Monthly Archives: September 2017


New Parkinson’s treatment described as potential ‘game-changer’

This potential breakthrough stems from a recent clinical trial led by neurologist and professor Thomas Foltynie in the United Kingdom. In the course of a 48-week period, Parkinson’s patients who received the drug exenatide retained more motor function than patients who received a placebo.
Read more http://www.mlive.com/news/grand-rapids/index.ssf/2017/09/parkinsons_specialists_gather.html

 

Exenatide: One step closer to joblessness!

http://journals.lww.com/neurotodayonline/blog/breakingnews/pages/post.aspx?PostID=642


Exercise Classes

 

Always consult your physician before beginning any exercise program. This general information is not intended to diagnose any medical condition or to replace your healthcare professional. Consult with your healthcare professional to design an appropriate exercise prescription. If you experience any pain or difficulty with these exercises, stop and consult your healthcare provider.


Dance Through Parkinson’s – Classes are every Tuesday from 1:30 to 3:00 PM at Rudy A. Ciccotti Recreation Center, 30 Aviation Road, Albany, NY 12205, (518) 867-8920 – $5.00 per class*

P4P-Pedaling for Parkinson’s –Saratoga YMCA no charge – Monday & Friday – phone (518) 583-9622

P4P-Duanesburg/Delanson YMCA – Monday’s and Thursday’s (518) 895-9500 member’s free, non-members $6.00.

P4P-Southern Saratoga (Clifton Park YMCA) – Monday, Wednesday, Friday- members free, non-members $5.00 – phone (518) 371-2139

PWR – Parkinson’s Wellness Recovery Class Thursdays 10:30 – 11:45 Cost $45 for 7 weeks – Clifton Park YMCA – 1 Wall Street, Clifton Park, NY 12065 – Phone (518) 371-2139 Contact the Y for more information

P4P-Glenville YMCA –  Monday, Tuesday, Thursday– Members free, non-members $5.00—phone (518) 399-8118

Neuromotor Wellness – Glenville YMCA – Monday’s 12 noon – 1:15 PM.

P4P-Troy YMCA – Monday, Wednesday, Friday – Members free, non-members $5.00– (518) 272-5900

P4P-Guilderland YMCA – Monday, Wednesday, Friday – Member’s Free, non-members $5.00-Contact Chris Wilson – (518) 456-3634 ext 1140 for more information

P4P- Bethlehem YMCA – Monday, Wednesday, Friday, Parkinson’s Wellness Class Thursdays 12 N -1:45 Cost $45 for 7 weeks –– Phone (518) 439-4394 Contact the Y for more information

Schott’s Boxing, 21 Vatrano Road, Albany, NY 12205 (518) 641-9064- Friday’s 10:00 AM -The cost is $10.00 for the initial visit which covers the cost of the hand wraps. Hope Soars is partnering with Schott’s and will pay most of the membership fee which will be determined based on class size. If you have any questions, please contact Mark Burek (518) 428-0056.

Rock Steady Boxing CNY, 209 Oswego Street #12, Liverpool, NY. Classes are Tuesday, Thursday and Saturday.   Contact Jeannette Riley (315) 622-2332 for assessment appointment and more information. Check Website CNY.rsbaffiliate.com for class information.

Rock Steady Boxing (RSB) at the Centers at St. Camilus, 813 Fay Road, Syracuse, NY 13219, Classes are Tuesdays and Thursdays from 11:45 – 1:15. Call for information, (315) 488-2112

Rock Steady Boxing for Onondaga County is daily, call (315) 622-2332 for more information

Yoga Class- Honest Weight Coop, 100 Watervliet Avenue, Albany, NY, Thursday, Free for Parkinson’s Patients and their family/caregivers, for information call Instructor Tamara Cookingham (518) 495-3239 tamaracookingham@gmail.com


5 steps to loving exercise, or at least not hating it

How do you overcome an exercise aversion? Mercedes Carnethon, Ph.D., associate professor of preventive medicine at Northwestern University’s Feinberg School of Medicine, has some tips to help you incorporate exercise into your life – and maybe even learn to like it.

Read more from the American Heart Association here

http://www.heart.org/HEARTORG/HealthyLiving/PhysicalActivity/GettingActive/5-Steps-to-Loving-Exercise-Or-At-Least-Not-Hating-It_UCM_445812_Article.jsp#mainContent


Immune system may mount an attack in Parkinson’s disease

A new study suggests that T cells, which help the body’s immune system recognize friend from foe, may play an important role in Parkinson’s disease (PD). The study, published in the journal Nature, was supported by the National Institute of Neurological Disorders and Stroke (NINDS), part of the National Institutes of Health.

Read More


Sit to Stand Technique For Parkinson’s Disease

This video demonstrates the “And-Up!” technique I developed for people living with Parkinson’s Disease. This technique, when learned and practices, will help many rise from a chair to a standing position without assistance and without using their arms. Enjoy but proceed with caution. Patrick can be reached at his website: SmartXPD.com or call 323-422-9794 Disclaimer: USE AT YOUR OWN RISK: Patrick LoSasso’s videos are for informational purposes only. Consult a physician before performing this or any exercise program. After consulting with your physician, it is your responsibility to evaluate your own medical and physical condition, and to independently determine whether to perform, use or adapt any of the information contained here. Any exercise program has an inherent risk of injury. By voluntarily undertaking any exercise displayed herein, you assume the risk of any resulting injury

 


February 10, 2018 – CDPSG Meeting Notice

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  In January and February we meet in the afternoon of the second Saturday at 1:30.

When are our meetings?

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

 Topic : Steve Hovey – Davis Phinney Foundation Ambassador, will speak about :
A wellness approach to dealing with Parkinson’s – exercise, diet, sleep, mindfulness.
Attitude – staying positive

Steve was diagnosed with Parkinson’s in 2007 at the age of 50. At the time of diagnosis, Steve did not know anyone with Parkinson’s, so he and his wife Nancy took it upon themselves to learn as much as they could about Parkinson’s symptoms and treatment. Their search soon led them to the Davis Phinney Foundation, where they learned about the importance of exercise and a healthy lifestyle, something Steve credits as significantly impacting the quality of life he continues to enjoy.

Now semi-retired, Steve continues to work part-time as a business consultant and is looking forward to sharing the message that “there are things we can do to manage our disease” as an ambassador for the Davis Phinney Foundation. “When I was diagnosed, the focus of the treatment was on medicine. The doctors never mentioned the benefits of dealing with the disease on a more holistic level – exercise, good nutrition and a healthy lifestyle,” Steve says. “Though [things are] getting better, there are still too many people who need to hear this message.”

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January 13, 2018 – Meeting notice

January 13, 2018

Join the CDPSG Support Group for the monthly meeting.

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.  In January and February we meet in the afternoon of the second Saturday at 1:30.

When are our meetings?

Patients, spouses, siblings, medical professionals/students, friends, and caregivers are welcome to attend to learn more about Parkinson’s disease or obtain information.

 Topic : Rachelle Smith-Stallman, Dance Through Parkinson’s instructor will talk about (and maybe do some of) our dance class

Book – John Grisham  THE TUMOR – free kindle book

John Grisham says THE TUMOR is the most important book he has ever written. In this short book, he provides readers with a fictional account of how a real, new medical technology could revolutionize the future of medicine by curing with sound.

THE TUMOR follows the present day experience of the fictional patient Paul, an otherwise healthy 35-year-old father who is diagnosed with a malignant brain tumor. Grisham takes readers through a detailed account of Paul’s treatment and his family’s experience that doesn’t end as we would hope. Grisham then explores an alternate future, where Paul is diagnosed with the same brain tumor at the same age, but in the year 2025, when a treatment called focused ultrasound is able to extend his life expectancy.

Focused ultrasound has the potential to treat not just brain tumors, but many other disorders, including Parkinson’s, Alzheimer’s, hypertension, and prostate, breast and pancreatic cancer.
For more information or to order a free hard copy of the book, you can visit The Focused Ultrasound Foundation’s website. Here you will find a video of Grisham on the TEDx stage with the Foundation’s chairman and a Parkinson’s patient who brings the audience to its feet sharing her incredible story of a focused ultrasound “miracle.”
Readers will get a taste of the narrative they expect from Grisham, but this short book will also educate and inspire people to be hopeful about the future of medical innovation.

https://www.amazon.com/dp/B01AUYDNI6


October 21, 2017 – Hope Soars Gala


Please join us on

Saturday, October 21, 2017 from 6 – 11 for the Hope Soars Gala

at the Franklin Terrace Ballroom

126 Campbell Ave, Troy, NY 12180

The gala will benefit the Christine DiNapoli Parkinson’s Research Fund at Albany Medical Center.

Our fifth annual gala will feature Trishna Begam from News10 ABC as our Master of Ceremonies, a fabulous menu, a silent auction and live entertainment by TS Ensemble. ​​

We look forward to seeing you at the Gala


Register and pay online at the http://www.hopesoars.org/ Hope Soars site

TO PAY BY CHECK,  click  here, print the form and mail to

HOPE SOARS
1410 Maple Hill Road,
Castleton NY 12033.

Make checks payable to Hope Soars

 

 


October 21, 2017 – YOPD Support Group meeting

DATE: MONDAY, October 21, 2017
TIME: 2:00 PM
LOCATION: Good Shepherd Lutheran Church, 510 Albany Shaker Road, Loudonville

Join the YOPD Support Group  for the monthly meeting.

Patients (any age) and caregivers are welcome to attend to learn more about Parkinson’s
disease.

For further information regarding the YOPD, contact:
518-783- 3492 OR 518-371- 0448, after 3:00 p.m.

Mission: The YOPD support group shall welcome everyone with Parkinson’s disease including their care network. YOPD will support, share, and encourage PD persons to enjoy quality of life and ensure they are not alone in their journey. Information/issues obtained by YOPD from attendees will be treated confidentially and privacy respected.


September 25, 2017 – YOPD Support Group meeting at Route 7 Diner

DATE: MONDAY, SEPTEMBER 25, 2017
TIME: 7:00 PM
LOCATION: ROUTE SEVEN DINER, 1090 TROY SCHENECTADY ROAD
LATHAM, NEW YORK (Handicapped Accessible; Ample Parking)

Join the YOPD Support Group September 25, 2017 for the monthly meeting.
Dinner is ordered off the menu (individual bills). Reservations are not required.
Patients (any age) and caregivers are welcome to attend to learn more about Parkinson’s
disease in an informal setting.

For further information regarding the YOPD, contact:
518-783- 3492 OR 518-371- 0448, after 3:00 p.m.
Next Meeting: October 21, 2017

Good Shepherd Lutheran Church, 510 Albany Shaker Road, Loudonville
Mission: The YOPD support group shall welcome everyone with Parkinson’s disease including their care
network. YOPD will support, share, and encourage PD persons to enjoy quality of life and ensure they are not
alone in their journey. Information/issues obtained by YOPD from attendees will be treated confidentially and
privacy respected.


About us

The Capital District Parkinson’s Support Group meets at 7 PM the second Thursday of most months at the Beverwyck Senior Center located at Krumkill Road, Slingerlands, New York.

 

Subscribe to our email list to receive reminders and announcements

Join our Facebook group

Serving the people with Parkinson’s, their families and caregivers in Albany, NY and throughout New York’s Capital Region.

Our mission is:

  • To provide moral support and fellowship to people with Parkinson’s Disease, their families and caregivers.
  • To raise awareness and disseminate information regarding Parkinson’s Disease
  • To act as a resource center for members and others who would like to know more about Parkinson’s.

We welcome new members – Please join us

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Parkinson’s symptoms reversed in monkeys by groundbreaking new treatment – Researchers hope to move to clinical trials in 2018

Scientists have successfully used “reprogrammed” stem cells to restore functioning brain cells in monkeys, raising hopes the technique could be used in future to help patients with Parkinson’s disease.

Read more

https://www.scientificamerican.com/article/human-stem-cells-fight-parkinson-rsquo-s-disease-in-monkeys/
Trial raises Parkinson’s therapy hope

BBC News

Scientists have restored nerve cells destroyed by a condition similar to Parkinson’s disease, in monkeys. The Japanese team hope their work could lead to stem cell trials in human patients before the end of 2018.
http://www.bbc.com/news/health-41099870

http://www.independent.co.uk/news/science/parkinsons-disease-breakthrough-reverses-symptoms-monkeys-stem-cells-japan-kyoto-a7920816.html