorders that can occur in Parkinson’s, how to manage them and current research on sleep and PD.

Title: Sleeping Well with Parkinson’s

Date: Thursday, May 18, 2017

Time: 12:00 PM Eastern Time

Duration: 1 hour


March 9, 2017 Beverwyck meeting agenda

Our next meeting is Thursday March 9, 2017

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

Directions to our meeting


Speaker

Dr. Vishad Sukul will present on DBS and his frameless approach.

Dr. Sukul has joined the Department of Neurosurgery at Albany Medical Center, and has been appointed assistant professor of neurosurgery at Albany Medical College. Dr. Sukul is fellowship trained in functional neurosurgery for the treatment of complex neurological conditions such as chronic pain and movement disorders. He has an interest in deep brain stimulation for the treatment of essential tremor, dystonia, and Parkinson’s disease, and performs spinal cord stimulation and other neuromodulation techniques for chronic pain.

Read more about Dr. Sukul


Notes and future events

Support Group Officer changes:

Bruce Plotsky/Barbara Traynor/Tom Stephany are stepping back from their roles of Co-President and Vice President.

Jud Eson and Ian Wing have volunteered to fill these positions. It is with great gratitude from the outgoing officers towards Jud and Ian for taking on this responsibility.

– Hope Soars walk/run April 23 9:00 AM at the Corning Preserve

http://www.hopesoars.org/2017-5k.html

– We have a website http://www.cdparkinsons.org

– Speaker for next month (April 13, 2017) –

Lynda Shrager – safely access and navigate homes – age in place – adaptive equipment.

Lynda is an expert OT and can talk about helpful equipment, home safety, home modifications and more.

Read more about Lynda Shrager

Take the survey – what topics are of interest to you.

 

 

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

 


April 13, 2017 Speaker – safely access and navigate homes – age in place

 April 13, 2017 Monthly Meeting

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information

Lynda Shrager

Lynda Shrager began navigating through the mystifying maze that is our national health care system on the day, more than 19 years ago, when she and her daughter were simultaneously diagnosed with life-threatening medical conditions. After successfully negotiating the crisis and not losing her sanity along the way, she realized it was her organizing skills that were instrumental in getting her through it all. By the time her mother had been diagnosed with a very aggressive cancer, Lynda had become the expert in organizing the tasks that needed to be tackled to manage a serious illness while simultaneously keeping up with all the other aspects of everyday life. The Organized Caregiver was born.

Lynda Shrager, OTR, MSW, is a breast cancer survivor and the author of Otherwise Healthy® – A Planner to Focus Your Thoughts on Organizing Life after Being Diagnosed with Breast Cancer. Her newspaper column Mom’s Rx, now in its eighth year, is published in the Hearst daily Albany Times Union and has appeared in countless newspapers across the country. For over thirty-three years Lynda has practiced in the medical field of geriatric rehabilitation, focusing on all aspects of senior health and wellness.

Lynda combines her expertise as an occupational therapist, master’s level social worker, professional organizer and aging in place specialist to pursue her passion of providing therapeutic care in the patient’s home environment and in educating their caregivers. To that end she is eagerly launching a new initiative called “At Home for Life” to facilitate a senior’s desire to remain in their own home as they face the crossroads of diminished physical and cognitive abilities. Lynda will provide residential assessments and make recommendations to enable people to safely access and navigate their own homes, thereby allowing them to age in place.

Lynda’s engaging, humorous, and motivational presentation style creates a relaxed and comfortable environment that facilitates the educational process. Lynda shares stories and insight from both a personal and professional perspective to inspire her audience.


July 13, 2017 – meeting Cancelled

July 13, 2017  Meeting Cancelled

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Picnic

June 8, 2017 Beverwyck Meeting agenda


Join the CDPSG Support Group for our monthly meeting.

Karen Wood from PharmaCannis will speak about

Medical marijuana

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of every month at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  No meetings in January and February.

There will be networking.  Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

Read about medical marijuana here

About Vishad Sukul, M.D.

Dr. Sukul is fellowship trained in functional neurosurgery for the treatment of complex neurological conditions such as chronic pain and movement disorders. He has a particular interest in deep brain stimulation for the treatment of essential tremor, dystonia, and Parkinson’s disease, and also performs spinal cord stimulation and other neuromodulation techniques for chronic pain. Additionally, he practices general cranial and spine neurosurgery.

Dr. Sukul completed his fellowship training in stereotactic, functional and epilepsy neurosurgery at Vanderbilt University Medical Center in Nashville, TN, and his neurosurgery residency training at Temple University Hospital in Philadelphia, PA. He received his medical degree from Rutgers New Jersey Medical School. t Albany Medical College.

Dr. Sukul is fellowship trained in functional neurosurgery for the treatment of complex neurological conditions such as chronic pain and movement disorders. He has a particular interest in deep brain stimulation for the treatment of essential tremor, dystonia, and Parkinson’s disease, and also performs spinal cord stimulation and other neuromodulation techniques for chronic pain. Additionally, he practices general cranial and spine neurosurgery.

Dr. Sukul completed his fellowship training in stereotactic, functional and epilepsy neurosurgery at Vanderbilt University Medical Center in Nashville, TN, and his neurosurgery residency training at Temple University Hospital in Philadelphia, PA. He received his medical degree from Rutgers New Jersey Medical School. He is active in clinical research.


November 10, 2016 – Meeting agenda and minutes

November 10, 2016 7:00-900 p.m.

Program: Tips from Physical and Occupational Therapists provided by Noto Physical Therapy. Refreshments: Susan Thomas.

Agenda for Business meeting at 8:00:

Discussion of December  elections, current email addresses, Holiday Party. Dues of $15 (per couple/individual) are due. The dollars go to programs / picnics / parties / and literature. Please pay to Sylvia, our Treasurer, at the November meeting.

Notes and minutes from the meeting 


September 8, 2016 – Meeting agenda and minutes

September 8, 2016

Program: Dr Molho will be speaking at 7:30 on Diet & Parkinson’s + Q&A.
Refreshments: Helen Harris
Agenda for Business meeting at 7:00: Discussion of: Fall programs, up-coming December elections, current email addresses, Holiday Party, to stipend or not to stipend, + Q&A.