Monthly Archives: February 2018


April 28, 2018 – Parkinson’s Unity Walk

Chris Savastio is soliciting funding for the upcoming Parkinson’s Unity Walk in New York City’s Central Park. The walk will be held on Saturday, April 28. All funds received go directly to Parkinson’s Disease research.

To donate, go online to the official web site for the Parkinson’s Unity Walk. The team name this year is schott’sboxingalbany. Either one of those 2 options will do OR

write a check to Parkinson’s Unity Walk and write in either my name or the team name(Schott’s Boxing Albany) on the memo line of the check. Then mail it to;

Parkinson’s Unity Walk

PO Box 275

Kingston, NJ 08528

Also, there is an open invitation to all members of both support groups to either join us on the walk or become part of the fund raising team or both. Thank you!!

Think Spring,

Chris


April 14, 2018 – Tools for caregivers conference

The Capital Region Caregiver Coalition is proud to announce the 11th annual

“Tools for Caregivers”

~ Resources You Can Use When a Senior Relies on You ~

Workshops, Continental Breakfast, Caregiver Healing Touch and Vendor Resource Fair

DATE: April 14, 2018

Time: 8am – 12 noon

LOCATION: Beltrone Living Center

6 Winners Circle, Albany NY 12205

REGISTRATION OPENS MARCH 1st!

To register, contact crccreg@gmail.com, (518) 248-3807


7 marathons, 7 days, 7 continents and one man with Parkinson’s.

During the first marathon, Bret Parker felt great — for the first 15 miles of ice and snow.

“I was chugging along, and I had no symptoms,” he recalled the next day. “I was running a good pace. I said, ‘You got this.’ ”

He paused. “And that was the kiss of death. I started slowing down.

Read more


March 18, 2018 – Abstract Acrylic Pour Fundraiser

March 18, 2018 2 – 5PM

Adrienne’s ARTistic Experience will be hosting a fundraiser at the Trinity Presbyterian Church (185 Swaggertown Rd, Scotia, NY )

Cost per person is $40 and all proceeds will go to the Hope Soars Foundation to support Parkinson’s Disease research and programs for patients.  I am looking for 35 aspiring painters!

Participants will create a series of three 10″ square canvases, using an acrylic pour technique.  no experience necessary.  Instructions will be provided to create this fund and abstract wall hanging! Just come with a color pallet in mind!

To reserve you spot and for any questions please email Adrienne at artmom2@live.com


February 19th, 2018 – Saratoga Parkinson’s Support Group

SARATOGA PARKINSON’S SUPPORT GROUP
Date: Monday, February 19th, 2018
Time: 2:00 PM
Location: Woodlawn Commons Bldg,
Saratoga Room 2 nd Floor
At Wesley Health Care Center
156 Lawrence Street
Saratoga Springs, NY 12866

This month our Speaker will be Kathy Johnson, Brain Training.
***See below for additional information***
All persons with Parkinson’s, their families, friends and
caregivers are welcome to attend. For additional info, please
call Bruce McClellan at 518-331- 9611.

Welcome to Brain Training
With Kathy Johnson

Monday through Friday
3:45 – 4:45; please come a little early
PNECC Nolan House (the older structure); buzz to get inside
24 Circular street, Saratoga Springs
Kathy: pyramidofpotential56@gmail.com; 518-885- 2007
Open to all! All ages, created to improve memory and attention
Guidelines:
1. Come as often as you can; you cannot change the brain by only working on
it once in a while; practice at home in between sessions
2. Easy activities do not change the brain; neither do activities that are
frustrating. We work at a challenging level. Remember, hard is good!
3. The most important part of brain training is the two physical exercises,
Starfish and Slow Angels. Read more about them on the next page
4. Bring a water bottle daily to training. When you yawn or start to do worse,
drink
5. When you find an activity that is especially challenging, cross walk – march
while touching opposite hand to opposite knee
6. Other things that improve memory and attention:
a. Aerobic exercise like walking and running
b. Social activities
c. Reducing and eliminating sugar – it inflames the brain
d. Stress reducing activities like yoga, meditation, walking in nature, etc.
e. Do these daily
7. Have Fun!! The brain finds engaging activities much more motivating than
those that are boring or too difficult. Feel free to ask Kathy how to modify
any activity to work for YOU

Starfish Exercise to integrate the Moro Reflex
May help with:
Visual problems, Light or auditory hypersensitivity, Anxiety, mood swings,
Difficulty accepting criticism, Dislike of change, Emotionally sensitive

1. Lie back on a chair, bean bag or sofa with pillow under back
2. Tilt head back, arms up and out, legs out wide
3. While breathing out, to the count of 5:
a. Bring arms in and crossed, right over left
b. Bring legs in at the same time, right over left
4. While breathing in, to the count of 5, bring arms and legs back out
5. While breathing out, to the count of five
a. Bring arms in and crossed, LEFT over Right
b. Bring legs in at the same time, LEFT over Right
6. Repeat step #4
7. Repeat entire cycle, steps 3 – 6, 2 more times

Slow Angels to integrate the Spinal Galant Reflex

May help with:
Bladder control, Poor concentration, Poor short term memory, Auditory
processing difficulties, Near focusing problems

1. Lie on back with legs closed and hands at the side.
2. Very slowly do the movements of a snow angel, by bringing the arms up
and opening the legs as wide as possible. Arms stay on the floor as much
as possible.
3. Now, for 30 seconds, close the legs and bring the arms to the starting
position.
4. Every 15 seconds, take a second to readjust the arms and legs. This is a
difficult exercise because the arms move over twice as fast as the legs.
5. Repeat 2 more times.


Balance Exercises for People with Parkinson’s Disease

 

 

Transcribed from video.

Mah Shi Min, a physiotherapist from Sengkang Health introduces herself, as well as Mr Lee and Mr Ong, who have Parkinson’s disease. Mr Ong will perform the simpler, modified exercises.

Living with Parkinson, you may experience some difficulty with balance. Balance re-training should be incorporated into your exercise programme. Balance training three times a week can help to reduce risk of falls as well as improve your balance.

Exercising safely

Before you begin, here are some tips on how to exercise safely:

  • Pick an appropriate time to exercise
  • Make sure you are well rested, and that your symptoms are well-controlled by your medication
  • Exercise at your own pace
  • Always have a stable support (such as a chair or table that does not move) close by, to hold on to, if needed
  • If you experience pain or difficulty with these exercises, stop and consult your physiotherapist or doctor

Firstly, we will have Mr Lee demonstrate these standing exercises. These should be done in a safe and comfortable manner.

Static standing balance

Stand upright facing a chair or a table.

Standing with your feet shoulder width apart. Hold for 30 seconds.

Stand with your feet together. Keep your body up upright. Hold for 30 seconds.

Tandem standing

Now, Stand with one foot in front of the other, so your heel and toe are in line, keep your body upright and maintain your balance. Try to look straight ahead. Hold for 30 seconds.

Repeat with the other foot in front.

You can progress this exercise into a dynamic one.

Tandem walk

Choose a spot ahead of you and focus on it to keep you steady as you walk by placing your heel just in front of the toe of your other foot.

Repeat for 20 steps.

Single leg stand

Raise one leg so you are balancing on your opposite side. Hold for 10 seconds.

Repeat with the other leg. As you feel steadier, you can balance for a longer time.

For patients whose balance are more severely affected, you may follow the modified version which Mr Ong is demonstrating, using a step board.

Now, we will move on to a series of dynamic balance exercises that involve maintaining your balance whilst moving your body.

Lateral weight shift

Stand with feet shoulder width apart.

Slowly shift your weight to the right as far as possible, without taking a step.

Return to starting position. Then repeat to the left side.

Hold each position for 3 seconds. Repeat 10 times.

Wall leans

Stand with your back against the wall with your feet some distance away.

Pull your body away from the wall using your leg strength, until your body is upright.

Slowly move your hips backwards until it touches the wall again then move your upper body to touch the wall. Your toes should lift up slightly during movement.

Repeat 10 times.

Now, we move onto a series of dynamic balance exercises that involve maintaining your balance whilst moving your feet.

Side stepping

Take a step sideways with one leg, followed by the other leg.

Continue walking sideways for 10 steps.

Repeat in other direction.

Mr Ong is demonstrating a modified version of the exercise.

Backwards walking

Step back leading with your toes, followed by your heel. Repeat on the other leg.

Continue for 10 steps.

Mr Ong is demonstrating a modified version of the exercise.

Alternate stepping

Stand close to a stable support. Place one foot on step and then place it back on the ground.

Repeat with the other leg.

Continue for 10 steps while alternating between legs.

Mr Ong is demonstrating a modified version of the exercise.

Next, we will practice taking a quick saving step, which is what needs to happen automatically if you trip or overbalance. For example, if you trip forward, you need to take a quick step forward to prevent falling over.

Saving steps

Slowly shift your weight as far forwards or sideways as possible, then take a quick step forward.

Hold balance in this position for 3 seconds, then return to start position.

Repeat 5 times.

In this instance, Mr Ong is performing a forward saving step, whereas Mr Lee is performing a side saving step.

Now we will move onto the final series of challenging dynamic balance exercises. These should only be attempted if you can do all the previous exercises without difficulty.

Figure of 8 walking

Place 2 objects about 2m apart on the floor. Walk in a figure of eight pattern and maintain your balance.

Repeat 10 times.

Dual tasking

Practice walking for 2 minutes while performing one of the following tasks:

  1. Motor tasks, such as holding a cup of water
  2. Cognitive tasks, such as:
    – Subtracting a random number by 3.
    – Naming objects e.g. animals, colours.
    – Holding a conversation with another person.

For dual tasking, primary attention should be on balancing and walking, with all other activities as secondary tasks.

Stop if balance or gait pattern is affected.

If you have Parkinson’s disease and have not been referred to a neurological physiotherapist for rehabilitation, you can obtain a referral from your neurologist.

You can find neurological physiotherapists in all acute hospitals.

Remember, it is never too late to start exercising. Begin today and enjoy its benefits! If you have already been exercising daily, keep up the great work!


February 2018 meeting presentation

Steve Hovey gave an informative and inspiring presentation at our February meeting.  He was not able to project his presentation at the meeting.  Here it is for your reference.

Presentation

 


Revolar personal alert system

We talked about this product at our February 2018 meeting.

With the click of a button, Revolar can let your loved ones know where you are and if you need help through customizable messages that include your live location. The most discreet panic button yet.

Read more https://revolar.com/pages/how-it-works

 


Saturday, February 17, 2018  YOPD group at  2:00 pm at the Good Shepherd Lutheran Church

YOUNG ONSET PARKINSON’S DISEASE (YOPD) SUPPORT GROUP

SaturdayFebruary 17, 2018  at  2:00 pm until approx. 4:00 pm at the Good Shepherd Lutheran Church, 510 Albany-Shaker Road, Loudonville, NY

Join the YOPD Support Group Saturday, February 17, 2018, for the monthly meeting.

 

We have a Late Breaking Guest Speaker (not listed on the PD calendar emailed earlier this month). We are excited to have Chrissy Stack, MS, MT-BC, NMT, CBIS, 
Neurologic Music Therapist coming to tell us about the MedRhythms program she facilitates at the Troy YMCA. This is a music therapy program that several of our members have said is very enjoyable and helpful for Parkinson’s.  http://medrhythmstherapy.com/neurologic-music-therapy/


 
Also, Katie McMiller will discuss Parkinson’s news and some senate hearing committees that could affect us all. 
 

There is networking and no admission charge. Patients (any age) and caregivers are welcome to attend to learn more about Parkinson’s disease.

For further information regarding the YOPD, contact: 518-783-3492 or 371-0448, after

3:00 p.m.

Mission: The YOPD support group shall welcome everyone with Parkinson’s disease including their care network. YOPD will support, share, and encourage PD persons to enjoy quality of life and ensure they are not alone in their journey. Information/issues obtained by YOPD from attendees will be treated confidentially and privacy respected.

For more Parkinson’s information and events in the Capital District, go to www.cdparkinsons.org  and www.hopesoars.org

If you no longer wish to receive emails from YOPD, please send an email with “Unsubscribe” in the subject line to cindypetker@hotmail.com

until approx. 4:00 pm at the Good Shepherd Lutheran Church, 510 Albany-Shaker Road, Loudonville, NY

Join the YOPD Support Group Saturday, February 17, 2018, for the monthly meeting.

 

We have a Late Breaking Guest Speaker (not listed on the PD calendar emailed earlier this month). We are excited to have Chrissy Stack, MS, MT-BC, NMT, CBIS, 
Neurologic Music Therapist coming to tell us about the MedRhythms program she facilitates at the Troy YMCA. This is a music therapy program that several of our members have said is very enjoyable and helpful for Parkinson’s.  http://medrhythmstherapy.com/neurologic-music-therapy/


 
Also, Katie McMiller will discuss Parkinson’s news and some senate hearing committees that could affect us all. 
 

There is networking and no admission charge. Patients (any age) and caregivers are welcome to attend to learn more about Parkinson’s disease.

For further information regarding the YOPD, contact: 518-783-3492 or 371-0448, after

3:00 p.m.

Mission: The YOPD support group shall welcome everyone with Parkinson’s disease including their care network. YOPD will support, share, and encourage PD persons to enjoy quality of life and ensure they are not alone in their journey. Information/issues obtained by YOPD from attendees will be treated confidentially and privacy respected.

For more Parkinson’s information and events in the Capital District, go to www.cdparkinsons.org  and www.hopesoars.org

If you no longer wish to receive emails from YOPD, please send an email with “Unsubscribe” in the subject line to cindypetker@hotmail.com


Thursday May 19 at 7:00 at Beverwyk – meeting

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

 topic – Laughter is the best medicine. Michael Burns will lead us in improve comedy.

Michael Burns

Michael Burns is the Co-Director and founder of The Mop & Bucket Company .

Before settling in the area, Michael studied theatre at SUNY Purchase, and then improv with David Shepherd in New York, where he directed for the American Modern Dance Theatre and the American Folk Theatre.  He was a member of The Big Apple Experience, a short-lived but cleverly named improv troupe. He has since worked for several upstate theaters including Home Made Theater, The Theatre Barn and Steamer 10 Theatre.

Michael developed (with David Shepherd) the Compass Institution, an improv troupe touring senior centers and hospitals. He directed inmate-written plays for Very Special Arts at Greene Correctional facility, and has created youth theater troupes for several human services agencies. He is the author of First You Sit on the Floor: A Guide to Developing a Youth Theatre Troupe.

 

So Funny, It Doesn’t Hurt

Can improv be a form of therapy? Some psychologists think so.

https://www.theatlantic.com/health/archive/2015/09/comedy-improv-anxiety/403933/