Category Archives: Health and Wellness

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See videos of Parkinson’s dance classes

Video of classes conducted at Canada National Ballet School


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Parkinson’s Patients Could Dance Their Way to Better Health

A recent article in the Harvard Gazette suggests dance as a potential treatment for neurodegenerative disorders such as Parkinson’s disease (PD).

Imaging studies have identified several brain regions involved in the complex, rhythmical, and coordinated movements that constitute dance. The motor cortex is — as with other kinds of voluntary movement — involved in planning, controlling, and executing dance moves.

Read more


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Making exercise fun through drumming

For senior citizens, a good way to get some exercise is through group fitness classe






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April 19, 2017: Community Dance PD Program

A Free Movement Class
for persons with Parkinson’s
and their families, friends and care partners

Wednesday, April 19 1:00 to 2:30 pm
The Rudy A. Ciccotti Family Recreation Center at The Crossings in Colonie
30 Aviation Road Albany, NY 12205

Class is offered free of charge and is led by founding teacher John Heginbotham and teaching artists from Dance Heginbotham.

For more information and to RSVP for the class, contact the UAAlbany {erforming Arts Center at (518) 442-3995 or PAC@albany.edu

About Dance for PD® – The award-winning Dance for PD® program, celebrating its 15th anniversary, invites people with Parkinson’s and their families in more than 120 communities and 16 countries to experience the joys and benefits of dance while creatively addressing symptom-specific concerns related to balance, cognition, motor skill, depression and physical confidence. This popular class, originally developed by the Mark Morris Dance Group, is appropriate for anyone with PD, no matter how advanced. No dance experience is required. In chairs, at a barre or moving across the floor, you will explore various styles of movement in a safe, non-pressured, social environment in which live music energizes, enriches and empowers. Please visit www.danceforpd.org for more information.

“The music and movement started, I was filled with great joy. I was able to take the whole class and walked out feeling accomplished. I saw the endless possibilities for those with Parkinson’s and for myself.”—Dance for PD® student

This workshop is offered in conjunction to Dance Heginbotham’s residency at the UAlbany Performing Arts Center from April 17-20, 2017. The company will culminate the residency with a performance on Thursday, April 20 at 7:30pm. For performance info & tickets, contact the UAlbany Performing Art Center’s box office at (518) 442-3997.

Get printable flyer here


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Online video gallery

Category : Health and Wellness

Partners in Parkinson’s has opened a video gallery online to help educate people about the disease and to support services to Parkinson’s patients worldwide. The group is also planning to host information events in two U.S. cities this year.

The gallery’s aim is to bring essential information to patients that can help improve their care at every stage of Parkinson’s. The events carry a more personal touch.

“I feel more comfortable . . . more knowledgeable, more connected and more hopeful,” said a  participant at a New York event in 2016. “Thank you for a powerful day.”

This year, the live events that bring information, educational tools and resources to patients will be in Grand Rapids, Michigan, and Orlando, Florida, according to a press release.

Online video gallery

The online gallery at the Partners in Parkinson’s website can be accessed at any time.

Its videos include stories by Parkinson’s patients and caregivers, and talks with healthcare professionals and researchers working on the disease.

 


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Art Therapy and Parkinson’s Disease

Find Pleasure: Art making should be enjoyable. There is no such thing as a “wrong” mark. Every expression is valid.

Experience Control: Art making is an activity in which the artist can experience choice (through color, medium, line, etc.) and control over one’s environment.

Value Individuality: Free creation can encourage spontaneity which can, in turn, improve confidence.

Express Oneself: An experience of slowed speech or flat affect can limit one’s ability to communicate. Art is another language for communication which can be done at the artist’s own pace.

Relax: Art making has been proven to lower blood pressure, reduce perseverative thoughts, and lift depression. 

Improve Flow in Mind/Body Connection: In a relaxed state when focus is on the artistic expression rather than on the physical movement itself, motion can become more fluid. 

Promote Concentration, Memory, Executive Functions, Improve Hand-eye Coordination: Art making increases bilateral activity in the brain. When drawing, one uses both the right and left hemispheres of the brain. This is a wonderful way to take greater advantage of mental resources.

Read more


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On-line webinar – Transforming Aging Summit – March 7-9, 2017

The Transforming Aging Summit, featuring leaders whose wisdom and work support an empowering vision for aging in today’s world.

This powerful 3-day event is taking place March 7-9 – online and on the phone.

Discover a new multidimensional view of aging — one of vast potential, infused with vitality, passion and purpose, as well as continual growth and service to the world.

“In some cultures, elders are honored as sages whose counsel is sought for their wide and wise vision of the world. Unfortunately, this model is not so common.”  Shift Network

And you’ll be in good hands with host Ron Pevny, MA, founder and director of the Center for Conscious Eldering, organizer of the Conscious Aging Alliance, and author of Conscious Living, Conscious Aging. He’s also a Certified Sage-ing Leader with Sage-ing® International and is active in the Life Planning Network.

During this life-changing event, you’ll also have the opportunity to connect with a global community, providing you with extra support on your path to living a more meaningful, joyful and purpose-filled life as you age consciously.

To join via Webcast: Visit The Transforming Aging Program Page to access the program sessions live and for 48 hours following their broadcast.
The Transforming Aging sessions are free for 48 hours following their broadcast.

Summit Sessions

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Exercise Classes

Exercise Classes

P4P-Pedaling for Parkinson’s –Saratoga YMCA no charge – Monday & Friday – phone (518) 583-9622

P4P-Duanesburg/Delanson YMCA – Monday’s and Thursday’s (518) 895-9500 member’s free, non-members $6.00.

P4P-Southern Saratoga (Clifton Park YMCA) – Monday, Wednesday, Friday- members free, non-members $5.00 – phone (518) 371-2139

P4P-Glenville YMCA –  Monday, Tuesday, Thursday– Members free, non-members $5.00—phone (518) 399-8118

P4P-Troy YMCA – Monday, Wednesday, Friday – Members free, non-members $5.00– (518) 272-5900

P4P-Guilderland YMCA – Monday, Wednesday, Friday – Member’s Free, non-members $5.00-Contact Chris Wilson – (518) 456-3634 ext 1140 for more information

P4P- Bethlehem YMCA – Monday, Wednesday, Friday, Parkinson’s Wellness Class Thursdays 12 N -1:45 Cost $45 for 7 weeks –– Phone (518) 439-4394 Contact the Y for more information

** PWR – Parkinson’s Wellness Recovery Class Thursdays 10:30 – 11:45 Cost $45 for 7 weeks – Clifton Park YMCA – 1 Wall Street, Clifton Park, NY 12065 – Phone (518) 371-2139 Contact the Y for more information

***Schott’s Boxing, 21 Vatrano Road, Albany, NY 12205 (518) 641-9064- Friday’s 10:00 AM –The cost is $10.00 for the initial visit which covers the cost of the hand wraps. Hope Soars is partnering with Schott’s and will pay most of the membership fee which will be determined based on class size. If you have any questions, please contact Mark Burek (518) 428-0056.

 

Rock Steady Boxing CNY, 209 Oswego Street #12, Liverpool, NY. Classes are Tuesday, Thursday and Saturday.   Contact Jeannette Riley (315) 622-2332 for assessment appointment and more information. Check Website CNY.rsbaffiliate.com for class information.

 

Rock Steady Boxing (RSB) at the Centers at St. Camilus, 813 Fay Road, Syracuse, NY 13219, Classes are Tuesdays and Thursdays from 11:45 – 1:15. Call for information, (315) 488-2112

 

Thursdays Dance Class– Dance Theater of Syracuse, 117 Harvard Place, Syracuse, NY (504) 570-0752 1:45 – 3:00 PM

Tuesday Yoga Class- Heartspace Yoga and Healing Arts, 747 Madison Avenue, Albany, 12208, Donation is requested. Class is for Parkinson’s Patients and their family/caregivers, for information call Instructor Tamara Cookingham (518) 495-3239 tamaracookingham@gmail.com

Thursday Yoga Class- Honest Weight Coop, 100 Watervliet Avenue, Albany, NY, Free for Parkinson’s Patients and their family/caregivers, for information call Instructor Tamara Cookingham (518) 495-3239  tamaracookingham@gmail.com   

Dance for PD from home – http://capture.nbs-enb.ca/27/page/Home.aspx  

Yoga classes online every Wednesday live or view archived. http://nwpf.yourbrandlive.com/yoga   

 

FOUNDATIONS

Parkinson’s Wellness Fund – http://parkinsonswellnessfund.org/families/general/application/

 

U-Tube Instruction Video’s

LSVT Big – https://youtu.be/fpTqcWs2NUY


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Demonstration Parkinson’s dance class coming to Albany

Stay tuned for date, time and location.

Read more


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Prepare for Your Hospital Stay Worksheet

Prepare for Your Hospital Stay Worksheet — Information regarding medications, symptoms and advanced directives in preparation for your hospital stay. Also included is a list of what to inform, ask and know during your hospitalization.

View/Download the worksheet here

 


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7 Ways to Move More During the Day with Parkinson’s Disease

Category : Exercise

According to a new study from The University of Michigan, increasing everyday physical activity, or puttering, may be enough to help improve Parkinson’s motor symptoms. Puttering may even make a bigger impact than vigorous exercise.

Read more


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March 29 2017: Deep Brain Stimulation Lunch and Learn – Tango Workshop

Please call 518-262-0739 to reserve your spot!

BASIC TANGO WORKSHOP

And you’re invited March 29th at 12 Noon!

Presented by: Kevin Magee Albany Tango Society and Meghan Wilock PA

Where: The Desmond, 660 Albany Shaker Rd Albany, NY 12211

When: 3/29/17 at 12PM-2:00PM

Kevin Magee is the organizer and founder of the Albany Tango Society, presenting tango events in Albany since 2007. Through Albany Tango Society Kevin teaches four levels of tango instruction, beginners to advanced, and presents free weekly classes to the community. As an organizer and presenter, Kevin has hosted over four hundred guest artist visits to the Capital Region, drawing from the top echelon of tango dancers world-wide. Kevin is an instructor at Emma Willard School (Troy, NY) teaching ballet, modern dance and jazz dance. He also teaches tango through the Student Union at Rensselaer Polytechnic Institute (Troy, NY) and at SUNY, Albany.

We welcome all to the support group, those with DBS (Deep Brain Stimulation), considering DBS, Parkinson’s disease, Dystonia, or Essential Tremor. We also encourage family and friends to join as well.

See you there


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Exercise Can Be a Boon to People With Parkinson’s Disease – NY Times

“The earlier people begin exercising after a Parkinson’s diagnosis, and the higher the intensity of exercise they achieve, the better they are,” Marilyn Moffat, a physical therapist on the faculty of New York University, said. “Many different activities have been shown to be beneficial, including cycling, boxing, dancing and walking forward and backward on a treadmill. If someone doesn’t like one activity, there are others that can have equally good results.”

Read more


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Rock Steady boxing in central NY

Category : Events , Exercise

ROCK STEADY BOXING CNY
A fitness program for persons with Parkinson’s Disease.

FIGHTING BACK AGAINST PARKINSON’S DISEASE

OPEN HOUSE

Saturday January 28th

10 am-1 pm

209 Oswego St #12

(Ponderosa Plaza)

Liverpool

(315) 622-2332


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The benefits of controlled breathing 

Category : Health and Wellness

Take a deep breath, expanding your belly. Pause. Exhale slowly to the count of five. Repeat four times.

Congratulations. You’ve just calmed your nervous system.

Controlled breathing, like what you just practiced, has been shown to reduce stress, increase alertness and boost your immune system.

From The New York Times read more


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National Parkinson Foundation toll-free Helpline

The National Parkinson Foundation (NPF) runs a toll-free Helpline, 1-800-4PD-INFO, (473-4636) The lifesaving NPF Helpline, launched in 2010, is staffed by a team of patient-focused nurses, social workers and therapists who answer calls about Parkinson’s disease (PD) in English and in Spanish Monday through Friday from 9 a.m. to 5 p.m. EST.

“NPF’s Helpline links our groundbreaking research to improve the lives of people with Parkinson’s today directly with the community we serve,” I know this first hand because the Helpline has made a difference in the life of my mother, who is living with Parkinson’s.” –John Kozyak, NPF’s Chairman of the Board. ”

“We’re more than just an information line. We truly care about the people we serve and that’s the key to our success, Whether you have yet to receive a diagnosis, are recently diagnosed with Parkinson’s, or caring for a family member with the disease, we are here to help you understand your condition, your care, and the latest research on how patients can live their best lives with Parkinson’s. We spend as much as 45 minutes on calls with those who have been recently diagnosed – more than three times the average – because we can really make a difference.” –  Adolfo Diaz, NPF’s Director of Patient Services who manages the Helpline.”

NPF’s Helpline Specialists help callers locate resources in their area, as well as send a customized informational packet after the call. The NPF packets arm people with Parkinson’s and their families with helpful information on preparing for an appointment with their general practitioner or movement disorder specialist. People with Parkinson’s disease, their care partners and families are invited to call to receive emotional support and referrals to health professionals and community resources. A wide variety of helpful NPF publications and the Aware in Care kit are also available for order through the Helpline.

NPF also has an online video series called, “Ask the Helpline,” where our PD Specialists answer the most frequently asked questions including: why exercise is important, what role a movement disorder specialist plays and how the role of caregiver changes over time.

People with questions about PD may also e-mail the NPF Helpline at helpline@parkinson.org.

 


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Financial help from Parkinson’s Wellness Fund

Category : Health and Wellness

If you have Parkinson’s or are a caregiver for a PWP and can’t afford services or products related to your wellbeing, the Parkinson’s Wellness Fund may be able to help with a grant

http://parkinsonswellnessfund.org/families/general/how-it-works

 


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ELISPOON – the bowl of the spoon remains horizontal and keeps the food in place.

Whatever movement of the wrist is performed, the bowl of the spoon remains horizontal and keeps the food in place.

The material used is lightweight and strong.  A key characteristic is the spoon’s affordability.

There are no electrical components or batteries, making it carry anywhere and to clean.

ELISPOON is a product designed and built to ease the life of the users and their love.

Two graduates from Israel’s Technion developed a spoon that their child with motor co-ordination problems could use without spilling its contents.   Now anyone can buy it. Useful also for the elderly or anyone suffering from tremor


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Use the website forum to ask a question or start a discussion

An Internet forum is a discussion area on a website. Website members can post discussions and read and respond to posts by other forum members. A forum can be focused on nearly any subject and a sense of an online community, or virtual community, tends to develop among forum members. A forum usually allows all members to make posts and start new topics.

 

Start a discussion or ask a question by starting here.

 


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Chair Yoga at St. Sophia’s Tuesday

Category : Exercise

For seniors with mobility issues, there is a “Chair Yoga” class sponsored by NNORC which meets on Tuesday at 11 a.m. The instructors for all three classes are trained and dedicated professionals.

 

Monday morning Tai Chi class sponsored by Albany Senior Services which meets at 9:30 a.m.

At St. Sophia Greek Orthodox Church 440 Whitehall Road Albany, New York 12208
Tel: (518) 489-4442

(Note: There are no membership fees for this group.)

For health and fitness, there are programs that are free. A Monday morning Tai Chi class sponsored by Albany Senior Services which meets at 9:30 a.m.

 

http://stsophia.net/events/participate/


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Tai Chi class at St. Sophia’s Monday

Category : Exercise

Monday morning Tai Chi class sponsored by Albany Senior Services which meets at 9:30 a.m.

At St. Sophia Greek Orthodox Church 440 Whitehall Road Albany, New York 12208
Tel: (518) 489-4442

(Note: There are no membership fees for this group.)

For health and fitness, there are programs that are free. A Monday morning Tai Chi class sponsored by Albany Senior Services which meets at 9:30 a.m.

And for seniors with mobility issues, there is a “Chair Yoga” class sponsored by NNORC which meets on Tuesday at 11 a.m. The instructors for all three classes are trained and dedicated professionals.

http://stsophia.net/events/participate/


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Exercise and Community Events

Category : Events , Exercise , Pedaling

Weekly: Friday 10:00 AM: Schott’s Boxing  –  21 Vatrano Rd, Albany, NY 12205  (518) 641-9064. This boxing PD activity is in presented in partnership with Hope Soars/Mark Burek (518) 428-0056.
Weekly: P4PPedaling for Parkinson’s M/W/F @ Bethlehem Y, Delaware Ave. 12 Noon.
Call your local YMCA’s for dates & time (perhaps cost) in your area.
PWR PD Wellness Recovery – 6 wk classes run independently by local YMCA’s. Bethlehem Y: call (518) 439-4394 for dates/times/cost $$
P4P-Pedaling for Parkinson’s – Saratoga YMCA no charge—Thursday & Friday—phone (518) 583-9622
P4P-Southern Saratoga (Clifton Park YMCA) – Monday, Wednesday, Friday- members free, non-members $5.00 – phone (518) 371-2139
P4P-Glenville YMCA –  Monday, Tuesday, Thursday– Members free, non-members $5.00—phone (518) 399-8118
P4P-Troy YMCA – Monday, Wednesday, Friday – Members free, non-members $5.00– (518) 272-5900
P4P – Wednesday, Friday, Parkinson’s Wellness Class Thursdays 12 N -1:45 Cost $45 for 7 weeks – Bethlehem YMCA – 900 Delaware Avenue, Delmar, NY 12054 – Phone (518) 439-4394 Contact the Y for more information
** PWR – Parkinson’s Wellness Recovery Class Thursdays 10:30 – 11:45 Cost $45 for 7 weeks – Clifton Park YMCA – 1 Wall Street, Clifton Park, NY 12065 – Phone (518) 371-2139 Contact the Y for more information
***Schott’s Boxing, 21 Vatrano Road, Albany, NY 12205 (518) 641-9064– Friday’s 10:00 AM The cost is $10.00 for the initial visit which covers the cost of the hand wraps. Hope Soars is partnering with Schott’s and will pay most of the membership fee which will be determined based on class size. If you have any question’s please contact Mark Burek (518) 428-0056.
Thursdays Dance Class– Dance Theater of Syracuse, 117 Harvard Place, Syracuse, NY (504) 570-0752 1:45 – 3:00 PM
Tuesday Yoga Class- Heartspace Yoga and Healing Arts, 747 Madison Avenue, Albany, 12208, Donation is requested. Class is for Parkinson’s Patients and their family/caregivers, for information call Instructor Tamara Cookingham (518) 495-3239 tamaracookingham@gmail.com
 
Thursday Yoga Class- Honest Weight Coop, 100 Watervliet Avenue, Albany, NY, Free for Parkinson’s Patients and their family/caregivers, for information call Instructor Tamara Cookingham (518) 495-3239  tamaracookingham@gmail.com  
Dance for PD from home – http://capture.nbs-enb.ca/27/page/Home.aspx 
Yoga classes online every Wednesday live or view archived. http://nwpf.yourbrandlive.com/yoga  
 

FOUNDATIONS

 

Speaker’s/Activities December Meetings

Saratoga County Meeting: Mary Piel, OT, 
 
YOPD -Albany County 2 PM: Dec’s meeting speaker Mary Piel, OT, see flyer below, and  will be a pot luck holiday party on Sat, 12/17 at Good Shepherd Lutheran Church, 510 Albany-Shaker Rd, Loudonville, NY 12211 
 
The Schenectady Co. Group will be meeting on the 2nd Wednesday, December 14 at 11:30 a.m. at the Glenville Queen Diner on Route 50 in Glenville for our annual luncheon.

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Parkinson’s News Today – social clips

See short, informative clips from Parkinson’s News Today

These and more…

Parkinson’s Quote: Look Beyond Imperfections

When you have Parkinson’s disease sometimes you feel imperfect.

Maya Angelou once said, “Being happy doesn’t mean that everything is perfect. It means that you’ve decided to look beyond the imperfections.


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The benefits of Tai Chi

It isn’t every day that an effective new treatment for some Parkinson’s disease symptoms comes along. Especially one that is safe, causes no adverse side effects, and may also benefit the rest of the body and the mind. That’s why I read with excitement and interest a report in the New England Journal of Medicine showing that tai chi may improve balance and prevent falls among people with Parkinson’s disease. Tai chi improves balance and motor control in Parkinson’s disease

“Read More”

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Dance for PD survey

Category : Exercise , Speaker Leads

What is Dance for PD?

Download a flyer and Watch a segment about a class in Buffalo

Read about the class from a participant’s view


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Oregon Research Institute Tai Chi Program helps Parkinson’s Disease Patients

Category : Health and Wellness

An Oregon Research Institute (ORI) exercise study conducted in four Oregon cities has shown significant benefits for patients with mild-to-moderate Parkinson’s disease. In an original article published in the February 9, 2012 issue of the New England Journal of Medicine(NEJM), ORI scientist Fuzhong Li, Ph.D. and colleagues report that a tailored program of twice-weekly Tai Chi training resulted in improved postural stability and walking ability, and reduced falls in the participants.

Read more 


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LSVT Loud and LSVT Big – voice and movement treatments

Recent advances in neuroscience have suggested that exercise-based behavioral treatments may improve function and possibly slow progression of motor symptoms in individuals with Parkinson disease (PD). The LSVT (Lee Silverman Voice Treatment) Programs for individuals with PD have been developed and researched over the past 20 years beginning with a focus on the speech motor system (LSVT LOUD) and more recently have been extended to address limb motor systems (LSVT BIG).

“Read More”

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Parkinson’s Disease and Diet

Category : Health and Wellness

Overview

No one specific diet is recommended for everyone with Parkinson’s disease (PD). Still, what you eat may impact how well your medication works and can help some of the non-motor symptoms that are associated with PD. For general health and well-being, doctors encourage people with Parkinson’s to follow a balanced diet, which includes whole grains, healthy fats (in foods like nuts, avocado and olive oil) and antioxidants.

Get the Parkinson’s and Diet printable booklet from the MJ Fox foundation.


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Constipation

Category : Health and Wellness

Difficulty swallowing, feelings of nausea or bloating, constipation, and difficulty eliminating are all common symptoms of PD.

“Read More”

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Do you make art? Crafts?

Category : Health and Wellness

Add your comments or pictures about your art. 

Here is some of mine. 


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Juggling – the ultimate exercise?

Category : Health and Wellness

Here are just a few of the reasons that juggling is the ultimate exercise! Click here to learn more.

“Read More”

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Dance For PD in the Capital District?

Category : Health and Wellness

You probably wouldn’t imagine someone with Parkinson’s disease being a dancer. Over the past 15 years or so, a few thousand have taken dance classes that are part of a program called Dance for PD.

“Read More”

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Free voice and breath webinar series

Category : Health and Wellness

Breath, Voice and Communication-Exercises for Parkinson’s
Duration: 1 hour, 2 minutes

Register here

“Read More”

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LSVT BIG and Hypnotherapy provider

 

Introducing Dr. Debra Viertanen

I am a LSVT BIG certified physical therapist offering this program to PWP. I have spent 38 years treating People with Parkinsons and have never found a program that works so well. I also have a certification in hypnotherapy. Many PWP have higher anxiety and difficulty sleeping. I offer hypnosis to assist with this. I will begin another group session Wed, Oct 19 at 1:30 in my office. The sessions take about 45 minutes and are free. There will be 3 in total. PWP and caregivers are welcome. Please call my office to let us know u plan to come. Space is limited. 272-3324. Riverfront Physical Therapy 500 Federal St, Troy

Dr. Debra Virtanen

email: dvirtanen@live.com

 


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Want to exercise – try a tricycle

Category : Health and Wellness

Spike’s Trikes

27 Reid St,Amsterdam, NY 12010

(518) 842-4827

http://spikestrikes.biz/

“Read More”

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Northwest Parkinson’s Foundation

The Northwest Parkinson’s Foundation has

The Northwest Parkinson’s Foundation mission is simple: Improve the quality of life of people in the PD community right now.

“Read More”

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World Parkinson’s Congress 2016

The triennial World Parkinson Congresses provide an international forum for dialogue on the latest scientific discoveries, medical practices, and caregiver initiatives related to Parkinson’s disease.

“Read More”


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Coffee is your friend

coffee-beans-1400Caffeine-based compounds show promise against Parkinson’s disease

Two caffeine-based chemical compounds have been developed that show promise in preventing the ravages of Parkinson’s disease. Parkinson’s disease attacks the nervous system, causing uncontrolled shakes, muscle stiffness, and slow, imprecise movement, chiefly in middle-aged and elderly people. It is caused by the loss of brain cells (neurons) that produce dopamine, an essential neurotransmitter that allows neurons to “talk” to each other.

Read more

“Read More”

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Educational Brochures

Image result for brochure parkinson's sampleInformation and research about Parkinson’s Disease is changing quickly.  Depending on information that is more than a few years old is not advised.
We are not endorsing or guaranteeing the accuracy of any of the supplied links.  We have not created, reviewed (or even read) all of the educational material referenced.  You may find outdated, false of contradictory information.
You may want to find the material(s) that would be useful to you and/or your patients and ask a doctor familiar with PD to review them before handing them out.

From the Michael J. Fox Foundation:

Educational Web Pages at https://www.michaeljfox.org/understanding-parkinsons/index.html?navid=understanding-pd


From Parkinson’s Disease Foundatation

PDF offers a variety of educational publications and programs for people with Parkinson’s, their caregivers and families and allied health professionals.  These materials can help answer questions about Parkinson’s disease symptoms, medications, medical care, exercise and nutrition, among other issues.

You can download all materials by using the links below and to the left.  You can also order most of these materials online free of charge, for yourself or, in bulk for your practice, hospital or support group.

Brochures and Booklets
These informational brochures help you understand Parkinson’s and find resources in the community. Order your copies online today or download each individually.

Videos/DVDs
PDF offers one free educational DVD/video, Diagnosis Parkinson’s Disease: You Are Not AlonePlease click here to read more and order this program online.

Fact Sheets
PDF’s fact sheets discuss your concerns about nutrition, diet, exercise and more, providing tips on how to improve daily life with Parkinson’s. These are written by physicians and people living with or affected by Parkinson’s. You can order print copies of the fact sheets or download those that interest you from our selection of 35+ fact sheets.

Online Seminars

PDF reserves a limited supply of DVDs of our previous series of PD ExpertBriefings for those unable to watch via computer. If you would like to order this set to watch at home or with your support group members, please read more and download our order form.

http://www.pdf.org/brochureshttp://www.pdf.org/newsletters_pubs


From APDA

http://www.apdaparkinson.org/resources-support/download-publications/


From American Academy of Neurology

Parkinson’s disease (PD) is a movement disorder. In people with PD, a vital chemical in the brain called dopamine is gradually reduced. This brings on symptoms of tremor, slowness in movement, stiff limbs, and walking or balance problems.


Ohio State University Wexner Medical Center

https://patienteducation.osumc.edu/pages/patienteducation/atoztopicdetail.aspx?t=Parkinson%27s%20Disease


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What do major PD resources say about exercise?

Category : Health and Wellness

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Exercise is an important part of healthy living for everyone. For people with Parkinson’s, exercise is more than healthy: it is a vital component to maintaining balance, mobility and the ability to perform activities of daily living.

Read more

An exercise program booklet by APDA “Be active

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Preventing falls

Category : Health and Wellness

Image result for fallingIf you or a loved one has Parkinson’s disease, here are tips for preventing falls around the home:

“Read More”


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Boxing Helps Patients Fight Back

Category : Health and Wellness

filmed at Schott’s boxing

View video

 



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Parkinson’s Wellness Recovery (PWR)

Looking for a Research-Based Exercise Program Specifically for Those With Parkinson’s?

The Capital District YMCA is now offering Parkinson’s Wellness Program (PWP!) Training! The class is neuroplasticity-principled and holds promise to slow disease progression, retire motor function, and increase longevity and quality of life.

“Read More”

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PARKINSON’S: stand. freeze? move!

Category : Health and Wellness

Here’s EZ ways to get “unstuck” or help your Parkinson’s partner or relative when they find themselves struggling to take a step.


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The Every Victory Counts® Manual – Davis Phinney Foundation

Essential Information and Inspiration for a Lifetime of Wellness

Unique in the world of Parkinson’s resources, the Every Victory Counts® manual gives people living with Parkinson’s – and their caregivers and family members – the tools they need to take control of their own Parkinson’s treatment through a proactive approach to self-care.

Click to read and/or download the book as a PDF file (5mb, 275 page printable book)

Every Victory Counts manual


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On-line resources

These Parkinson’s disease (PD) resources will help you find more information and connect with others living with the condition. Many of these sites will direct you to the latest Parkinson’s disease news and research, as well as opportunities to get involved with local chapters and organizations.

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Newly Diagnosed

The following is an excerpt from the book Alter The Course. Newly Diagnosed Parkinson’s disease.

Parkinson’s disease is an unexpected- and unwanted- twist and turn in your life journey. Like any journey there is uncertainty about what lies ahead, how things will change or where your life with PD will take you. 

“Read More”

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YMCA Pedaling for Parkinson’s

Pedaling a bicycle may change the life of someone with Parkinson’s disease.

“Read More”

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Fighting Parkinson’s – Schotts Boxing Class

A non-contact boxing fitness class designed for people with Parkinson’s and their caregivers.

The class is taught on Fridays at 10 a.m. by Schott’s Gym.

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PD Wellness Recovery

 PD Wellness Recovery – 6 wk classes run independently by local YMCA’s.Bethlehem Y: call (518) 439-4394 for dates/times/cost $$


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Dance for PD – program idea

Category : Health and Wellness

“Dance for PD is an opportunity to put Parkinson’s aside for a while. We pay more attention to who somebody is rather than what disease they may have”

Why Dance for PD

The ten points below explain why dance is particularly beneficial for people with Parkinson’s disease.Dance develops flexibility and instills confidence.

  1. Dance is first and foremost a stimulating mental activity that connects mind to body.
  2. Dance breaks isolation.
  3. Dance invokes imagery in the service of graceful movement.
  4. Dance focuses attention on eyes, ears and touch as tools to assist in movement and balance.
  5. Dance increases awareness of where all parts of the body are in space.
  6. Dance tells stories.
  7. Dance sparks creativity.
  8. The basis of dance is rhythm.
  9. The essence of dance is joy.

http://danceforparkinsons.org/at-home-dvd/at-home-dvds


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Ten nutrition tips for living well with Parkinson’s

Category : Health and Wellness

1) VITAMIN D – Studies have shown widespread deficiency of vitamin D among people with PD; whether it contributes to the development of PD, or is a result of PD, is not yet known. But deficiency is associated with falls and fractures, diabetes, cancers and autoimmune diseases. You may want to ask your doctor to check your Vitamin D level, and take supplements as needed.

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Bone Thinning

Category : Health and Wellness

As Parkinson’s progresses, mobility challenges become more common, including an increased risk of falls. Unfortunately, studies have shown that people with PD are also at increased risk for bone thinning, a combination that can lead to injury.

Therefore, it is especially important for people with PD to eat meals that provide bone-strengthening nutrients, such as calcium, magnesium and vitamins D and K. Regular exposure to sunlight is also helpful, as it increases vitamin D in the body.

Walking and other weight-bearing exercises can keep bones strong and less likely to fracture or break.


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Yoga classes for people with Parkinson’s disease

Thursdays 10:30 – 11:30 am Honest Weight Co-op 100 Watervliet Avenue, Albany NY

In our yoga classes for people with Parkinson’s disease, we will be working with breath, movement, thought, voice, and sound. Through creative use of these branches of yoga, we will seek ease and relief from common issues associated with PD.

Caregivers are welcome to participate. The approach will be gentle, yet motivating. We will practice using chairs, with some standing movements. Modifications will be offered for those that cannot stand or have other limitations. Sneakers and loose, comfortable clothing are recommended.

For more information, call Hope Soars 518.428.0056.

Come enjoy the flow of yoga in your body, mind, and spirit. Presented By Hope Soars and Albany Medical Center


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YMCA Parkinson’s Wellness Program

Category : Health and Wellness

The Capital District YMCA is now offering Parkinson’s Wellness Program (PWP!) Training! The class is neuroplasticity-principled and holds promise to slow disease progression, retire motor function, and increase longevity and quality of life. The class will be led by certified instructors trained in PWP! Fitness, and Gary Z Sobol Parkinson’s Network (GZSPN™) by Gail Borden of Marblehead, MA.

Participants should be able to walk and stand unassisted. Individuals with MS or in Post Stroke Recovery are also encouraged to attend, with participant waiver and medical clearance. Please see the table below for more information on specific class times.

7 Week Sessions are ongoing, check your local branch for more details.
1x weekly: Members $45, Community $56 / 2x weekly: Members $80, Community $91
Caregivers are welcome with paid registration.

Branch Day Time Instructor
Bethlehem Thursdays 12:00pm Nancy Janosi
Glenville Fridays 10:15am Lisa Temoshok
Greenbush Fridays 10:30am Sondra Tucker
Guilderland Wednesdays 1:45pm Kathy Napoli
Schenectady Wednesdays 6:00pm Myra Woods
Southern Saratoga Thursdays 10:30am Shannon Felix
Troy Mondays 11:30am Tammy Roberts
and
Michael Malone

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Rock Steady Boxing now in the Central New York area

Category : Health and Wellness

inside Karate John’s

8072 Brewerton Rd

Cicero, NY 13039

1 hour multi-level class for the summer

At 1:30pm Monday & Fridays

Starting June 17th

Additional class will be offered in the fall or as need arises

For information and to reserve your spot

Contact Jeannette Riley

315-622-2332

CNY@rsbaffiliate.com

Check Website CNY.rsbaffiliate.com for class information


Upcoming Events

Mar
23
Thu
10:00 am P4P Saratoga YMCA @ Saratoga YMCA
P4P Saratoga YMCA @ Saratoga YMCA
Mar 23 @ 10:00 am – 11:00 am
http://cdymca.org/programs/chronic-diseases/pedaling-for-parkinsons/  
10:30 am Honest Weight Yoga @ Honest Weight Food Coop
Honest Weight Yoga @ Honest Weight Food Coop
Mar 23 @ 10:30 am – 11:00 am
 
10:30 am Parkinson’s Wellness Recovery Class @ Clifton Park YMCA
Parkinson’s Wellness Recovery Class @ Clifton Park YMCA
Mar 23 @ 10:30 am – 11:30 am
PWR – Parkinson’s Wellness Recovery Class Thursdays 10:30 – 11:45 Cost $45 for 7 weeks – Clifton Park YMCA – 1 Wall Street, Clifton Park, NY 12065 – Phone (518) 371-2139 Contact the Y for
11:00 am P4P-Duanesburg/Delanson YMCA @ DuanesburgvYMCA
P4P-Duanesburg/Delanson YMCA @ DuanesburgvYMCA
Mar 23 @ 11:00 am – 12:00 pm
P4P-Duanesburg/Delanson YMCA – Monday’s at 12 noon and Thursday’s at 11 am (518) 895-9500 members free non-members $6.00.
11:45 am P4P Glenville YMCA @ Glenville YMCA
P4P Glenville YMCA @ Glenville YMCA
Mar 23 @ 11:45 am – 12:45 pm
P4P-Glenville YMCA – Monday, Tuesday, Thursday– Members free, non-members $5.00—phone (518) 399-8118
1:45 pm Parkinson’s Dance Syracuse @ Dance Theater of Syracuse
Parkinson’s Dance Syracuse @ Dance Theater of Syracuse
Mar 23 @ 1:45 pm – 3:00 pm
Parkinson’s Dance (re-defining PD) Thursdays 1:30-2:45 pm Weekly Drop-ins welcome No charge Lead teacher: Tumay Tunur Dance styles/techniques/content covered in class: Ballet, Tap, Contemporary, Latin, Improvisation Dance Theater of Syracuse 117 Harvard Place Syracuse, NY
Mar
24
Fri
9:30 am P4P Guilderland YMCA @ Guilderland YMCA
P4P Guilderland YMCA @ Guilderland YMCA
Mar 24 @ 9:30 am – 10:30 am
http://cdymca.org/programs/chronic-diseases/pedaling-for-parkinsons/  
10:00 am Schott’s Boxing @ Schott's Boxing
Schott’s Boxing @ Schott's Boxing
Mar 24 @ 10:00 am – 11:00 am
Every Friday at 10 This program was started in 2016 by Hope Soars and Schott’s Boxing and Fitness to enhance the quality of life of the Parkinson’s patient. There is a direct correlation between the
10:30 am P4P Troy YMCA @ Troy YMCA
P4P Troy YMCA @ Troy YMCA
Mar 24 @ 10:30 am – 11:30 am
PEDALING FOR PARKINSON’S Pedaling a bicycle may change the life  of someone with Parkinson’s disease. Research conducted at the Cleveland Clinic showed a 35% reduction in symptoms by the simple act of pedaling a bicycle
12:00 pm P4P Bethlehem YMCA @ BethlehemYMCA
P4P Bethlehem YMCA @ BethlehemYMCA
Mar 24 @ 12:00 pm – 1:00 pm
read more from the YMCA
4:30 pm P4P Saratoga YMCA @ Saratoga YMCA
P4P Saratoga YMCA @ Saratoga YMCA
Mar 24 @ 4:30 pm – 5:30 pm
 
5:00 pm P4P Clifton Park YMCA @ Clifton Park YMCA
P4P Clifton Park YMCA @ Clifton Park YMCA
Mar 24 @ 5:00 pm – 6:00 pm
The mission of Pedaling for Parkinson’s is: To improve the quality of life of Parkinson’s disease patients and their caregivers. To educate patients, caregivers, and the general public about the benefits of maintaining an active