Monthly Archives: December 2017


Social Security Disability Benefits

Social Security Disability Insurance (SSDI)

If you live with Parkinson’s disease, are below 65 years of age and are unable to work due to your Parkinson’s disease and/or other condition, you might be entitled to SSDI benefits. These are income supplements for people whose employment is limited due to a disability. Read more about SSDI or call 1-800-772-1213 to learn more.

https://www.michaeljfox.org/understanding-parkinsons/living-with-pd/topic.php?government-benefits

 

Parkinson’s disease and the Blue Book

Whenever the SSA receives an application for disability benefits, they will compare your medical records and test results to their own guide known as the Blue Book. The Blue Book lists hundreds of conditions that are potentially disabling, as well as the test results or symptoms you’ll need to be approved for benefits.

Parkinson’s disease is listed under Section 11.06 of the SSA’s Blue Book —Parkinsonian syndrome. To qualify under this listing, you will need to show that you experience at least one of the following symptoms in two extremities:

  • Rigidity
  • Slowness of movement
  • Tremors

 

These symptoms need to be severe enough to affect one of the following:

  • Your ability to perform dexterous movements, such as typing on a computer
  • Your ability to walk
  • Your ability to stand upright

You can apply online at ssa.gov

If you are denied, get an attorney to help you appeal,  You will pay only if you win.

 

More resources

ADPA

https://www.apdaparkinson.org/resources-support/living-with-parkinsons-disease/disability/

Parkinsins.org

http://www.parkinson.org/living-with-parkinsons/legal-financial-insurance/insurance/Government-Programs/social-security-disability-benefits

Social Security Administration booklet

https://www.ssa.gov/pubs/EN-05-10029.pdf

 


Open Letter to Acadia Pharmacudicals

TO: Paul Sciortino
Neuroscience Sales Specialist
ACADIA Pharmaceuticals Inc.
psciortino@acadia-pharm.com
cell 802-238-3903

https://www.nuplazid.com/pdf/NUPLAZID_Prescribing_Information.pdf

From: Jud Eson and Nancy R. Eson

Hi Paul,

We talked about having you give a presentation to our support group http://www.cdparkinsons.org in the spring.

After hearing about the ad put out by Acadia, and now seeing it

https://www.ispot.tv/ad/wC8L/more-to-parkinsons-secret-visitors

we will not have you come to our meeting, or have you speak with us about this drug,

We found the video to be irresponsible, inappropriate and frightening.

It is irresponsible to portray possible Parkinson’s symptoms in such a way that brings only fear and false information to people who are trying to do their best to live their life in a positive way while dealing with this disease, Those newly diagnosed, or less knowledgeable about Parkinson’s Disease, should not be led to believe that this is their future, especially when for so many it is not.  We hope our adult children never see this ad, as it would be terrifying for them to think this could be me.  While it may happen in some form, it may not at all, and certainly not with dramatic background music designed to terrify.

Please forward this to your superiors.  We hope to learn that the decision is made to cease airing of this ad.  It’s done enough damage already.

Jud Eson and Nancy Eson

President

Capital District Parkinson’s Support Group


Cleveland InMotion

I wish we had something like this in Albany

InMotion, a nonprofit health and wellness resource center for those living with Parkinson’s disease, has been recognized around the country for its no-cost Parkinson’s disease support and outreach.

Rossi said InMotion offers various programs for those living with Parkinson’s, with classes that are specific to their symptoms and needs. It offers classes in cycling, yoga, tai chi, boxing, dance and a program called Better Every Day, which is a unique fitness program designed for those living with Parkinson’s disease

Read more..

https://www.clevelandjewishnews.com/features/health/inmotion-keeps-parkinson-s-community-moving/article_ab172f14-df63-11e7-923f-db5c9fa2e6cf.html


9 Ways to Manage Brain Fog

One of the most frustrating symptoms of living with a chronic illness is brain fog. There are medications to treat many symptoms of chronic diseases, but sadly there isn’t yet a pill that takes away brain fog. However, there are ways to deal with it so patients can minimize its effects and lead a normal life.

We’ve put together a list of 10 ways to help manage brain fog, with help from princessinthetower.orgnewlifeoutlook.com, and Web MD.

Read more