This book is an easy to read account of how I maintain a positive outlook despite dealing with Parkinson’s Disease over the past 19 years. I am hoping it helps others with Parkinson’s or some other debilitating disease. If nothing else I hope that those who read it get a few laughs. I think people will find this book enjoyable and finish it with a smile on their face, whether they have Parkinson’s or not. I am not a rich or famous person with financial resources to try any treatment I want. I am just a regular guy with an irregular disease. Despite the negative impact this disease has on me, I do my best to find and focus on the positives in my life. This book explains that and provides background information on how I got to where I am today. You can contact me via e-mail at firstname.lastname@example.org
Jul 2, 2015 by Maria De Leon MD
Parkinson’s disease affects all sides of you: your inside, your outside, and your “right” side—that is, the side where you feel positive, balanced, and beautiful. How do you find that edge when you’re not feeling very sharp at all?
Parkinson’s Diva is a personal and professional accounting of a young Parkinson’s doctor’s experience with the disease in all realms of her life . . . from doctor, caregiver, and ultimately as a young Parkinson’s patient herself.
Not only does Dr. Maria De León cover important basics of PD and research-based data, she also shares the personal concerns and gender-specific battles that young women who live with the disease must face. She encourages all of us to be empowered through education, self-awareness, and faith. This book is about embracing your own style and grace in your journey with PD . . . as Maria says “summoning your inner diva.”
WORDS OF PRAISE FOR PARKINSON’S DIVA
“Dr. De León, a neurologist and Parkinson’s patient herself, writes with great sensitivity and deep personal insight about issues of critical interest to all women with PD. She blazes the trail toward a better understanding of gender differences and makes an important contribution to the literature on Parkinson’s disease.”
– Diane G. Cook, Patient Representative Consultant, FDA; People with Parkinson’s Advisory Council, Parkinson’s Disease Foundation.
“Dr. De León writes with intelligence, compassion, unflinching honesty and practicality, but most importantly with positivity and faith. Parkinson’s Diva is an informative and insightful book for women on how to live and live well with Parkinson’s disease.”
– Mya C. Schiess, MD; Professor of Neurology; Director UT MOVE
Everybody Has a Window and Aisle Seat: Choosing a Positive Approach to Parkinson’s Disease
by Mary Huston McLendon
Diagnosed with Parkinson’s disease almost two decades ago, Mary Huston relates how she confronted it in a straightforward manner, and refused to give up or play a passive role in her treatment and wellbeing. Her stories describing her long journey will have you laughing and crying at the same time.
by Jon Palfreman
A star science journalist with Parkinson’s reveals the inner workings of this perplexing disease
Seven million people worldwide suffer from Parkinson’s, and doctors, researchers, and patients continue to hunt for a cure. In Brain Storms, the award-winning journalist Jon Palfreman tells their story, a story that became his own when he was diagnosed with the debilitating illness.
My Degeneration: A Journey Through Parkinson’s (Graphic Medicine)
by Peter Dunlap-Shohl
How does one deal with a diagnosis of Parkinson’s disease at the age of forty-three? My Degeneration, by former Anchorage Daily News staff cartoonist Peter Dunlap-Shohl, answers the question with humor and passion, recounting the author’s attempt to come to grips with the “malicious whimsy” of this chronic, progressive, and disabling disease. This graphic novel tracks Dunlap-Shohl’s journey through depression, the worsening symptoms of the disease, the juggling of medications and their side effects, the impact on relations with family and community, and the raft of mental and physical changes wrought by the malady.
My Degeneration examines the current state of Parkinson’s care, including doctor/patient relations and the repercussions of a disease that, among other things, impairs movement, can rob patients of their ability to speak or write, degrades sufferers’ ability to deal with complexity, and interferes with the sense of balance. Readers learn what it’s like to undergo a dramatic, demanding, and audacious bit of high-tech brain surgery that can mysteriously restore much of a patient’s control over symptoms. But My Degeneration is more than a Parkinson’s memoir. Dunlap-Shohl gives the person newly diagnosed with Parkinson’s disease the information necessary to cope with it on a day-to-day basis. He chronicles the changes that life with the disease can bring to the way one sees the world and the way one is seen by the wider community. Dunlap-Shohl imparts a realistic basis for hope—hope not only to carry on, but to enjoy a decent quality of life.
David Zid, an ACE, APG certified trainer, has collaborated with orthopedic surgeon, Thomas H. Mallory, M.D., who is afflicted with Parkinson’s disease, and Jackie Russell, RN BSN CNOR, in the development of a Parkinson’s specific fitness program designed to proactively minimize tremors and improve flexibility, stability, balance and strength. This program empowers the person with Parkinson’s Disease to take control, helps with maintaining independence, and provides hope! Delay the Disease contains colorful photographs of Zid demonstrating each move, as well as recommendations for exercise frequency, modification and how to adjust the workout as one improves. Parkinson’s patients participating in Zid’s fitness program notice improvement in walking, dressing and maintaining balance. Exercises are divided into categories (wake up call, walking and balance, cardiovascular, strength, facial and vocal, and night-time stretching.