by Jon Palfreman
A star science journalist with Parkinson’s reveals the inner workings of this perplexing disease
Seven million people worldwide suffer from Parkinson’s, and doctors, researchers, and patients continue to hunt for a cure. In Brain Storms, the award-winning journalist Jon Palfreman tells their story, a story that became his own when he was diagnosed with the debilitating illness.
David Zid, an ACE, APG certified trainer, has collaborated with orthopedic surgeon, Thomas H. Mallory, M.D., who is afflicted with Parkinson’s disease, and Jackie Russell, RN BSN CNOR, in the development of a Parkinson’s specific fitness program designed to proactively minimize tremors and improve flexibility, stability, balance and strength. This program empowers the person with Parkinson’s Disease to take control, helps with maintaining independence, and provides hope! Delay the Disease contains colorful photographs of Zid demonstrating each move, as well as recommendations for exercise frequency, modification and how to adjust the workout as one improves. Parkinson’s patients participating in Zid’s fitness program notice improvement in walking, dressing and maintaining balance. Exercises are divided into categories (wake up call, walking and balance, cardiovascular, strength, facial and vocal, and night-time stretching.
Everybody Has a Window and Aisle Seat: Choosing a Positive Approach to Parkinson’s Disease
by Mary Huston McLendon
Diagnosed with Parkinson’s disease almost two decades ago, Mary Huston relates how she confronted it in a straightforward manner, and refused to give up or play a passive role in her treatment and wellbeing. Her stories describing her long journey will have you laughing and crying at the same time.
by Alex Kerten and David Brinn
Parkinson’s Disease, a disorder of the central nervous system, affects 1 million people in America and 10 million worldwide. In Goodbye Parkinson’s, Hello Life! Alex Kerten presents his breakthrough holistic technique that combines dance therapy, behavior modification, and martial arts, to prove that there is life beyond the diagnosis of PD. Goodbye Parkinson’s, Hello life! received “Recommended Reading” status by the Michael J. Fox Foundation and listings on the National Parkinson’s Association social media sites.
My Degeneration: A Journey Through Parkinson’s (Graphic Medicine)
by Peter Dunlap-Shohl
How does one deal with a diagnosis of Parkinson’s disease at the age of forty-three? My Degeneration, by former Anchorage Daily News staff cartoonist Peter Dunlap-Shohl, answers the question with humor and passion, recounting the author’s attempt to come to grips with the “malicious whimsy” of this chronic, progressive, and disabling disease. This graphic novel tracks Dunlap-Shohl’s journey through depression, the worsening symptoms of the disease, the juggling of medications and their side effects, the impact on relations with family and community, and the raft of mental and physical changes wrought by the malady.
My Degeneration examines the current state of Parkinson’s care, including doctor/patient relations and the repercussions of a disease that, among other things, impairs movement, can rob patients of their ability to speak or write, degrades sufferers’ ability to deal with complexity, and interferes with the sense of balance. Readers learn what it’s like to undergo a dramatic, demanding, and audacious bit of high-tech brain surgery that can mysteriously restore much of a patient’s control over symptoms. But My Degeneration is more than a Parkinson’s memoir. Dunlap-Shohl gives the person newly diagnosed with Parkinson’s disease the information necessary to cope with it on a day-to-day basis. He chronicles the changes that life with the disease can bring to the way one sees the world and the way one is seen by the wider community. Dunlap-Shohl imparts a realistic basis for hope—hope not only to carry on, but to enjoy a decent quality of life.
Jul 2, 2015 by Maria De Leon MD
Parkinson’s disease affects all sides of you: your inside, your outside, and your “right” side—that is, the side where you feel positive, balanced, and beautiful. How do you find that edge when you’re not feeling very sharp at all?
Parkinson’s Diva is a personal and professional accounting of a young Parkinson’s doctor’s experience with the disease in all realms of her life . . . from doctor, caregiver, and ultimately as a young Parkinson’s patient herself.
Not only does Dr. Maria De León cover important basics of PD and research-based data, she also shares the personal concerns and gender-specific battles that young women who live with the disease must face. She encourages all of us to be empowered through education, self-awareness, and faith. This book is about embracing your own style and grace in your journey with PD . . . as Maria says “summoning your inner diva.”
WORDS OF PRAISE FOR PARKINSON’S DIVA
“Dr. De León, a neurologist and Parkinson’s patient herself, writes with great sensitivity and deep personal insight about issues of critical interest to all women with PD. She blazes the trail toward a better understanding of gender differences and makes an important contribution to the literature on Parkinson’s disease.”
– Diane G. Cook, Patient Representative Consultant, FDA; People with Parkinson’s Advisory Council, Parkinson’s Disease Foundation.
“Dr. De León writes with intelligence, compassion, unflinching honesty and practicality, but most importantly with positivity and faith. Parkinson’s Diva is an informative and insightful book for women on how to live and live well with Parkinson’s disease.”
– Mya C. Schiess, MD; Professor of Neurology; Director UT MOVE
Unique in the world of Parkinson’s resources, the Every Victory Counts® manual gives people living with Parkinson’s – and their caregivers and family members – the tools they need to take control of their own Parkinson’s treatment through a proactive approach to self-care.
Click to read and/or download the book as a PDF file (5mb, 275 page printable book)
This book is an easy to read account of how I maintain a positive outlook despite dealing with Parkinson’s Disease over the past 19 years. I am hoping it helps others with Parkinson’s or some other debilitating disease. If nothing else I hope that those who read it get a few laughs. I think people will find this book enjoyable and finish it with a smile on their face, whether they have Parkinson’s or not. I am not a rich or famous person with financial resources to try any treatment I want. I am just a regular guy with an irregular disease. Despite the negative impact this disease has on me, I do my best to find and focus on the positives in my life. This book explains that and provides background information on how I got to where I am today. You can contact me via e-mail at email@example.com
The fundamental guide to the most effective treatments for Parkinson’s Disease, from a Mayo Clinic doctor with thirty years of clinical and research experience.
In this second edition follow-up to the extremely successful first edition, Dr. Ahlskog draws on thirty years of clinical experience to present the definitive guide to dealing with all aspects of Parkinson’s Disease, from treatment options and side effects to the impact of the disease on caregivers and family. Dr. Ahlskog’s goal is to educate patients so that they can better team up with their doctors to do battle with the disease, streamlining the decision-making process and enhancing their treatment. To do this, Dr. Ahlskog offers a gold mine of information, distilled from his years of experience treating people with Parkinson’s at the Mayo Clinic. In addition to providing a comprehensive account of Parkinson’s medications, this book also examines additional aspects of treatment, such as the role of nutrition, exercise, and physical therapy.
Although many commendable texts have been written on the subject of Parkinson’s Disease, their discussions of treatment have not been in depth. Dr. Ahlskog sifts through aspects of the disease in order to give the reader a comprehensive sense of Parkinson’s and the best available treatment options. With a broader understanding of the disease and the available options, patients are able to make more informed choices, and doctors are able to provide more tailored care. This book delivers hopeful, helpful, and extensive information to all parties concerned: patients, caregivers, and doctors.
The ultimate guide to symptoms and treatment, this thoroughly updated second edition is the first place patients should turn for reliable, easy-to-grasp information on Parkinson’s Disease.
Written in plain, easy-to-understand language, this book teaches you everything you need to know to about Parkinson’s Disease, without you guessing or searching endlessly for answers to your biggest questions. This book is the result of 25 years experience and research in living a life with Parkinson’s Disease. It’s chock-full of vital facts, helpful hints and critical information… all in one easy to read book.
Here’s some of what you’re going to discover:
This book isn’t just for the newly diagnosed. Inside you’ll learn:
You’ll find these tips too:
Prepare for Your Hospital Stay Worksheet — Information regarding medications, symptoms and advanced directives in preparation for your hospital stay. Also included is a list of what to inform, ask and know during your hospitalization.