Events


PD SELF – a learning program designed to help people with Parkinson’s better manage their disease

PD SELF – Parkinson’s Self-Efficacy Learning Forum – A national program, now being offered in Albany for the first time, that provides people with Parkinson’s with an in-depth understanding of the disease and the tools to manage it with confidence.  There is no cost to attend.  Registration is required.  Space is limited.

PD SELF is a learning program designed to help people diagnosed with Parkinson’s in the last three years manage their disease and their life with Parkinson’s.  We will learn about the disease and how to approach goals, tasks and challenges.

The first session will be held on Wednesday, September 12, 2018 from 4:00 – 7:00.  There will be a total of eight monthly sessions. Each subsequent session will be from 4:00 – 7:00 on the second Wednesday of the month.  We will meet at the Terrace Community Room at Beverwyck in Slingerlands. – 41 Beverwyck Lane, Slingerlands, NY 12159. (Map).

Debra Virtanen and Jud Eson traveled to Denver in May to attend a training course to learn how to facilitate the PD SELF program.  Facilitation teams, including a person with a clinical background and a person with PD, came from 11 locations across the country to learn.  Team Albany included Debra, a physical therapist, and Jud, a person with Parkinson’s.  The program has been active for three years. This is the first time it will be offered in this area. This program is distinct and separate from the Capital District Parkinson’s Support Group.

Many people are handed a diagnosis with very little guidance on what to do next. But the diagnosis is life changing. Facing life with a chronic progressive disease means facing changes to health, relationships, family life, employment and finances.

Research tells us that when people are given the resources to cope with these changes, they are empowered to take an active role in managing PD, leading to better health and quality of life.

Participants are provided with a PD SELF Curriculum Field Guide containing the course content for each of the eight modules.

  1. Adapting to Parkinson’s Disease
  2. Acquiring Self-Efficacy
  3. Creating your personal health care network
  4. Understanding PD medications and treatments including complementary and alternative medicine
  5. Benefiting from exercise and neuroplasticity
  6. Understanding cognition and nonmotor symptoms
  7. Strengthening the relationship between people with Parkinson’s and Care Partner
  8. Going forward

Over the eight modules, participants learn how to master their own relationship to Parkinson’s. The skills and behaviors learned include:

  • Setting and achieving goals
  • Self-monitoring
  • Keeping health care records
  • Communicating with your doctor
  • Establishing new routines
  • Overcoming obstacles
  • Problem solving
  • Reflection and journaling
  • Managing negative emotions
  • Realistic optimism
  • Resilience and tenacity
  • Self-Advocacy

For more information and to register, please visit the PD SELF website at PDSELF.org or send an email to PDSELF.Albany@gmail.com .

If you are interested  in registering, fill out an interest form

Printable PD SELF flyer

Printable Flyer #2 PD SELF Albany Flyer

Printable pd self cards

 


June 2, 2018 – Albany Med Educational Program

Albany Med
The Movement Disorders Center
Presents

An educational program for those living with Parkinson’s disease and their caregivers

Saturday, June 2, 2018
Albany Marriott, 189 Wolf Road

Reservations are required. To register, please call 518-264-4257 or email rindens@amc.edu by May 25, 2018

To accommodate as many patients as possible, we ask that all reservations be limited to no more than 4 people.

 

Program outline:

9:00 – Registration, Continental Breakfast

9:30 – Frequently asked questions – Jennifer Durphy, MD – Assistant professor of neurology

10:00 – Q & A Session/Break

10:20 – Living well with Parkinson’s – Steve Hovey – Davis Phinney Foundation

10:50 – Q & A Session/Break

11:10 Troubleshooting side effects – Octavian Adam, MD  – Associate professor of neurology

11:40 Final  Q & A Session

 

 


June 14, 2018 – meeting notice

Join the CDPSG Support Group for the monthly meeting.
Thursday June 14, 2018 at 7 PM at the Terrace Community Room at Beverwyck (our “regular” location)
 Beverwyck Lane, Slingerlands, NY 12159 (Directions)

People with Parkinson’s, friends, and care partners are welcome to attend to learn more about Parkinson’s disease or obtain information.

TopicChrissy Stack will talk about, and maybe do some of, MedRhythms music therapy.
Refreshments: Helen H.

MedRhythms is new to the area, they specialize in neurological music therapy for neurological injury and disease, and are also looking to spread the word that these services are now available in the area.

http://www.medrhythmstherapy.com/


July 21, 2018 – Saturday – summer picnic at Crossings Park in Colonie.

Our summer picnic will be held on Saturday, July 21 from 12 noon until 3:00 pm at The Crossings Park in Colonie.

The facility has ample parking nearby, a covered pavilion with picnic tables and ac  bathrooms.

There is no charge to enter the park and there will be no charge for the picnic. The CDPSG will provide meat and vegetarian options to grill. We will be asking attendees to bring appetizers, salads and desserts to share as well as their own beverages. A number of fun activities are also being planned.

Directions:

GPS to the entry to the Crossings Park on Albany Shaker Road:

580 Albany Shaker Road, Loudonville, NY 12211

Map
Directions to the picnic:
Starting from the corner of Wolf Road and Albany shaker Road (exit 4 on Northway)​
Go east on Albany Shaker (towards Albany).

In .5 mile take first exit of traffic circle to stay on Albany Shaker

In .4 mile turn right into the Crossings Park

Follow park road for .6 mile to end of road at parking circle.

You can see pavilion from there.


YOPD 2018 meeting dates

YOUNG ONSET PARKINSON’S DISEASE
(YOPD) SUPPORT GROUP
MEETING INFORMATION

The YOPD support group will meet on the third Saturday of the month at

Good Shepherd Lutheran Church, 510 Albany Shaker Rd, Loudonville, Ny 12201-
(518) 458-1567
at 2pm

on the following dates.

1/20, 2/17, 3/17, 4/21, 6/16, 8/18, 10/20
And 12/15

For odd numbered months after April

Meetings for the YOPDSG will be held on the last Monday of the
Month at Route Seven Diner at 1090 Troy Schenectady Rd. Latham NY 12110.
(518) 785-4107
At 7pm

For the following dates
5/28, 7/23, 9/24 11/26


Young Onset PD (YOPD) Support Group Meeting information

Starting in May and every other month meetings will be the fourth Monday.

Time: 7:00 PM
Location: Route 7 Diner, 1090 Troy Schenectady Road (across from Keeler Motors), Latham

Diner dates are:

• Monday, May 22
• Monday, July 24
• Monday, September 25
• Monday, November 27

➢ Meetings for June, August, October, and December will be the third Saturday of the month.
Time: 2:00 PM
Location: Good Shepherd Lutheran Church

Dates are:

• Saturday, June 17
• Saturday, August 19
• Saturday, October 21
• Saturday, December 16